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Patient Involvement in the Design of a Patient-Centered Clinical Trial to Promote Adherence to Supplemental Oxygen Therapy in COPD

Resource Type: Research Papers
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This paper describes the process and outcomes of including patients and caregivers in the design and refinement of a study of oxygen use in a COPD population. Researchers employed a variety of feedback forums to obtain responses: in-person focus groups, individual phone sessions and email correspondence. Researchers discuss the use of patient and caregiver feedback in the following elements of their research design: length of and topics discussed during the intervention; the inclusion of caregivers in the protocol; and the choice of measured outcomes. A discussion of limitations to the work, representativeness of the sample and thoughts on continued consultation of patients during study maintenance are included.

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Citation: Holm KE, Casuburi R, Cerreta C, et al. Patient Involvement in the Design of a Patient-Centered Clinical Trial to Promote Adherence to Supplemental Oxygen Therapy in COPD. The Patient - Patient-Centered Outcomes Research. June 2016; 9(3): 271-279. http://link.springer.com/article/10.1007%2Fs40271-015-0150-z.
patient experience

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