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Not sure if should post this on here

Hi all Its been awhile, I'm still jogging along, took the advice from here and i am "having a life" still doing my walks and cardio but not letting my lungs rule take over. But have a question it may not be for this group and I'll take down if wrong. …

Author: Dinna25
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5 Answers
Does anybody else have issues with stuffiness just in one of your nasal passages?

I was using saline rinses. I was also using Ayr, but it stopped helping, so am now using Xlear spray, along with saline nasal washes. You should not use tap water in your nasal passages. Use only distilled, sterile, or previously boiled (and cooled) …

Author: GAnne
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5 Answers
Oxygen dropping at rest

Oxygen dropping at rest with mostly normal lung function? This is new and never used to happen to me during exercise or strenuous landscape work I did at my house. Maybe Dr. Mannino has some input? Very new and scary

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3 Answers
32 mild emphysema diagnosis in ER. How bad is this? Will quitting cigs help me be normal again?

wound up in er ten days ago due to shortness of breath and confusion. Clicking / crackling when I breathe in especially waking up. Hr 90-100 waking up. Slows to 80ish throughout day at rest. They said I looked ok and ct showed nothing bad. Said anxiety …

Author: Wfly
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Problem with Spiriva mist inhaler

I began my second month of using Spiriva Respirnat mist inhaler (tiotropium). Very expensive drug. I negotiated with the drug plan insurer to move it from their Medicare tier 4 to tier 3 to get the cost down. With my deductible, the 2 months have totaled …

Author: netmouse
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2 Answers
Unusual spirometry results—looking for experiences or insights

Hi everyone, I am a 27-year-old male. About nine months ago, I started noticing changes in my breathing. The change was quite drastic—one moment I felt normal, the next I was struggling—and it hasn’t gone away. It took a few months and visits to several …

0 Votes
4 Answers
Check-in: Managing airway mucus: Commonly asked questions

Mucus. Phlegm. Sputum. Whatever you call it, it can be a common problem for people with COPD and other chronic lung conditions, such as bronchiectasis. Extra mucus forms in the airways, from the lungs to the throat, and it might come out as you cough. …

Author: Kalli Mago
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15 Answers
Any one tried Trelegy 200 yet?

Just saw my doctor today. Had been on 100 Trelegy for awhile. He gave me samples of Trelegy 200. Any one tried it yet and what were the result. Thank you.

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0 Votes
3 Answers
Bronchiolits

How common is this? I quit smoking many many years ago for the most part. I was told many years ago might have this, but got better and forgot about it. Now my breathing has gotten so bad that doing anything, including talking takes so much effort. …

0 Votes
12 Answers
Lignosus

Welcome Don.....Sorry I've never heard of Lignosus but someone here may have. I'm sure they'll post if they have. You'll get lots of help here. Click on the LEARN MORE tab at the top of the page--lots of info there

Author: DonCW
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0 Votes
4 Answers
Possibility of misdiagnosis? Or wishful thinking?

Hi, I’ve got a question for the doctor or anyone who can help, I was diagnosed with early stage emphysema and mild asthma at age 30 with a spirometery test that said I had 87% lung function, I quit smoking as I only smoke maybe half a pack a day for 15 …

Author: Matt19*
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11 Answers
Trelegy and eye issues

EVERY medication has risks and benefits. We are always trying to balance one against the other. Eye issues are related to the LAMA component (in the case of Trelegy- this is umeclidinium ). This is similar to Tiotropium ( Spiriva), glycopyrrolate, and …

Author: bpdubya
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2 Answers
PFT results-I have the pdf I just want a straight answer what stage?

Can you post your own pulmonary function test to get a straight answer of how bad you actually are? I have the pdf I just want a straight answer what stage? I feel terrible and would just like a little more of a straight forward answer not the usual …

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3 Answers
Albuterol-I previously posted a question about Albuterol side effects. Here is what I discovered.

I previously posted a question about Albuterol side effects. Here is what I discovered. After questioning Albuterol side effects. I realized with the help of members. Albuterol may have been causing me issues. Specifically tachycardia, increased tremors …

Author: Viper
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0 Votes
5 Answers
Heat source-does anyone have any suggestion

Hey everyone, this question doesn’t have anything to do with meds, it’s a question of heat source, we have had 2 2 Snowfall in the last week, my husband and myself get quiet worked op what we would if we lost power. We have all electric, we had our …

Author: GAnne
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2 Answers
COPD-curious if there is any funding for surgery or a lung transplant

My brother has been diagnosed with mild copd. I was just curious if there is any funding for surgery or a lung transplant since he was a former smoker or if there is some other funding or compensation available for the comfort of patients?

Author: Paula65
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1 Answers
Mild centrilobular emphysema-How long will it stay mild if he quit smoking?

My brother was diagnosed with mild centrilobular emphysema. How long will it stay mild if he quit smoking?

Author: Paula65
0 Votes
1 Answers
How to get the Inogen Rav 4 to work in newer vehicles?

I have the Inogen Rav4 portable oxygen concentrator. For vehicles it has the standard plug in to a cigarette lighter. Problem is new vehicles replaced the cigarette lighter plug in on the dashboard to usb ports. I mentioned that fact to the Inogen sales …

Author: Joe Ripley
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7 Answers
Lips stay dry and chapped, what best?

I have been using beets bees lip balm (peppermint), but I continuously put it on. What is everyone using and find that helps ? Thanks G-Ann

Author: GAnne
0 Votes
5 Answers
Safe to take the train to 8,000 ft from sea level when have COPD on 2L/min continuous flow oxygen?

My brother and I are trying to figure out a safe way to move our Mom from Massachusetts to San Diego so that she can live near my brother and his family. She very much wants to live near by her son, daughter-in-law, and grandkids. She is in her early 70s …

Author: Lisa Snow
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9 Answers
How do you stay healthy and active while living with COPD?

People with COPD are asking: how do you stay healthy and active while living with COPD? We asked members from our COPD community to share your own personal tips. Check out what they came up with! Join us in the conversation by sharing your own tips for …

0 Votes
2 Answers
Bad taste in mouth and numb tongue

Sorry for all of the questions folks, but I was curious if any of you experience a tingling/numb sensation on your tongue or in the mouth, as well as a sort of “dryness” to the inside of the mouth? I don’t know if it’s from mucus or something else. It’s …

Author: Pbob
0 Votes
4 Answers
Can COPD be cured/reversed?​

Does COPD have a cure? Can it be reversed? Can I do everything I used to do before my diagnosis (exercise/running/yoga)? I think ever since my diagnosis I’ve become very scared to do physical activities thinking I will get out of breath.

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4 Answers
How is this drug?

All - I had an updated PFT after 5 years. The numbers are worse, to a degree which surprised the pulmonary doctor. The pulmonary doctor wants to try a new drug. I am now on nothing (see history below). After walking up 2 flights of stairs, I am a bit …

Author: netmouse
0 Votes
5 Answers
COPD and inhaler

Hello, just joined. I wondered if somebody could help me with a query. I was told I probably have COPD awhile ago and I’m awaiting a test to find out for certain, but in the meantime, my Dr has given me a daily use inhaler. He mentioned at the time that …

Author: Amitola
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.