Hi Jane... So much good information here. Thank You!! When I was first diagnosed I knew next to nothing about how my lungs worked and had never heard of COPD. The first thing I did after diagnosis was to read everything I could get my hands on, …

I’d be interested to know how many copders - especially those that have never smoked or been around it- have low immunoglobulins. mine are low. But my doctors dont think this lung disease i suddenly developed has anything to do with my immunodeficiency. …

Has anyone had a robotic bronchoscopy? Please tell me about your experience with this procedure.

Hello Foundation friends! Did you know that the COPDF has a variety of helpful, accurate information on inhalers and nebulizers? I’m going to highlight just a few of these here. The Foundation maintains an ever-evolving library of inhaler and nebulizer …

I use my Inogen G5 off and on during the day, depending on what I'm doing; usually when I'm being more active and I want to avoid tripping or the tubing getting caught on "stuff".

Is is common for people with COPD (especially never smokers) to try biologics even if they don’t have high eosinophils or IGE? There’s a new Biologic out called Tezspire and it doesn’t target eosinophils (not sure what or how it works really). But i wish …

“This study provides us with the blueprint to identify cell-specific therapies in a condition that currently has no real effective therapies.” Lets hope. Thanks for posting.

Is it normal to have oxygen leak from the cannula? When I put on a new cannula, I cup my hands around my nose to see if I can hear the oxygen; if I can, I won't use it because I believe I'm not getting all the oxygen I should. Is this correct or is it …

A few weeks ago, we were prompted by Jane M. Martin to set goals for the new year. I think it was Kristen Willard who suggested we should check-in and see how we are doing staying on track with what we need to do to meet those goals. I thought that was a …

I attended a great webinar about the future treatments of COPD. As a biology major, one of the fields that I found most interesting was genetics. Genetics will likely play a huge roll in the treatment of COPD much as it is playing a big roll in the …

What is the biggest challenge that you face as a COPD patient or a care giver? and what according to you would be the ideal cure/treatment option? Thank you.

Hi! My father was just diagnosed with COPD. His GP gave him some medications to try (Spiriva Respimat). As of now his symptoms are pretty mild (he says there are no problems, but I definitely hear wheezing when he does anything to get his heart going), …

Kristen, I remember the Boggle games you had a couple of years ago. Those were fun too!

Trelegy is to Breztri Breo is to Symbicort And Anoro is to what? What’s the Breztri, Symbicort version of Anoro? I'm asking bec i think the bronchodilator and anticholerginic in the Breztri and Symbicort help me more than those in the Trelegy and Breo. …

Hi Juje, What kind of tape are you using at night? There is a product called Tegaderm that might be helpful to you. It looks a bit like saran wrap and has adhesive on one side. We use it in the hospital for minor wounds, covering IV sites, and for …

1. How often does having chronic bronchitis result in needing supplemental oxygen? 2. How often does emphysema occur in someone who has chronic bronchitis (and doesnt smoke or quit smoking before emphysema started). 3. Why do people with chronic …

I just had the condenser coil replaced in my home AC. On the way out the repairman mentioned the Reme Halo (air purification) and UV light (to prevent mold from growing on the coil). Does anyone out there have real world experience with either? They …

I also been on a non invasive vent and its been since last fall I do believe its very hard to get used to.I do not have sleep apnea I was given this due to end stage fev 1. You breathe with it. Not sure its helping me any either. I have full face mask as …

Welcome, Tom. Every state has a State Health Insurance Assistance Program with trained volunteers who can help you to sort through all the various options. Some states call it SHIP and in others it's SHINE. Personally, I chose an Advantage Plan and …

My father(age 63)has severe COPD.He was last admitted to hospital in 2019 diagnosed with pneumonia and was under ventilation for 14 days.The doctors said he had more than 95% lung damage. For the past few days he had a cough for which I gave him Ceftum …

2D...Platinum 3A...Break Custom 6B...Once Upon A Time That might be a Charlie Brown Christmas Tree at 5C..!!!!!!!! Jean--You should host Jeopardy-or one of those Game Shows!!!!!

I am considering investing in a TAV to help with a boost of oxygen when I need to go up stairs, walk a long hallway, etc. Has anyone used one? Have an opinion? Thanks, Juli

How is everyone-it’s been sometime and think I’m getting a handle on this BUT who knows and no doctor has given me a diagnosis. 44/Male 5’8 JANUARY 11, 2021 3PM PVC 4.57 97% FEV 1 2.96 79% **POST with inhaler **PVC 4.41 94% FEV 3.22 86% DLCO 115% …

Thanks to all who are entertaining my questions. I figure it’s good to ask anyway for other people to search. So- when people say “scarring”. I feel like that term is used in so many kinds of lung diseases. But these lung diseases like fibrosis and …

Hi DannyB - I really wish it was that simple. I'm speaking as a former smoker, the addiction to smoking cigarettes is not mostly psychological. There is also a physical addiction to the substances in cigarettes. I finally quit smoking 18 years ago …