0 Votes
5 Answers
Safe to take the train to 8,000 ft from sea level when have COPD on 2L/min continuous flow oxygen?

My brother and I are trying to figure out a safe way to move our Mom from Massachusetts to San Diego so that she can live near my brother and his family. She very much wants to live near by her son, daughter-in-law, and grandkids. She is in her early 70s …

Author: Lisa Snow
0 Votes
9 Answers
How do you stay healthy and active while living with COPD?

People with COPD are asking: how do you stay healthy and active while living with COPD? We asked members from our COPD community to share your own personal tips. Check out what they came up with! Join us in the conversation by sharing your own tips for …

0 Votes
6 Answers
Lips stay dry and chapped, what best?

I have been using beets bees lip balm (peppermint), but I continuously put it on. What is everyone using and find that helps ? Thanks G-Ann

Author: GAnne
0 Votes
2 Answers
Bad taste in mouth and numb tongue

Sorry for all of the questions folks, but I was curious if any of you experience a tingling/numb sensation on your tongue or in the mouth, as well as a sort of “dryness” to the inside of the mouth? I don’t know if it’s from mucus or something else. It’s …

Author: Pbob
0 Votes
4 Answers
Can COPD be cured/reversed?​

Does COPD have a cure? Can it be reversed? Can I do everything I used to do before my diagnosis (exercise/running/yoga)? I think ever since my diagnosis I’ve become very scared to do physical activities thinking I will get out of breath.

0 Votes
4 Answers
How is this drug?

All - I had an updated PFT after 5 years. The numbers are worse, to a degree which surprised the pulmonary doctor. The pulmonary doctor wants to try a new drug. I am now on nothing (see history below). After walking up 2 flights of stairs, I am a bit …

Author: netmouse
0 Votes
5 Answers
COPD and inhaler

Hello, just joined. I wondered if somebody could help me with a query. I was told I probably have COPD awhile ago and I’m awaiting a test to find out for certain, but in the meantime, my Dr has given me a daily use inhaler. He mentioned at the time that …

Author: Amitola
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0 Votes
4 Answers
Studies on weather impacting progression of lung disease

Has the prevalence of obstructive lung disease in dryer regions ever been studied? How do people with obstructive lung disease fair in dryer areas? I’m in Iowa and as much as I love my family here, i hate the humidity in the air. It even feels humid …

Author: Anonymous
0 Votes
2 Answers
Mucus-I have so much mucus and it seems to be getting worse

I have so much mucus and it seems to be getting worse. I was diagnosed back in 2021 with COPD stage 2. Then in 2022 the mucus started and when I started to question why, they gave me a new test which was still same but I have asthma. My breathing seems …

Author: Lynda W
0 Votes
3 Answers
Why am I Soooo tired after errands...when I finally sit down I feel as though I'm taking my last bre

Why am I Soooo tired after I do errands ...I feel as though I over exerted myself and I'm taking my last breathe here on earth.....why do I feel this way .do I need oxygen or something... ??? HELP

Author: Early
0 Votes
2 Answers
Personal question for ladies. I can’t stand anything that is binding. So ladies this would be a bra.

I have been wearing, a tank top, it’s hard to finds these with bras in them. So is there a certain one that you find comfortable or is there anything else that can help. Someone told me to clip the sides, not sure that will help. I can’t be the only one …

Author: GAnne
0 Votes
20 Answers
Is anyone else using Fisetin to reduce phlegm, and is it doing as great for you as it is for me?

WOW!!! I did not know Fisetin may help with phlem production. I have not seen any reference to that possible benefit previously. I began taking it as a part of my "stack" of daily supplements as it is claimed it helps clear "zombie" (dead or …

Author: Richard DJ
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0 Votes
2 Answers
Popcorn lung

I have not used ecigs at all in quite a few years, but wondering if past use for several years could have led to this. Idk, I was fine until flare up back in October and just not the same since. I am going to start treatment with Xolair for very high IgE …

0 Votes
11 Answers
Has anyone heard of the POC - O2 Concepts Oxlife Liberty?

I did a little research on it and what I read was contradictary. The manufacturer states it goes up to 1.5 LPM and battery lasts up to 4 hours (without specifying the liter flow it uses to measure) but Bridge to Care states it goes up to 2LPM and will …

Author: JeanO53
0 Votes
9 Answers
Is anybody using either azithormycin or roflumilast for phlegm control ?

Hi Richard, while i am not a clinician you can check with your doctor if cutting the cheaper 500mcg pills of Rofluminast in half with a pill cutter would work for you. I don't know if they are time released or not. Pill cutters cost about $6 online or …

Author: Richard DJ
0 Votes
5 Answers
Alternate meds

I have severe COPD and currently use Breztri twice a day and abuteral as required. I get frustrated when I can’t do some of the simplest tasks. I see all these ads and was wondering if any has tried any of these products and did they see any improvement? …

Author: Djrose
0 Votes
2 Answers
Check-in: Managing airway mucus: Commonly asked questions

Mucus. Phlegm. Sputum. Whatever you call it, it can be a common problem for people with COPD and other chronic lung conditions, such as bronchiectasis. Extra mucus forms in the airways, from the lungs to the throat, and it might come out as you cough. …

Author: Kalli Mago
0 Votes
8 Answers
Trelegy - Is there any type of spacer to use with the Trelegy inhaler?

My pulmonologist recently changed my monthly prescriptions from Advair and Symbicort to Trelegy. Is there any type of spacer to use with the Trelegy inhaler? I feel like remnants of the powder remain toward the back of my mouth and on my tongue. Second …

Author: Grannyto7
0 Votes
6 Answers
Check-in: How do you create a COPD-friendly home?

Home is where the heart is, but what about the lungs? COPD can change the way you relate to your environment, and your home is no exception. Is your home supporting your lung health? Here are a few simple ways you can make your home more COPD friendly. …

Author: Kalli Mago
0 Votes
7 Answers
treatment drugs

Is there anyone using dupixet as a treatment. On scale of 1-10 (10 is helping alot) how have you responded. How long have you had copd? Approx. age? I am 83

Author: don eck
0 Votes
11 Answers
Lignosus

Welcome Don.....Sorry I've never heard of Lignosus but someone here may have. I'm sure they'll post if they have. You'll get lots of help here. Click on the LEARN MORE tab at the top of the page--lots of info there

Author: DonCW
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0 Votes
2 Answers
Has anyone else experience a 4cm Bulla in right lung being caused by COPD/Emphysema?

I went to ER today for chest and back pain from my right lung. They said i have a 4cm Bulla in right lung being caused COPD/Emphysema.

Author: Johnson
0 Votes
2 Answers
Am I cleaning the oxygen concentrator cups with the tubes wrong?

I soak the oxygen concentrator cups with the tubes in vinegar and water when I’m done I rinse it out. I’ll wash them and rinse and I still have water spots after I hang them up to try. What am I doing wrong? How do you do it? Thank you G-Ann

Author: GAnne
0 Votes
3 Answers
Confused-I quit smoking six months prior to this test.

I am a 50-year-old white woman, 166 cm tall. Post-bronchodilator spirometry shows: FEV₁: 90% predicted FVC: 103% predicted FEV₁/FVC: 69.03%, with a GLI LLN of 0.693 (using my physician’s GLI reference values, not GOLD) I FEF 25–75: 64% predicted, …

0 Votes
3 Answers
alternate forms of treatment

I have read that herbal remedies are of great help with inflamation/scarring. Also that low level red light therapy is of great help. Is anyone using either of these? Which? How satisfied are you with it? thankyou for your help

Author: don eck
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.