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Best Fan for Bedroom Choose the best
I have researched about the best fans for home use over the past few days because I need one to keep my rooms cool and comfortable. I read reviews on Consumer Reports, New York Times Wirecutter, and Popular Mechanics, and they are marking these two as …
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Best Air Filter for Home Use Choose the best
I have been looking into the best air filters over the past few days because I really want to improve the air quality in my home. With kids who have dust allergies and a pet at home, clean air is becoming a big priority for us.While doing my research, I …
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18
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Anyone hopeful about possible regenerative therapies in near future?
So after speaking to my CBT therapist this morning she asked me what is a positive I can take from the last few weeks (yes I know i'm not as far down the road as many here and I hope never to be but still its scary) and I said the near future as in …
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6
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Trelegy and Roflumolast
Does any one take these together. My dr prescribed the roflumilast as an add on. I have to have some test done, blood work for eosinophils cell, in lung. Then an electric cardiogram to see if heart is doing work of lungs. I have bullous emphysema like …
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21
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Emphysematous Changes On CT Incidental Find
Hi Everyone, for completeness I thought I'd add these in especially if anyone ends up in a similar situation to myself in the future. These were the PFT results that I had recently prior to my appointment with my consultant, FVC 5.58 (93% predicted) …
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7
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New Here and Scared To Death
Hello Friends, Well.... it seems as if I have unwillingly just joined a club that none of us wanted to belong too and I am scared to death. As a 30 year plus smoker, time and the Marlboro's have caught up with me and 16 days ago I found myself in what I …
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8
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Does anyone have a lack of appetite, or problems with weight loss since your diagnosis?
Hi Caroline, Thank you so much for your response. I do most of the things you suggested, except I don't drink milk or dairy of any kind. When my appetite is on track, I usually eat yogurt and oatmeal for breakfast, and occasionally, sausage. I also eat 2 …
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2
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Clarification
Hello, I've been reading the forums for a while now and have also read the some of the educational articles. I'm looking for clarification on a few items. A bit of background. Smoked many years. Quit 7.5 years ago. Was approximately 100 lbs overweight …
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2
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Breast MRI
Since I have to be lying on my stomach for an upcoming MRI, should I have oxygen since my O2 number goes down when I lie down on my stomach. I do not require oxygen and I use a CPAP at night.
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5
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Background mild emphysematous changes CT scan really anxious
As noted above, you should have pulmonary function testing (spirometry, lung volumes, DLCO) and blood testing for Alpha-1 (genetic emphysema). I suspect you will be normal or near normal ( which has been true for most of the people who have found us with …
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1
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Update. PFT today. It was a terrifying experience.
Desaturated to 86 bilateral pins and needles in both hands and the technician had to call a doctor in. Apparently a sharp decrease in DLCO. A respiratory consultant I saw before told me to wear gloves when my hands turn blue, and a nurse accused me of …
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7
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Bronchial atresia - should I be looking for treatment?
hello there Im a 51 year old woman in good general health. I was diagnosed with bronchial atresia about 20 years ago after recurrent chest infections ands pleurisy prompted a CT scan. At the time I was told that there was no problem with CBA ands that …
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4
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Anyone having luck using Ohtuvayre?
I’ve been using it for almost 6 weeks now and can’t say I’ve noticed any improvement. In fact I’m noticing phlegm in my throat which I never had before and I’m constantly clearing my throat now. Also, I think my o2 stats are actually lower. I called the …
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19
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Quite worried about disease progression
Hi, firstly I'm not a clinician but the graph below indicates those who give up smoking on average loose FEV1 at half the rate of those who continue to smoke (perhaps somewhere near normal) although nothing is guaranteed... So you've already bought …
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7
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Portable Oxygen Concentrators
tI am wondering what other people's experiences have been with Portable Oxygen Concentrators. I need to get one for travelling to visit family & friends who are quite a distance away. All the options and information I see is pretty overwhelming. Any tips …
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8
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Terminology on CT Report
To me- that means there is some evidence of emphysema ( thinned areas of lung or holes in the lung) on imaging. Most people with this alone have fairly normal lung function- but at increased risk for developing COPD in the future ( particularly if they …
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17
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I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT??
This is rather long, but it is designed for those folks who have recently been diagnosed with COPD. It has some valuable information for everyone... I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT?? I am not a physician. Not even close. What I am is a …
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6
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Its probably COPD - please help me to understand
Does a lack of reversibility strongly point towards COPD diagnosis? It just means that it is probably not asthma but it does not mean COPD - If it is COPD, can I still work in a lab with chemicals (i.e. is the risk worth it, should I quit/switch …
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3
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Financial Assistance
My 71 year old sister-in-law is now oxygen dependent. She lost her job as a result. Her husband suffers with his own health issues and recently lost his job too. We are helping them get governmental assistance with food and Medicaid. They cannot survive …
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27
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Retractable Oxygen Tubing: Do you use this?
I have had COPD for nearly 20 years and have fought that coiled medical tubing on the floor each and every day of those 20 years. My mother tripped over hers numerous times finally breaking both of her hips in two separate incidents. I have stumbled over …
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3
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Stage four bull cancer emphysema
so I have read my doctors notes from Monday this morning remembering I have to go have blood work done on Monday for the sales and ELECTRIC cardiogram on Tuesday so it said in his nerves that I had stage four bullies emphysema. So what does this mean for …
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17
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End stage COPD and nighttime confusion?
Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …
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8
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CT scan
Hi everyone! I got pneumonia twice in 2023. I was sent for a CT scan and it showed mild emphysema. I then did a PFT which came back good. I went for a PFT again, July 2025, and the results/Pulmonologist said that I don't have COPD. I'm very confused. …
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26
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How Long Can your Oxygen Tubing Safely Be?
There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …
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3
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OnCOPD
I agree with the pulmnary Rehabilitation suggestion. Have you had pulmonary function testing or CT imaging post operatively?
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