0 Votes
4 Answers
Is it possible for a lung Dr to miss diagnosed some one with COPD and it just be long COVID?

Hello everyone, I was diagnosed 5 years ago with COVID and COPD on the same day, I believe I was misdiagnosed, and no doctors that I've had in the last 5 years that's taken my concerns searsely have I been allowed to keep as a dr past 2 weeks, and I've …

Author: SaraAnn
0 Votes
14 Answers
Ohtuvayre ??? Any feedback would be helpful!

My doc ordered a new vile for my nebulizer called Ohtuvayre. New drug so not too much info on it. My doc told me to take it WITH all my other viles!. I already take Yupelri & Albuterol & Budesonide &Formoterol in one day in my nebulizer called Ohtuvayre. …

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0 Votes
3 Answers
Hypercapnia excludes supplemental oxygen. Has anyone heard of thi

Hypercapnea describes high levels of carbon dioxide in your blood. This is a result of hypoventilation ( carbon dioxide that your body generates is typically removed from the lungs in the process called "ventilation" ). In "normal" people, elevated …

Author: MelPat
0 Votes
1 Answers
Emphysemia

Is Emphysemia STAGE 4 of COPD, Or are they very different illnesses?

Author: MelPat
0 Votes
4 Answers
Do you have Helpful Books about living with COPD

One of our board members, Dr. MeiLan Han from the University of Michigan, has written a book "Breathing Lessons: A doctors Guide to Lung Health " which we reviewed in our book club several months ago. She also recorded the audio for the audio version of …

Author: Who Me ?
0 Votes
9 Answers
Sunrise or Sunset?

Do you have a preference?

Author: JeanO53
0 Votes
3 Answers
Has anyone used Wixela for COPD and if so, was it useful in relieving any symptoms?

Has anyone used Wixela for COPD and if so, was it useful in relieving any symptoms?

Author: Gary R.
0 Votes
6 Answers
Spirometry interpretation

Looked this up on ChatGPT. Apparently the graphs indicate moderate to severe obstructive lung disease but the numbers don't bear that out. Quite confused, so was the nurse to be honest.Bit scared of ending up on supplemental O2 now. Especially with the …

0 Votes
3 Answers
How safe is Famotidine 40 mg ?

Hi Ben - Welcome to 360Social. I'm not a clinician, but I think you should let your doctor know that when you stopped taking the prescribed PPI, your acid stomach came back and let them know what you are doing to get rid of it, and ask their advice about …

0 Votes
2 Answers
New pft

this is my newest pft from this past Weds .....hoping someone can help read it . Thank you

Author: Anonymous
0 Votes
5 Answers
Pft

This means that your values were low ( less than 80% of normal), but your FEV1/FVC was more than 70% ( no obstruction). This is a sign of "small lungs" and can be seen in a number of abnormalities ( obesity, diabetes, heart failure), but also can be seen …

Author: Anonymous
0 Votes
23 Answers
Ohtuvayre from Verona Pharm

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Author: Sedona7
0 Votes
2 Answers
Zephyr valves

Has anyone had a zephyr valve put in? If so how do you feel? How long was recovery from the surgery?

Author: LittleBird
0 Votes
2 Answers
Lung Volume Reduction Valves - not the removal surgery.

Looking for another person that has had the valves implanted and would like to share their experience. I am in the process of tests for the valves and just curious as to others experiences that have done this procedure.

Author: Colorowdy
0 Votes
5 Answers
Has anyone had the spiration valves put in? Which one is better zephyr or spiration?

Be sure you go to a specialist who has successfully done many of the valve placements. Some have a lot more experience than others. My lung doc who does a lot of them says that choosing the correct patients is the most important thing. You should be …

0 Votes
6 Answers
Leg pain

I'm getting a lot of cramping lately. Mostly in my thighs and calves. I'm also on beta blockers so that may have some impact. How do folk deal with this pain? It's almost crippling me. I'm struggling to walk at times.

0 Votes
5 Answers
Insights and advice please

I am not a doctor either, but it sounds to me like you have had enough exacerbations to warrant triple therapy such as Trelegy. While such medications do have side effects, it needs to be balanced against the benefits. For me, I use Breztri, also a …

Author: SheriP
0 Votes
2 Answers
Labeled "panic disorder".

So I had a pulmonologist turn up and tell me I don't have COPD, just bad asthma. Told him all about the injury that caused what was obviously sepsis damaging my lungs (remote regional health center...). Now I had some bad flares post sepsis, never had …

0 Votes
9 Answers
What is the best protein powder for someone with COPD that needs to gain weight?

What is the best protein powder for COPD patients that need to gain weight? I cannot eat much at a time and need to add protein and calories to my diet.

Author: petsforme
0 Votes
3 Answers
End stage prognosis

My husband has end stage copd. I know we don't have a crystal ball but what are your experiences with time frame prognosis.

Author: Kry
0 Votes
2 Answers
Anyone have experience with atelectasis?

I have been having mild intermittent shortness of breath for about 10 days with 02 sat sometimes as low as 92, but then normal. Yesterday I had a CT of my lungs which showed mild atelectatisis. I am not sick nor have I been. I've taken NAC 500 mg daily …

Author: RN1977
0 Votes
7 Answers
Mullein Tea for COPD

Hi. Trying to recover from bad flare and very high CO2 (needed BiPAP in hospital). COPD for many years. Has anyone had favorable results from Mullein tea?

0 Votes
4 Answers
Any suggestions for High Ozone days?

I notice we are having more frequent ozone days. I notice it when the level is above 40 (which is supposedly safe in the green level). I use airnow.gov to check levels. For background: I use oxygen at 2L 24/7. My FEV is probably around 20. I was kicked …

Author: muddleaged
0 Votes
3 Answers
Moving Air

I keep being told that I am not moving any air but not getting any real answers about HOW not get air moving again. I am hoping that someone here can chime in and help with that.... Thank you so very much in advance and breathe easy everyone!

Author: tlane
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0 Votes
6 Answers
Devices to help with FEV1 and FVC, and breathlessness?

Hi Cinnamon...I think any of the devices mentioned can help--Any way of exercising your lungs is a good thing. Will they improve FEV-??? -maybe-- maybe not---but they won't hurt. Good luck

Author: Cinnamon
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.