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Sorry for all my negative venting . Here’s something positive 💕
with all my Negative post here’s one good thing that has happened I’ve been caring for a sick puppy around the clock who wouldn’t eat and he’s made a remarkable turnaround and his strong and eager to eat, he kicks his little feet in happiness I’m …
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Terminology on CT Report
To me- that means there is some evidence of emphysema ( thinned areas of lung or holes in the lung) on imaging. Most people with this alone have fairly normal lung function- but at increased risk for developing COPD in the future ( particularly if they …
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Emphysematous Changes On CT Incidental Find
Hey everyone, I'm 39, ex smoker with a 10 year pack history, quit 6 years ago, current military, so I had a viral infection (highly likely COVID) went to hospital as I couldn't breathe, this had been going on 6 weeks by this point. Ended up having a CT …
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Regrets
I’m sorry to read how difficult this is for you. There are a lot of positive things I could say, but I’m not sure that would be very helpful for you right now. My suggestion is that you find someone to talk with, a good mental health therapist just to …
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Stem Cell Research Finally Cures Mild Emphysema in Humans
It is an amazing time we are now living in, both negatively and positively. I recall several years ago observing my 99 year old mother waking unassisted to the car on her titanium hip and knee and I realized that I am old enough to remember the T.V. …
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Supporting a Loved One Who Smokes with COPD
Hi everyone, I am new to this community and here to learn. Someone close to me has COPD but is still smoking due to long term addiction. I am trying to support him the best I can but it is hard when he struggles to quit. If anyone here has been in a …
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Is anybody using either azithormycin or roflumilast for phlegm control ?
Hi Richard, while i am not a clinician you can check with your doctor if cutting the cheaper 500mcg pills of Rofluminast in half with a pill cutter would work for you. I don't know if they are time released or not. Pill cutters cost about $6 online or …
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Anyone hopeful about possible regenerative therapies in near future?
Given the increased interest in lung issues since COVID I am optimistic that regenerative medicine will offer some partial treatments if not full solutions soon enough for COPD, P63+ trails seem to be the most likely success at the moment because they …
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Using Acupuncture
Has anyone had Acupuncture and found it to help you with breathing or other things? The reason I ask is because I have been having a problem with irregular heartbeats and a friend asked me to try seeing a Acupunctureist. I have been twice now and the …
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Warning (phlegm gross picture ) scared still no help
hello everyone it’s me again lol. I’m still not doing well at all probably worse . I did start exercising and jogging and it was helping a lot but these last two days I’ve haven’t been able to move and only lay on my stomach to breathe . It got so bad I …
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inhaled steroids question
Hi evnewt1 - I agree with Debbie - Breztri is a maintenance medication, and actually contains 3 medications, one of which is a corticosteroid, and is to be used every day, and not "as needed", as far as I am aware. But I'm also just another patient …
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Can anyone recommend an article that clearly explains COPD and the importance of taking taking care
Can anyone recommend an article that explains COPD and the importance of taking care of yourself?
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Dilemma if I should use Trelegy or Ohtuvayre
Hi Who Me ? I began using Ohtivayre 5 months ago. My routine with taking meds is, each morning I wake up and if I have any shortness of breath I use my rescue inhaler or Duo Neb in nebulizer. Then I get the coffee going, feed my kitties. After a …
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Is inhaled Glutathione along with Mullein Extract beneficial?
The most common side effects of inhaled glutathione include coughing, wheezing, shortness of breath, chest tightness, and headache. If you experience any of these symptoms, it is important to talk to your healthcare provider 1 . It is …
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Check-In: The Role of Community in Chronic Lung Conditions
Spending time on COPD360Social can be a lot of fun. Connecting with people across the country, learning some of Debbie’s yummy recipes, and catching a glimpse of a cute puppy on Fluffy Friday can bring a smile to anyone’s face. But did you know that …
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My first cold in ages with severe COPD
Hi all - just a question to know what is relatively normal with a cold and COPD. Reminder of myself - alpha 1 antitrypsin deficient - age 57 severe but stable COPD (mix of emphysema and chronic bronchitis). First time in ages with a cold and wow was I …
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Oxygen levels
hi everyone! I am wondering what oxygen levels that you all are living at. I am weaning off oxygen and was told by my pulmonary doctor that some people with copd have 02 levels between 92 and 88. I just want to make sure my organs are getting enough …
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COPD + stomach issues. Anyone else experience both?
When you get short of breath, the brain goes into "survival mode" and sends blood (hence oxygen) to the most vital organs. Unfortunately, the bladder and sphincter muscle are not considered essential making you have to "go". In the course of my illness, …
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7
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Check-in: Have you heard about pulmonary rehab?
If you could join a program that was designed to help you manage your COPD symptoms and improve your breathing, would you want to try it? Many people living with COPD may not realize that programs like these are available in communities all around the …
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Pulmonary rehab online
Has anyone used Carda Health, an online Pulmonary Rehab Therapy? My closest facility has a waiting list and is under staffed
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Anyone having luck using Ohtuvayre?
I’ve been using it for almost 6 weeks now and can’t say I’ve noticed any improvement. In fact I’m noticing phlegm in my throat which I never had before and I’m constantly clearing my throat now. Also, I think my o2 stats are actually lower. I called the …
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Breathing trainers
As the title suggests I have invested in some breath trainers. Anything and everything to get back in the ocean, at least 3 x a week. Just wanting feedback on the items. The welcare breatheasy, an incentive spirometer and my peak flow meter. I have the …
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Never had any phelm with so many colors
I started out week ago with sore throat, headache and cough. Some wheezing. Went to Dr he thought was sinus infection. Prescribed musnix, Prednisone, and cifdinir.Over the next couple day I was coughing up yellow, pink, dark green and dirt brown phlegm, …
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Appreciate feedback, new to COPD . Altitude & chlorinated pools…
Welcome RH! Glad you found us. You say you were diagnosed with COPD a few weeks ago. Was this diagnosis made by spirometry? Are the antibiotics for an infection or a maintenance course? Did you recently to the 7000ft altitude? Sorry, but the answers to …
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Do strangers ask you why you are using an oxygen concentrator when you are walking outside?
One neighbor (an acquaintance) and another neighbor whom I really do not know asked me why I was wearing the concentrator. When I didn't answer (thinking they would think better of the question), I told them it was private information. Both were …
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