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Possibility of misdiagnosis? Or wishful thinking?

Hi, I’ve got a question for the doctor or anyone who can help, I was diagnosed with early stage emphysema and mild asthma at age 30 with a spirometery test that said I had 87% lung function, I quit smoking as I only smoke maybe half a pack a day for 15 …

Author: Matt19*
0 Votes
11 Answers
Trelegy and eye issues

EVERY medication has risks and benefits. We are always trying to balance one against the other. Eye issues are related to the LAMA component (in the case of Trelegy- this is umeclidinium ). This is similar to Tiotropium ( Spiriva), glycopyrrolate, and …

Author: bpdubya
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2 Answers
PFT results-I have the pdf I just want a straight answer what stage?

Can you post your own pulmonary function test to get a straight answer of how bad you actually are? I have the pdf I just want a straight answer what stage? I feel terrible and would just like a little more of a straight forward answer not the usual …

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0 Votes
3 Answers
Albuterol-I previously posted a question about Albuterol side effects. Here is what I discovered.

I previously posted a question about Albuterol side effects. Here is what I discovered. After questioning Albuterol side effects. I realized with the help of members. Albuterol may have been causing me issues. Specifically tachycardia, increased tremors …

Author: Viper
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0 Votes
15 Answers
Any one tried Trelegy 200 yet?

Just saw my doctor today. Had been on 100 Trelegy for awhile. He gave me samples of Trelegy 200. Any one tried it yet and what were the result. Thank you.

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0 Votes
5 Answers
Heat source-does anyone have any suggestion

Hey everyone, this question doesn’t have anything to do with meds, it’s a question of heat source, we have had 2 2 Snowfall in the last week, my husband and myself get quiet worked op what we would if we lost power. We have all electric, we had our …

Author: GAnne
0 Votes
2 Answers
COPD-curious if there is any funding for surgery or a lung transplant

My brother has been diagnosed with mild copd. I was just curious if there is any funding for surgery or a lung transplant since he was a former smoker or if there is some other funding or compensation available for the comfort of patients?

Author: Paula65
0 Votes
1 Answers
Mild centrilobular emphysema-How long will it stay mild if he quit smoking?

My brother was diagnosed with mild centrilobular emphysema. How long will it stay mild if he quit smoking?

Author: Paula65
0 Votes
1 Answers
How to get the Inogen Rav 4 to work in newer vehicles?

I have the Inogen Rav4 portable oxygen concentrator. For vehicles it has the standard plug in to a cigarette lighter. Problem is new vehicles replaced the cigarette lighter plug in on the dashboard to usb ports. I mentioned that fact to the Inogen sales …

Author: Joe Ripley
0 Votes
7 Answers
Lips stay dry and chapped, what best?

I have been using beets bees lip balm (peppermint), but I continuously put it on. What is everyone using and find that helps ? Thanks G-Ann

Author: GAnne
0 Votes
5 Answers
Safe to take the train to 8,000 ft from sea level when have COPD on 2L/min continuous flow oxygen?

My brother and I are trying to figure out a safe way to move our Mom from Massachusetts to San Diego so that she can live near my brother and his family. She very much wants to live near by her son, daughter-in-law, and grandkids. She is in her early 70s …

Author: Lisa Snow
0 Votes
9 Answers
How do you stay healthy and active while living with COPD?

People with COPD are asking: how do you stay healthy and active while living with COPD? We asked members from our COPD community to share your own personal tips. Check out what they came up with! Join us in the conversation by sharing your own tips for …

0 Votes
2 Answers
Bad taste in mouth and numb tongue

Sorry for all of the questions folks, but I was curious if any of you experience a tingling/numb sensation on your tongue or in the mouth, as well as a sort of “dryness” to the inside of the mouth? I don’t know if it’s from mucus or something else. It’s …

Author: Pbob
0 Votes
4 Answers
Can COPD be cured/reversed?​

Does COPD have a cure? Can it be reversed? Can I do everything I used to do before my diagnosis (exercise/running/yoga)? I think ever since my diagnosis I’ve become very scared to do physical activities thinking I will get out of breath.

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4 Answers
How is this drug?

All - I had an updated PFT after 5 years. The numbers are worse, to a degree which surprised the pulmonary doctor. The pulmonary doctor wants to try a new drug. I am now on nothing (see history below). After walking up 2 flights of stairs, I am a bit …

Author: netmouse
0 Votes
5 Answers
COPD and inhaler

Hello, just joined. I wondered if somebody could help me with a query. I was told I probably have COPD awhile ago and I’m awaiting a test to find out for certain, but in the meantime, my Dr has given me a daily use inhaler. He mentioned at the time that …

Author: Amitola
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0 Votes
4 Answers
Studies on weather impacting progression of lung disease

Has the prevalence of obstructive lung disease in dryer regions ever been studied? How do people with obstructive lung disease fair in dryer areas? I’m in Iowa and as much as I love my family here, i hate the humidity in the air. It even feels humid …

Author: Anonymous
0 Votes
2 Answers
Mucus-I have so much mucus and it seems to be getting worse

I have so much mucus and it seems to be getting worse. I was diagnosed back in 2021 with COPD stage 2. Then in 2022 the mucus started and when I started to question why, they gave me a new test which was still same but I have asthma. My breathing seems …

Author: Lynda W
0 Votes
3 Answers
Why am I Soooo tired after errands...when I finally sit down I feel as though I'm taking my last bre

Why am I Soooo tired after I do errands ...I feel as though I over exerted myself and I'm taking my last breathe here on earth.....why do I feel this way .do I need oxygen or something... ??? HELP

Author: Early
0 Votes
2 Answers
Personal question for ladies. I can’t stand anything that is binding. So ladies this would be a bra.

I have been wearing, a tank top, it’s hard to finds these with bras in them. So is there a certain one that you find comfortable or is there anything else that can help. Someone told me to clip the sides, not sure that will help. I can’t be the only one …

Author: GAnne
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20 Answers
Is anyone else using Fisetin to reduce phlegm, and is it doing as great for you as it is for me?

WOW!!! I did not know Fisetin may help with phlem production. I have not seen any reference to that possible benefit previously. I began taking it as a part of my "stack" of daily supplements as it is claimed it helps clear "zombie" (dead or …

Author: Richard DJ
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0 Votes
2 Answers
Popcorn lung

I have not used ecigs at all in quite a few years, but wondering if past use for several years could have led to this. Idk, I was fine until flare up back in October and just not the same since. I am going to start treatment with Xolair for very high IgE …

0 Votes
11 Answers
Has anyone heard of the POC - O2 Concepts Oxlife Liberty?

I did a little research on it and what I read was contradictary. The manufacturer states it goes up to 1.5 LPM and battery lasts up to 4 hours (without specifying the liter flow it uses to measure) but Bridge to Care states it goes up to 2LPM and will …

Author: JeanO53
0 Votes
9 Answers
Is anybody using either azithormycin or roflumilast for phlegm control ?

Hi Richard, while i am not a clinician you can check with your doctor if cutting the cheaper 500mcg pills of Rofluminast in half with a pill cutter would work for you. I don't know if they are time released or not. Pill cutters cost about $6 online or …

Author: Richard DJ
0 Votes
5 Answers
Alternate meds

I have severe COPD and currently use Breztri twice a day and abuteral as required. I get frustrated when I can’t do some of the simplest tasks. I see all these ads and was wondering if any has tried any of these products and did they see any improvement? …

Author: Djrose
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.