0 Votes
16 Answers
I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT??

This is rather long, but it is designed for those folks who have recently been diagnosed with COPD. It has some valuable information for everyone... I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT?? I am not a physician. Not even close. What I am is a …

Author: Uncle Jim
0 Votes
4 Answers
Portable Oxygen Concentrators

tI am wondering what other people's experiences have been with Portable Oxygen Concentrators. I need to get one for travelling to visit family & friends who are quite a distance away. All the options and information I see is pretty overwhelming. Any tips …

Author: Wolff
0 Votes
6 Answers
Its probably COPD - please help me to understand

Does a lack of reversibility strongly point towards COPD diagnosis? It just means that it is probably not asthma but it does not mean COPD - If it is COPD, can I still work in a lab with chemicals (i.e. is the risk worth it, should I quit/switch …

Author: David29
0 Votes
3 Answers
Financial Assistance

My 71 year old sister-in-law is now oxygen dependent. She lost her job as a result. Her husband suffers with his own health issues and recently lost his job too. We are helping them get governmental assistance with food and Medicaid. They cannot survive …

Author: JeanL
0 Votes
27 Answers
Retractable Oxygen Tubing: Do you use this?

I have had COPD for nearly 20 years and have fought that coiled medical tubing on the floor each and every day of those 20 years. My mother tripped over hers numerous times finally breaking both of her hips in two separate incidents. I have stumbled over …

Author: Janina K
0 Votes
3 Answers
Stage four bull cancer emphysema

so I have read my doctors notes from Monday this morning remembering I have to go have blood work done on Monday for the sales and ELECTRIC cardiogram on Tuesday so it said in his nerves that I had stage four bullies emphysema. So what does this mean for …

Author: GAnne
Tags:
0 Votes
18 Answers
Emphysematous Changes On CT Incidental Find

New development on this rollercoaster journey, I've seen the respiratory consultant and had a PFT, he has reviewed my CT alongside a Radiologist and they have concluded that the "background emphysematous changes" that were originally noted are not …

Author: JD85
0 Votes
17 Answers
End stage COPD and nighttime confusion?

Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …

Author: cheather
0 Votes
8 Answers
CT scan

Hi everyone! I got pneumonia twice in 2023. I was sent for a CT scan and it showed mild emphysema. I then did a PFT which came back good. I went for a PFT again, July 2025, and the results/Pulmonologist said that I don't have COPD. I'm very confused. …

Author: Sassy1
0 Votes
26 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …

0 Votes
3 Answers
OnCOPD

I agree with the pulmnary Rehabilitation suggestion. Have you had pulmonary function testing or CT imaging post operatively?

Tags:
0 Votes
1 Answers
N100

I have just discovered these carbon filter reusable masks. I've been using n 95s until now but I can smell diesel fumes and strong perfumes and aftershaves through it. Back in the city and am finding it difficult to breath. My asthma is at crazy levels …

0 Votes
5 Answers
Trelegy and Roflumolast

Does any one take these together. My dr prescribed the roflumilast as an add on. I have to have some test done, blood work for eosinophils cell, in lung. Then an electric cardiogram to see if heart is doing work of lungs. I have bullous emphysema like …

Author: GAnne
0 Votes
2 Answers
Has anyone tried NO medication for COPD?

I've been on Breo, now max dose of Trelegy for years. Have severe COPD (emphysema), and just wonder what would happen if I stopped.

Author: Diane RD
0 Votes
17 Answers
Anyone hopeful about possible regenerative therapies in near future?

So after speaking to my CBT therapist this morning she asked me what is a positive I can take from the last few weeks (yes I know i'm not as far down the road as many here and I hope never to be but still its scary) and I said the near future as in …

Author: Katw
0 Votes
7 Answers
Any recommendations for anxiety and depression meds?

Hi everyone. I'm new here. I'm overwhelmed. My COPD is progressing. I don't have a support system of family or friends that understands. I can't work but can't get approved for disability yet. The stress of everything is getting to be almost too much. …

0 Votes
6 Answers
Anyone have problems with desaturating during sleep

Hi, Just to share my experience, my FEV1 is approx 90% and my gas exchange is moderately compromised. According to my ‘fit bit’ (night time) and a good pulse ox (day time) and having readings going back over a couple of years, my day time ox is around …

Author: Katw
0 Votes
2 Answers
Has Anyone Used Aspirin To Slow Progression or Reduce Symptoms?

Aspirin Use and Respiratory Morbidity in COPD: A Propensity Score-Matched Analysis in Subpopulations and Intermediate Outcome Measures in COPD Study - PMC A Longitudinal Cohort Study of Aspirin Use and Progression of Emphysema-like Lung Characteristics …

Author: JD85
0 Votes
4 Answers
Bronchial atresia - should I be looking for treatment?

hello there Im a 51 year old woman in good general health. I was diagnosed with bronchial atresia about 20 years ago after recurrent chest infections ands pleurisy prompted a CT scan. At the time I was told that there was no problem with CBA ands that …

Author: SDouglas
0 Votes
3 Answers
ADD med helping breathing

Last month I began a new med to treat my ADD. I’ve had issues with focusing like reading, comprehension etc since I was a kid. Incidentally, since taking this medication called Vyvanse, I’ve noticed my breathing has gotten about 90 percent clearer. I …

Tags:
0 Votes
10 Answers
Never had any phelm with so many colors

I started out week ago with sore throat, headache and cough. Some wheezing. Went to Dr he thought was sinus infection. Prescribed musnix, Prednisone, and cifdinir.Over the next couple day I was coughing up yellow, pink, dark green and dirt brown phlegm, …

Author: GAnne
0 Votes
11 Answers
Stem Cell Research Finally Cures Mild Emphysema in Humans

Study Details | Treatment of Chronic Obstructive Pulmonary Disease (COPD) With Diffusion Capacity Defect by REGEND001 Cell Therapy | ClinicalTrials.gov The Chinese are really pushing hard on this, there population (and the world) are really suffering …

0 Votes
3 Answers
Best air purifier for smokers, Expert recommendations to choose

I am currently supporting a loved one who has COPD and is still struggling with long term smoking addiction. While quitting remains a personal and ongoing challenge for him, I am trying to do what I can to reduce exposure to smoke and pollutants inside …

Author: mony072
0 Votes
12 Answers
Regrets

I’m sorry to read how difficult this is for you. There are a lot of positive things I could say, but I’m not sure that would be very helpful for you right now. My suggestion is that you find someone to talk with, a good mental health therapist just to …

Author: Grace2024
Tags:
0 Votes
3 Answers
Has anyone participated in a clinical trial for COPD?

Curious and looking to discuss participation in clinical trials etc

Author: JD85
Votes
0 This question has no answers. Answers

Author:
Tags:
No questions or answers were found
    No questions or answers were found
    More Questions
    Tags
    No tags found

    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.