0 Votes
2 Answers
Big Fat Reference Guide-Are there any plans to do a guide again?

Are there any plans to do a guide again?

Author: Anonymous
0 Votes
5 Answers
Another Travel Question-I wonder about travel outside the US

I wonder about travel outside the US when everything I read says a POC is not recommended for 24/7 use. At home my O2 company will connect me with a stationary concentrator at my destination. How to manage oxygen 24/7 in Europe? Thanks in advance to …

0 Votes
17 Answers
Ready for a new adventure?

This looks intriguing! //ed

Author: edpe77
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0 Votes
10 Answers
Oxygen Level-Is an averaged 94/95, as bad as it sounds.

I have an FEV1 of approximately 60% and whilst my doc will not test to confirm this because he fears exhaled air (Covid ETC), he has tested my oxygen levels which now stands at 95. My last set of readings averaged 97 above. I have felt foggy and …

Author: Eddie 7
0 Votes
4 Answers
Lymph node diagnosis

And many of us, without nodules, have had a rough spring and summer. The smoke from the fires out west traveled far. The humidity has been much higher than usual for where I live. The ozone has been high many days. Made for a tough summer!

Author: Lainey1
0 Votes
2 Answers
Mis-classification of COPD and the fifth Percentile, a question?

I have found a report that mentions incorrect classification of COPD patients by relying on the 70% and 80% ratios / value, it states to use the LLN instead. https://pubmed.ncbi.nlm.nih.gov/20522571/ https://spirxpert.ers-education.org/en/spirometry/. …

Author: J.News
0 Votes
5 Answers
Portable 02 options and mobility

Looking for opinions on battery operated portable concentrator vs a continuous flow portable tanks. Trying to decide if mom would benefit from using small tanks with rolling cart around house in daytime hours avoiding trip hazards with long tubing and …

Author: kmom
0 Votes
4 Answers
Does anyone with emphysema have daily post nasal drip?

I've had some post nasal drip off and on for years. I'm not on O2. Sometimes it is worse than other times and I'm not sure what makes it that way. Sorry not much help for you

Author: kmom
0 Votes
1 Answers
Spririva & Wilexa - Adverse Effects

Hello! I have been on an albuterol inhaler for asthma as well as alvesco. I was recently diagnosed COPD as well. My pulmonologist prescribed me Spiriva. It worked great - but I had migraine strength headaches from it, so discontinued after 2.5 weeks. …

Author: BeckyS
0 Votes
1 Answers
CT scan results question

Looks like a normal scan to me; https://myheart.net/articles/the-lad-artery/ They use terms like "no significant" to cover themselves should something be discovered later :)

Author: Deb S
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0 Votes
19 Answers
Newly diagnosed with emphysema at 24

whateverman......Don't Smoke--Did you see a Pulmonologist??-If not -see one. Again-Don't Smoke-nothing good will come from smoking!!! You're young-that's good--Keep boxing---and stuff!!

0 Votes
2 Answers
Problems posting

Just asked a question regarding recently received oxygen level tests. and it disappeared from the question page 2 seconds after posting. This is the second time this has happened. I"m completely hopeless with anything attached to a keyboard. Could some …

Author: Eddie 7
0 Votes
6 Answers
Lung Denervation Promising Procedure

I’ve seen here a post from Bill related to this promising procedure. There’s lots on the web about it including some papers. I did find a report from someone who had the procedure and was very positive. Other than Bills article I’m surprised to see it …

Author: J.News
0 Votes
7 Answers
ACOS, I'm confused

Hi,  I am new.   I have never smoked,  have a normal Fev,  and take Symbicort to try and control my Asthma.   I also was given Spiriva to see if it helped with my Asthma and found it worked very well.   The   …

Author: Jelley
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0 Votes
13 Answers
How long can I live with COPD I have it 2 years now

Welcome Geeza! Glad that you found us. When COPD is managed properly, (smoking cessation, taking all medications as prescribed, exercise/pulmonary rehabilitation, eating a healthy diet high in lean protein, and anti-oxidant foods, seeking medical care …

Author: Geeza
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0 Votes
2 Answers
Check in - Is there power in taking a break?

If you are a person living with COPD, or the caregiver of somebody diagnosed with COPD, you know that when you’re impacted by this disease, it’s not like you can punch a clock, walk out the door, and be away from COPD until you go back into work the next …

0 Votes
3 Answers
Helpful advice for severe COPD?

My dad is almost 85 and has been dealing with COPD for a lot of years. Last dr visit and spirometer testing landed him squarely in the severe category but that’s been a few years ago. I’m sure by now he must be in the very severe category. He has tried …

0 Votes
4 Answers
Sudden onset of low02 low heart rate

I care for my 84 mom with emphysema and afib. Began supp.o2at night and with excursion in jan this year. 2L used at night but now with more breathlessness,some wheezing. This has progressed in last few days with no ability to move about with out o2 …

Author: kmom
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0 Votes
2 Answers
Breathless at rest?

Anyone with mild COPD breathless at rest? It’s the one symptom that really resonates with me and causing me a lot of hardship lately. Pulmo has said in the past this shouldn’t happen till FEV1 goes below 50%. Heart checked out fine and no other …

Author: J.News
0 Votes
1 Answers
COPD, kidney failure, anemia & prednisone

My mom is 72 has copd, chronic kidney disease & was put on prednisone in May for some spots on her lungs that keep changing. Since she has been tapering off of the pred. she has been exhausted, swollen feet/legs, no appetite. Now we found out she is also …

Author: Dniko1978
0 Votes
3 Answers
​The impact of a diagnosis or not in the case of mild disease.

Hi J.News Thanks for sharing this with us. Exercise and cutting down on carbs is helpful to us all. Have you been tested for alpha-1 antitrypsin deficiency? Keep up the good work and the positive attitude!

Author: J.News
0 Votes
7 Answers
Mom doesn't see doc for month, help with results?

Not clear to me what is most important as there is a lot of info. My initial read is GOLD stage 4 due to FEV1 of 47% and use of oxygen. But the beyond that I get a bit lost as to what is most important. FEV1/FVC of 36% TLC 117% which seems ok? DLCO 38% …

Author: mr19
0 Votes
1 Answers
Bad taste in mouth and numb tongue

Sorry for all of the questions folks, but I was curious if any of you experience a tingling/numb sensation on your tongue or in the mouth, as well as a sort of “dryness” to the inside of the mouth? I don’t know if it’s from mucus or something else. It’s …

Author: Pbob
0 Votes
5 Answers
Humidifier-condensation in hose

I added a humidifier to my home o2 generator a few days ago and now condensation is building up in the hose. That is no great surprise but is there anything special I should do about it. Possibly run the unit without the humidifier for a few hours every …

Author: rickl
0 Votes
1 Answers
Medicare renewal question

Renewed with Inogen (5 yr renewal on medicare), they sent me a new portable, but didn't replace my home unit with "new" concentrator, is that normal? Said don't replace that one unless I have problems. The portable is newer than last one, because this …

Author: bjn
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.