0 Votes
3 Answers
OnCOPD

I agree with the pulmnary Rehabilitation suggestion. Have you had pulmonary function testing or CT imaging post operatively?

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0 Votes
5 Answers
CT scan

Hi everyone! I got pneumonia twice in 2023. I was sent for a CT scan and it showed mild emphysema. I then did a PFT which came back good. I went for a PFT again, July 2025, and the results/Pulmonologist said that I don't have COPD. I'm very confused. …

Author: Sassy1
0 Votes
1 Answers
N100

I have just discovered these carbon filter reusable masks. I've been using n 95s until now but I can smell diesel fumes and strong perfumes and aftershaves through it. Back in the city and am finding it difficult to breath. My asthma is at crazy levels …

0 Votes
5 Answers
Trelegy and Roflumolast

Does any one take these together. My dr prescribed the roflumilast as an add on. I have to have some test done, blood work for eosinophils cell, in lung. Then an electric cardiogram to see if heart is doing work of lungs. I have bullous emphysema like …

Author: GAnne
0 Votes
2 Answers
Has anyone tried NO medication for COPD?

I've been on Breo, now max dose of Trelegy for years. Have severe COPD (emphysema), and just wonder what would happen if I stopped.

Author: Diane RD
0 Votes
17 Answers
Anyone hopeful about possible regenerative therapies in near future?

So after speaking to my CBT therapist this morning she asked me what is a positive I can take from the last few weeks (yes I know i'm not as far down the road as many here and I hope never to be but still its scary) and I said the near future as in …

Author: Katw
0 Votes
7 Answers
Any recommendations for anxiety and depression meds?

Hi everyone. I'm new here. I'm overwhelmed. My COPD is progressing. I don't have a support system of family or friends that understands. I can't work but can't get approved for disability yet. The stress of everything is getting to be almost too much. …

0 Votes
6 Answers
Anyone have problems with desaturating during sleep

Hi, Just to share my experience, my FEV1 is approx 90% and my gas exchange is moderately compromised. According to my ‘fit bit’ (night time) and a good pulse ox (day time) and having readings going back over a couple of years, my day time ox is around …

Author: Katw
0 Votes
2 Answers
Has Anyone Used Aspirin To Slow Progression or Reduce Symptoms?

Aspirin Use and Respiratory Morbidity in COPD: A Propensity Score-Matched Analysis in Subpopulations and Intermediate Outcome Measures in COPD Study - PMC A Longitudinal Cohort Study of Aspirin Use and Progression of Emphysema-like Lung Characteristics …

Author: JD85
0 Votes
4 Answers
Bronchial atresia - should I be looking for treatment?

hello there Im a 51 year old woman in good general health. I was diagnosed with bronchial atresia about 20 years ago after recurrent chest infections ands pleurisy prompted a CT scan. At the time I was told that there was no problem with CBA ands that …

Author: SDouglas
0 Votes
3 Answers
ADD med helping breathing

Last month I began a new med to treat my ADD. I’ve had issues with focusing like reading, comprehension etc since I was a kid. Incidentally, since taking this medication called Vyvanse, I’ve noticed my breathing has gotten about 90 percent clearer. I …

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0 Votes
10 Answers
Never had any phelm with so many colors

I started out week ago with sore throat, headache and cough. Some wheezing. Went to Dr he thought was sinus infection. Prescribed musnix, Prednisone, and cifdinir.Over the next couple day I was coughing up yellow, pink, dark green and dirt brown phlegm, …

Author: GAnne
0 Votes
16 Answers
Emphysematous Changes On CT Incidental Find

Hey everyone, I'm 39, ex smoker with a 10 year pack history, quit 6 years ago, current military, so I had a viral infection (highly likely COVID) went to hospital as I couldn't breathe, this had been going on 6 weeks by this point. Ended up having a CT …

Author: JD85
0 Votes
11 Answers
Stem Cell Research Finally Cures Mild Emphysema in Humans

Study Details | Treatment of Chronic Obstructive Pulmonary Disease (COPD) With Diffusion Capacity Defect by REGEND001 Cell Therapy | ClinicalTrials.gov The Chinese are really pushing hard on this, there population (and the world) are really suffering …

0 Votes
3 Answers
Best air purifier for smokers, Expert recommendations to choose

I am currently supporting a loved one who has COPD and is still struggling with long term smoking addiction. While quitting remains a personal and ongoing challenge for him, I am trying to do what I can to reduce exposure to smoke and pollutants inside …

Author: mony072
0 Votes
12 Answers
Regrets

I’m sorry to read how difficult this is for you. There are a lot of positive things I could say, but I’m not sure that would be very helpful for you right now. My suggestion is that you find someone to talk with, a good mental health therapist just to …

Author: Grace2024
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0 Votes
3 Answers
Has anyone participated in a clinical trial for COPD?

Curious and looking to discuss participation in clinical trials etc

Author: JD85
0 Votes
3 Answers
Supporting a Loved One Who Smokes with COPD

Hi everyone, I am new to this community and here to learn. Someone close to me has COPD but is still smoking due to long term addiction. I am trying to support him the best I can but it is hard when he struggles to quit. If anyone here has been in a …

Author: mony072
0 Votes
5 Answers
What is the new rule about lithium ion batteries and flying with oxygen?

There is a NEW FAA rule about flying with oxygen. Please check your battery and find out what the watt hour rating is. It has to fall below the 160 maximum allowed by FAA or your battery may be banned from the flight. The Inogen One G5 double (16 cell) …

0 Votes
7 Answers
Sorry for all my negative venting . Here’s something positive 💕

with all my Negative post here’s one good thing that has happened I’ve been caring for a sick puppy around the clock who wouldn’t eat and he’s made a remarkable turnaround and his strong and eager to eat, he kicks his little feet in happiness I’m …

Author: Grace2024
0 Votes
6 Answers
Terminology on CT Report

To me- that means there is some evidence of emphysema ( thinned areas of lung or holes in the lung) on imaging. Most people with this alone have fairly normal lung function- but at increased risk for developing COPD in the future ( particularly if they …

Author: JD85
0 Votes
6 Answers
Is anybody using either azithormycin or roflumilast for phlegm control ?

Hi Richard, while i am not a clinician you can check with your doctor if cutting the cheaper 500mcg pills of Rofluminast in half with a pill cutter would work for you. I don't know if they are time released or not. Pill cutters cost about $6 online or …

Author: Richard DJ
0 Votes
2 Answers
Using Acupuncture

Has anyone had Acupuncture and found it to help you with breathing or other things? The reason I ask is because I have been having a problem with irregular heartbeats and a friend asked me to try seeing a Acupunctureist. I have been twice now and the …

Author: JAH5001
0 Votes
5 Answers
Warning (phlegm gross picture ) scared still no help

hello everyone it’s me again lol. I’m still not doing well at all probably worse . I did start exercising and jogging and it was helping a lot but these last two days I’ve haven’t been able to move and only lay on my stomach to breathe . It got so bad I …

Author: Grace2024
0 Votes
6 Answers
inhaled steroids question

Hi evnewt1 - I agree with Debbie - Breztri is a maintenance medication, and actually contains 3 medications, one of which is a corticosteroid, and is to be used every day, and not "as needed", as far as I am aware. But I'm also just another patient …

Author: evnewt1
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.