Hi all As the weather is so wet and windy I am not getting to go for a walk every day. So i done some seaching and find video lessons of Home walking Workouts there is 10min 15min 20min and 30min so i have been doing the 15min one this is equivalent to …

42 year old male stage 3 COPD with emphysema 38% lung capacity. Diagnosed on halloween this year. Current smoker but trying anything and everything to quit. First pulmonary appointment isnt until January. My primary care is just vague "quit smoking use …

It's one of two three-in-one meds available; the other is Trelegy. They work well for some people; for others, not so much. It's been around for several years, but it is one of the newest combinations we've seen.

Thanks for checking in Wildebeest! And Karina, thanks also - it sounds like your situation PFT wise (age, mild obstruction, food DLCO and significant air trapping) is very similar to my own. Good to know you've turned a corner in terms of your symptoms, long may it continue. Keen to share my findings from the appointment last week - but strap in, because my mind was somewhat blown from how different the session was vs my expectations, and I'm about to get philosophical. So with 3 Spirometry tests at 66-68 FEV/FVC and significant air trapping, I fully expected to receive a COPD diagnosis and a chat about management, etc. I should preface this by saying: - Firstly, I do suffer health based anxiety. Family members have been telling me to 'stay off Google' - this in fairness would I guess include (in their opinion) this forum, though I obviously believe the forum to have a wealth of good information and benefits. But the view of the outsider is something like 'you don't have a diagnosis, much of the online info is doom and gloom, do your anxiety a favour and get the official word rather than coming to your own conclusions'. Secondly, the Respiratory consultant I saw is experienced, practicing for 16 years and whilst specialising in ILD in particular, very experienced in dealing with COPD also. She saw all 3 sets of results including the full PFT and also my CT angiogram, other medical history etc. In a nutshell, she said based on my CT there is no evidence of emphysema, no evidence of bronchial thickening - so structurally my lungs are fine. PFT-wise, I'm transferring oxygen well, and though there is slight obstruction, the FEV value in isolation is 98% predicted, and she said my lung function is 'normal'. Since my symptoms have recently become much worse, she said she is practically certain that 90% of this is due to a 'breathing pattern disorder' rather than damage to my lungs - also that my lung volume, rather than being a result of hyperinflation (no evidence of this on the CT apparently either), is just that I have big lungs (I have always had a large chest). Obviously, this raises a number of questions. I asked her at one point 'would you say then that I DON'T have COPD?' Her response was 'I can see no evidence of it. This goes in the face of everything I've read online which says <0.7 fev1 = copd, and also comments from spirometry testers (who i drilled) saying things like 'your chest is quite tight'. so she says i do have mild obstruction, but based on the whole, picture, physical exam etc, that it shouldnt be giving me a major problem and i need to go to s breathing physio in order to 'retrain' myself to breathe correctly rather than breathing from the top of my lungs, something that could be anxiety related. she also recommended that i do a pulmonary exercise test to get more detail and look into the … fev1="COPD," and="" also="" comments="" from="" spirometry="" testers="" (who="" i="" drilled)="" saying="" things="" like="" 'your="" chest="" is="" quite="" tight'.="" so="" she="" says="" i="" do="" have="" mild="" obstruction,="" but="" based="" on="" the="" whole,="" picture,="" physical="" exam="" etc,="" that="" it="" shouldnt="" be="" giving="" me="" a="" major="" problem="" and="" i="" need="" to="" go="" to="" s="" breathing="" physio="" in="" order="" to="" 'retrain'="" myself="" to="" breathe="" correctly="" rather="" than="" breathing="" from="" the="" top="" of="" my="" lungs,="" something="" that="" could="" be="" anxiety="" related.="" she="" also="" recommended="" that="" i="" do="" a="" pulmonary="" exercise="" test="" to="" get="" more="" detail="" and="" look="" into="" the="">

I, for one, am glad the medical system is o longer treating us like mushrooms (kept in the dark and fed sh--). With "MyChart" I get test results before the doctor even sees them. Sometimes I choose to panic. Sometimes I choose to wait and see what the …

Greetings, Former smoker,59, that quite about 9 years ago. About 1 year ago LDCT found ‘minimal’ emphysema, went to specialist and had spirometry.Doctor said spirometry was normal. He told me never smoke again, eat well, lose weight, and keep up on …

Are there ever any conferences for COPD patients to learn about new research, medications, etc. If so, how can I find out about them?

This past summer I purchased a stationary exercise bike for exercising in the winter months. It has a display with heart rate monitor. While exercising, my heart rate reaches near 150. Should I be concerned? Should I stop and get off? I was on it for …

Hi, so I just got the results of my pulmonary function test. I was surprised to see that the results were actually better than two years ago, not much, but better. That surprised me because I have been feeling worse and more limited. Now that I have had …

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Hello everyone, new to the group and looking for some insight. Early January I was recently in the ER with an asthma exacerabation that needed to be controlled. I was originally on Pulmicort and Singulair and never had any issues. I went to my Pulmo and …

I went to the ER for right shoulder pain. They did some Xrays gave me some pain medication and sent me home. No one went over these reswith me at the hospital, I just happened to check my chart. I am very scared, how bad is this? Am I in big trouble? 35 …

I'm I guess not really that young, but found out I had some emphysema scattered in both my upper and lower lobes of my lungs. I tested negative for the AAT Deficiency. I am a preemie survivor, who was on a vent for three months after birth. But I had …

Hi all, I am feeling dreadful, i had to go back home at mid day because i could not cope with work. Can’t stop crying although I am the one responsible for this. I am Anne, 54 and French. I have been having low dose ct scans for the last 2 years to check …

Hi all I need to have a tooth extracted but am wondering how I proceed the first few days afterwards re my breztri inhaler? I know its important to be careful not to dislodge the clot, so am a little worried about that. I do use a spacer if that makes …

Hi Everyone, for completeness I thought I'd add these in especially if anyone ends up in a similar situation to myself in the future. These were the PFT results that I had recently prior to my appointment with my consultant, FVC 5.58 (93% predicted) …

Make sure you factor in the cost of filter replacements. I've been running a winix 5600-2 nonstop for 2 1/2 years and the price of the replacement filters have already exceeded the cost of the original unit. Lots of good HEPA units...so it reaaly comes …

I use Ohtuvayre first, then Breztri. If you have been prescribed Ohtuvayre, you can confirm with your specialty pharmacy, but those were the instuctiond I was given

So here's my list------Fish oil--Flaxseed oil--Metamucil--Culturelle{probiotic}--Apple cider vinegar--D3--Oil of oregano and the Lung Meister---I should be cured of something!! My Doc says all ok...I will say I feel pretty good most of the time but I …

Good morning, just want to know, I can sometimes cough after drinking water and cough clear, then mucus turns slight green then green, back to clear. Does anyone else do this. I have called my pulumnary Dr he will return call when he gets out of …

Hi all Up until today was using tins (Baked Beans) to do Arm Curls etc started 5 repetitions and now at 10 repetitions, I tended to use same 2 tins. "Whoops" used those Beans and they were mush looked like a tin of slop, so got some dumbells. 1 pair …

Does anyone else experience center back, and rib pain? I notice this when I was weaned off prednisone, and when I finish some leg and arm therapy

My brother and I are trying to figure out a safe way to move our Mom from Massachusetts to San Diego so that she can live near my brother and his family. She very much wants to live near by her son, daughter-in-law, and grandkids. She is in her early 70s …

Hello, I am confused about a new prescription. I was taking Spiriva 2.5 for several months and then my prescription was changed to Spiriva 1.25 after a visit with my doctor. I asked him if he thought I really needed to be on 1.25 because I had been …

Im booked in for a lung function test in December.... im wondering if I could have copd every morning I wake I can't catch my breath until I've managed to hock up the thick yellow sometimes white brownish stuff sometimes rather big amounts that are so …