0 Votes
1 Answers
Has anyone heard of a new vaccine called Arexvy?

Hi, all: My new Pulmonologist recommended that I get vaccinated right away for a new virus that is not good for the respiratory challenged. I am putting on my jogging tennis shoes now, lol!

Author: Mellie
0 Votes
10 Answers
Anyone using Trelegy and have a side effect related to hearing?

Day 1 , stopped my Trelegy inhaler . Ringing, and swooshing sound has stopped incredibly. I woke up this morning day 2 , and this bad ringing in ears , has lessened quite a bit. I am curious if I have finally resolved this Trelegy inhaler mystery . I …

Author: klr
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0 Votes
5 Answers
Symbicort Cost

Your plan dropped the drug, and you are paying full retail price. In mid-year, you can appeal via your doctor. Info is at Medicare.gov I checked a drug plan under traditional Medicare Part D. It has Symbicort under Tier 3 with a 42 co-pay (422 retail …

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new COVID-19 info

In the news. "The amount of virus identified in wastewater around the country and the number of weekly prescriptions for COVID treatment Paxlovid have all risen significantly over the past month (since June's low), albeit from low levels." This is how …

Author: netmouse
0 Votes
6 Answers
Stiolto Respimat-side effects? difficult to use? breathing better?

I would appreciate feedback from anyone who is using Stiolto Respimat inhaler. Any side effects from it? Is it difficult to use? Is your breathing better? My doc wants me off all inhalers that contain a steroid since I keep getting thrush regardless how …

Author: Terry S.
0 Votes
6 Answers
Go to ER?

I would like an idea of how bad i should be before i go to the ER. I have my first appointment with a pulmonologist Oct. 6. My PCP diagnosed me by my symptoms and chest Xrays. Tonight i am somewhat SOB with worse chest pressure, but my SATs are not low …

Author: Gmajane
0 Votes
6 Answers
covid shots

Any input on the covid shots? I have had two and a booster but now I am thinking I am done with getting them. The reason i got the shots is because i had really bad covid pneumonia in 2020. Anyways, to{ong story , my sister who is a little older than I …

Author: WomaninNH
0 Votes
1 Answers
Does a higher purity of oxygen raise your oxygen percentage levels?

I have been noticing something about the percentage of oxygen readings using different oximeters and various sources of oxygen. Which leads me to ask this question. Does a higher purity of oxygen raise your oxygen percentage levels? The reason I ask is …

Author: JAH5001
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3 Answers
fev1-Any input on this?

So I am not sure if this is going to be the second time that i am posting this because I really can't see my question when I look. I went to see my pulmonologist the other day and he told me based on my fev1 that he is not worried about me going into …

Author: WomaninNH
0 Votes
2 Answers
Test results-I’m confused

Can anyone tell me how I had two different ct scans one high dose radiation w/contrast and one low dose radiation w/o contrast both showed severe COPD. Then my pft 2 months later showed mild COPD. I’m confused

Author: Paul Lulu
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2 Answers
is there anything i can do

my fiancé has recently went downhill fast made progress and fallen again, here's the story she has pcos and recently was hospitalized for having bilateral nomonia, bronchitis and tonsilitis which sent her into raspatory failure she has been doing better …

Author: austin14
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2 Answers
Possible Misinterpreted pft results

Hi all! So a few of you may remember I posted my pft results for help with interpretation the other day. Well since then I’ve been referred to a pulmonologist but also for some odd reason I decided to take a little bit of a closer look at them yesterday …

Author: Ames0523
0 Votes
7 Answers
Sent to hospice, but now mostly recovered. Where do we go from here?!?

Hello Kaitka - I'm so very sorry that your mother has been so very ill, but glad that she has been improving. Even if she does not know what insurance she has, she probably has a card in her purse? Or you could let her husband know that you must have …

Author: Kaitka
0 Votes
2 Answers
Two issues

Does anyone else have CHF along with COPD? I’m worried about meds that interfere with each other. I asked my PCP which one I should be more concerned about and she just kinda giggled. Any advice or help would be appreciated. This is kind of driving me …

Author: Paul Lulu
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0 Votes
5 Answers
Could it be copd?

I had bronchiectasi since i was a kid and as i turned 18 years old my Fev1 was at 3,6 Liter and my Fvc was at 4,7 Liter. I felt grate and never had any problems beyond high amount of mucus, but no trouble clearing it at all. Later on i started to smoke, …

Author: Alex30
0 Votes
8 Answers
Medicare pay for 2nd concentrator?

Will Medicare pay for a second (additional) oxygen concentrator? I want to know the general answer prior to approaching my DME supplier. I travel often overnight, and have tried using my portable Inogen G5 and also conserver regulators on a “D” cylinder. …

Author: RDK
0 Votes
3 Answers
Check-In: Staying Healthy and Enjoying Our Hobbies

Since the COVID-19 pandemic, we’ve all been learning new ways of staying healthy and avoiding illness. You may be familiar with the common ways to avoid getting sick; but sometimes it seems like these tips all include things we should NOT do. “Don’t go …

0 Votes
3 Answers
what is the best Nutrition drink for COPD patients

I am trying to maintain my weight and have a low appetite, What's is the best nutrition drink for COPD I have been using ensure but I am told dairy products are not good for a COPD patient.

Author: hairy guy
0 Votes
4 Answers
How to Fill Oxygen Tank Size E with Homefill

Delta Oxygen Transfill Equipment This company makes an attachment that will connect an E cylinder to the Invacare Homefill system. Pricey, but worth the cost IMO.

Author: LittleMac
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5 Answers
What has caused changes in my phlegm problem?

Dr. Mannino may be right. I have been taking the Fisetin for quite a while and it has helped a lot, But only in the last couple of months have I added the yogurt (pro-biotic) which I was told I by my doctor that I only need to take every week or so, not …

Author: Richard DJ
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3 Answers
Check-in: “HIT OR MISS”: Does the Flu and Pneumonia Shot Benefit You?

Whether it is fatigue, fear, disbelief, or otherwise, vaccines have been making headlines for the last several years. Many people wonder about the safety and effectiveness of vaccines. Do they help you? Can they hurt you? Is it even worth your time? I am …

0 Votes
3 Answers
cannulas and tanks loose o2?

You need to shut off the valve on the tank if you are not going to use it for an extended time.

Author: starbird
0 Votes
9 Answers
Difficulty breathing through my nose

not sure where it started - on Incruse and ventolin inhaler, was also on Advair until a couple of days ago, went off advair because I found it made me feel nervous. But have noticed I’m having trouble breathing through my nose it feels stuffed up - have …

0 Votes
12 Answers
Low FeV1

Hi I’ve been diagnosed with emphysema at the age of 52, my fev1 level is 24% rising to 34% with fostair and spiriva respimat , I have 2 children , one 22 and the other 11 , I am worried I’m going to die and they’ll be without a mum , I do a brisk walk of …

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0 Votes
6 Answers
Late stage COPD advice needed

My father is in his late 70’s and has severe/late stage COPD. At his last doctor appointment, palliative care was mentioned and will be a topic of conversation at his next appointment on August 23. I need to learn more about palliative care but from what …

Author: Letharee
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.