0 Votes
11 Answers
Do you know your songs?

Via Google search.... B4 - Beep Beep (The Playmates) I listened to it and will never get those few minutes back.... :)

Author: edpe77
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What to do when the provider may be wrong about COPD stage in a significant way?

My spouse (40 yo female) is newly diagnosed and we are already at our wits' end with local healthcare resources (living in Albuquerque, New Mexico, US). We are waitlisted with no end in sight for MDs/DOs, which would be our preference, given that my …

Author: wambach20
0 Votes
6 Answers
Need oxygen for my copd and a doctor won't approve it?

What do i do if i need oxygen for my copd and a doctor won't approve it?

Author: vickiechil
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0 Votes
8 Answers
Lung Transplantation

D1958, it is very understandable to be scared, I think everyone who faces a transplant feels the same way. Mass General is a great hospital one of the best. I think you need to go and be educated about the procedure and what to expect from the experts …

Author: D1958
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0 Votes
5 Answers
Perpetual motion.

My experience after sitting for long periods is very SOB as soon as I start walking. After a few minutes of alternating between sitting and walking I am much better. Sort of like I have to phase in walking or other exertion.

Author: Eddie 7
0 Votes
7 Answers
Follow up with pulmonologist

Had a visit with my pulmonologist on Tuesday where I reiterated my symptoms. I told him, once again about the mucus/phlegm, daily chest discomfort/headaches, barking cough, ear fullness, throat irritation, and blood in spit almost daily. I told him again …

Author: Pbob
0 Votes
1 Answers
Check-In: Why so much talk about exacerbations?

Hello All! I hope you are having a good week so far! I don’t know how this keeps happening, but time sure does seem to fly by these days. Is that the way it is for you, too? The check-in for this week is following up on our exacerbations conversations. I …

0 Votes
5 Answers
Worried about my new diagnosis

Hi Tipsy! If you had a pulmonary function test ( PFT), where you blow into a tube connected to a machine, that should be a definitive diagnosis. COPD is a progressive disease, and without proper treatment and management, decline can occur quickly. …

Author: Tipsy2
0 Votes
1 Answers
How do ou squeeze your MDI?

Had a routine PFT test yesterday. Test was surprisingly easy. My new RT was an excellent coach and very patient. As most know, getting good results is highly dependent upon the RT. At any rate, I told her that my squeeze finger has been getting too weak …

Author: edpe77
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0 Votes
8 Answers
24, depressed and recently diagnosed with copd

I'm 24 and I was diagnosed with chronic bronchitis about a year ago, although at the time they told me if I changed my lifestyle it wouldn't become full on COPD. I've never been a happy person, which is probably what lead me to smoke 2 packs and around …

0 Votes
5 Answers
"Short of Breath"- how to prevent or cope with being short of breath.

Help. I feel certain I am doing something wrong and need your advice. When I am home, I use 2L continuous oxygen for exertion and sleep, and no oxygen if I'm sitting around. Recently, any sudden change in activity, like going out to get the mail, or …

Author: muddleaged
0 Votes
15 Answers
Young diagnosis

I’ve shared bits of my story as I have the same lingering symptom: chronic phlegm production that causes me to clear my throat repeatedly, which also gets on my vocal chords. I have a great pulmonologist and he refers to it has “mucus hyper-secretion” …

Author: Pbob
0 Votes
7 Answers
This is what keeps me up at night at 43 years of age with the only symptom of Phelgm everyday.

Hey mcat43 You might want to think about what in the environment may be causing some irritation, that may be causing inflammation and mucus. Or even allergies. You are physically active, exercise, and …

Author: mcat43
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0 Votes
4 Answers
Hospital visit

I have requested a second opinion with a different pulmonologist over a month ago and I can’t get in until September 10th. I called his office yesterday to see if there was any way we could expedite some of the tests like a PFT(been over a year-first one …

Author: Pbob
0 Votes
5 Answers
Nebulizing when Wildland smoke from fires is bad

Is it okay to nebulize duoneb when the Wildland fire smoke is really thick .

Author: Ruralgirl
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0 Votes
11 Answers
Are meds given for mild copd

My spirometer test shows I have mild obstructive airway disease. Pulmonologist reading my CT said emphysema changes in the lungs also hyperinflation.Have me Trelegy sample that really hasn’t been a silver bullet for my breathlessness. I have been trying …

Author: Kbrann73
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0 Votes
5 Answers
Check In - Exacerbations and You

Prior to and early in my COPD diagnosis I started out in box 1 & 2. Growing up the message that was clearly sent was... "get up and move and you'll feel better". Going to the doctor was something that happened only when the situation was serious, i.e. is …

0 Votes
9 Answers
Exacerbations - Have you ever?

I scored 20, if it was rephrased to "Do you currently" I would have scored less. Gives me food for thought. For instance I have been out of vitamins for weeks.

0 Votes
9 Answers
does humidity effect copd?

I don't do well in humidity, but there are some who seem to tolerate it very well. COPD is not a "one size fits all" disease. That being said, my observations of others with COPD in support groups and here, informs me that most people with COPD do have …

0 Votes
2 Answers
Medicine or OTC product for humidifier

Hi migoblu! I am not aware of any OTC product for a humidifier, except for diffused essential oils. They must only be used in a humidifier that has an essential oils diffuser attached. I myself am not a fan of diffused oils. There are various OTC …

Author: migoblu
0 Votes
7 Answers
I’m afraid I have COPD but can’t get testing for a month

Hello and welcome to our group!! I have not had a cpap yet but afraid its coming. What Steph said sure sounds very good to me I would be weary of wearing one also.

0 Votes
6 Answers
Oxygen Tank Restrictions

My husband was diagnosed with COPD at age 48 years old. He is on oxygen 4 liters continuous flow. He is still very active, going fishing, yard work, etc. His oxygen provider has limited the number of portable tanks he can receive a week. This limit is …

Author: revonda7
0 Votes
9 Answers
Does anyone else have a 2nd illness that affects their COPD?

I was diagnosed with COPD about 20 years ago.  Ten years ago, I was diagnosed with Multiple Sclerosis (MS).  Both of these illnesses seem to make the other one worse.  Breathing takes so much energy that it compounds my MS fatigue.  I …

Author: BarbP
0 Votes
11 Answers
Phelgm? I don��t get it.

I have Phelgm everyday all day. I can still jog a 5K and walk 5-6 miles no problem. BUT I have Phelgm everyday. My voice will crackle in morning and sometime when I lay on my back I fee Phelgm on my vocal cords. I’m on Breo 100/25 took my FEV1 today it …

Author: mcat43
0 Votes
12 Answers
Anyone have experience of a breathing aid called AirPhysio Global

I saw an ad in facebook the other day for a Australian manufactured breathing aid designed for COPD and Asthema patients.There were attached to the ad so many postive claims for the benefits by users in improving their breathing and mucus control,just …

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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.