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does anyone know how the new drug Dupixent might help us
FDA decision on Dupixent for COPD is expected by end of June. I read the article on COPD news Today but really did not get much from it. Can someone informed help to explain what this drug might mean to us.
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8
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A Thank You
My husband recently passed away. As his caregiver for many years, I wanted to thank everyone in the community. Once he found the COPD site, he became an active participate. He felt a purpose, sharing his experiences with others, hoping to be a part of …
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Do you ever regain 'proper' breathing after quitting smoking; and have COPD?
I'm so discouraged, frustrated and guess just mad that my breathing has seemed to get worse the longer I'm not smoking! I had such a COPD 'flair-up' on January 4th - I haven't had a cigarette since. Put on oxygen January 5th, which with the help of …
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Is wearing oxygen all the time keeping me from not be able to function at 93
I have similar symptoms when I hit 92. I was told by one of the "expert" docs at an ATS patient roundtable that we can't feel when our oxygen drops that "high". He suggested that I may be retaining CO2 with exertion and might be feeling that. I am not …
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Check-In: Rare Disease Day is February 29th!
A disease is rare when it only affects a small portion of the population. Even though each disease may be rare on its own, living with a rare disease is, in fact, quite common. About 1 in 10 Americans are affected by a rare disease. Unfortunately, most …
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4
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now to regulate SP02 Oxygen at night
This has been very helpful! Was diagnosed with stage 2 COPD in July 2023 and what a learning curve. I’m most concerned about home oxygen and my SP02 levels. I was told to use oxygen at night and as needed during the day. My question is if the oxygen is …
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7
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Blood oximeter
Hello. I am looking for a wrist blood oximeter that can be used 24x7. Even during exercise and sleep. Integrate with smart phones. Also, does not have a finger sensor (can’t exercise or use computer with this attached). Spoke with my pulmonologist and …
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First lot of antibiotics and worried
as you can see from previous posts I’m down as early/mild copd. Went to see my gp today about feeling unwell with a fast heart rate the last few days to come away with antibiotics for as he says a start of an infection. only symptoms I have is apple …
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Use of Metoprolol
" Metoprolol is a beta-blocker that affects the heart and circulation (blood flow through arteries and veins). Metoprolol is used to treat angina (chest pain) and hypertension ( high blood pressure ). Metoprolol is also used to lower your risk of death …
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Check-In: Definitely Not Groundhog Day!
Happy Valentine’s Day, everyone! If you caught my reel at the beginning of the month, you may remember that I teased some cool projects coming up. We definitely try to not repeat ourselves when it comes to resources. Either way, I think you are going to …
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Canadian Rx. Anoro elipta
I am on Anoro elipta 62.5 mcg/25 mcg. My insurance is no longer covering the cost in 2024. The cost is prohibitive. Has anyone had any luck useing a Canadian Rx? Please any information would be helpful. Thanks
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28M and advice on situation
Hi David. First, glad you had doctor test you for the Alpha-1 Antitrypsin gene deficiency gene, as COPD at your age is a bit out of the norm. As for the symptoms of shortness of breath and mucus, are you staying physically active? Making sure you are …
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Can anyone recommend a "safe" dry shampoo?
Thanks!
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9
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Help me understand please scared x
I’m a 38 year old female 167cm tall and weigh 56 kilos,that went to the drs with breathlessness and shortness of breath while just pottering around and nothing else. Went for a spirometer and never done the inhaler asthma test but straight to the breath …
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Pulmonologist question UK BASED
In the UK you want a Respiratory consultant who is a doc and not a nurse. In the US, you want a Pulmonologist. I also know some PhD level nurse practioners I'd see any day instead of a pulmonologist. For one thing they can spend more time with you and …
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6
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Mild Emphasema and Bronkieastatis - new diagnosis
Pickledonion We are so glad that you found us. This community is amazing and you are in the right place. I am sure that the community members will hop on and connect with you to provide support. I am so sorry that you were not able to have a full …
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7
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New COPD Med
It's one of two three-in-one meds available; the other is Trelegy. They work well for some people; for others, not so much. It's been around for several years, but it is one of the newest combinations we've seen.
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16
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Not asthma but very early stages of copd
Hi Laura-Jayne... I'm also UK based... Here's some advice regarding private referrals in the UK and my experience... I'm 53 and have Mild COPD / emphysema and carry 1x faulty Alpha 1 gene. I gave up smoking on the day I was diagnosed and (fingers …
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5
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Bad reaction to cannula.
My oxygen supplier claims that they can no longer get the cannulas that I have been using. What they have given me now, is a bunch of cannulas that cause painful redness where it touches my neck and behind my ears. My eyes have also been burning. Can …
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Is oxygen level of 94 safe for someone with emphysema?
Is oxygen saturation level of 94 safe for someone with emphysema? We used the oximeter to measure the oxygen level. Just recently found out my husband 48 has emphysema. Ct scan detected some bullous changes compatible with some emphysematous changes
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Issued propranolol for anxiety and worried
Kandy's right on. You need to talk with your doc about halving the meds she prescribed. As for the quit, you might find some of the on-line and telephone support lines helpful for that little bit of encouragment to get you to the finish line. It is hard, …
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2
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Anoro ellipta
It can take a few or more weeks to see if your maintenance inhaler is working for you. Things may settle down or you may need a different inhaler. Keep up trying to quit smoking--that is most important -- If you continue to smoke your COPD will get worse …
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4
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New inhaler-going to try Spiriva Respimat
Hi all my last visit to pulmonologist I was telling her that heat and humidity was really giving me trouble. Felt like current inhaler (Incruse Ellipta not doing anything for me) So now going to try Spiriva Respimat anyone have any experience with these …
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4
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Emphysema, pain, coping
Hi all Hope you are all doing well. I have mild/moderate emphysema and, recently, I have also been diagnosed with PAD. I have A LOT of pain, So i have to ask, what kind of pain medication would be considered ok to use, knowing that it will affect your …
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5
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Spiriva side effects
i currently use Spiriva (i get the version from Alldaychemist) and Symbicort (also from Alldaychemist) i constanly blow nose.. does anyone else have this as a side effect?
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