0 Votes
4 Answers
Positions for sleep and/or rest

What position do you use for sleep/rest positioning?  Any comments on this subject will be really appreciated.  I Have some difficulty finding a position that doesn't increase the dyspnea.

Author: Anonymous
0 Votes
1 Answers
Has anyone had an unpleasant experience while having a CT-Scan with contrast?

I have had some very unnerving experiences with CT-Scans with contrast, and the explanations given to me were cause for concern. I am aware that warmth throughout the body during the test is considered normal, however, on two occasions I felt as though …

Author: Cas
0 Votes
10 Answers
how to get over initial shock

Hi all i have just been diagnosed with copd and am sort of in shock,very depressed,cry a lot. How did others overcome the initial part of this disease and carry on as normal?

Author: leeanne
0 Votes
4 Answers
need thoughts on diadnosis

Hi Heather30, I was diagnosed with stage IV, but never had coughing or bruised ribs prior to being diagnosed. I really don't understand it all, but am still trying to learn more about it.  However, I do know 3 people who also have it but have never …

Author: heather30
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0 Votes
2 Answers
Who is eligible to enroll in the Patient Powered Research Network?

There has been much mention lately about the PPRN. Who can sign up for this and be a part of the database?

0 Votes
5 Answers
Do any of you have a medical alert device and if you do what kind and why did you select this one?

I do live alone now and because of previous dizziness, I do have an  alert through ADT. I wear it around my neck and it is connected to my phone line. I have only used it once, but I feel secure having it. I also have my home security throug ADT. I …

0 Votes
6 Answers
Overcoming a difficult Task: How did you do it?

Seems the winters you get lazy anyway I do even tho I go to pulmonary rehab. As soon as the weather gets nice I am out and walking.. My daughters go way to far so I have to do my own walking. By doing this I can get my two wheeled bike out and ride with …

Author: Janina K
0 Votes
6 Answers
It's officially spring! Does anyone have any neat tricks to share to make gardening easier?

Gardening is a great way to get in some exercise, fresh air and soak up some sun but it can be a tough hobby physically.  Who can share tips that will make it easier for everyone who has a green thumb (unlike my brown thumb) to keep enjoying a …

0 Votes
6 Answers
Hi All

Im doing a research dissertation on COPD as part of my college course and im doing questionnaires as part of my research and all data collected will form an important part of my research dissertation. All participants are anonymous if you wish to …

0 Votes
6 Answers
What is your favorite part of COPD360social?

I look at this community and there is so much love and sincerity. I love that everyone here truly cares and connects with others on here! Thank you all for being so amazing!

Author: AleenaG
0 Votes
3 Answers
using nasal cannula at night

Ben's right - and there is a "water trap" that goes between the concentrator tubing and your cannula that should help.  Just remember to check it frequently, or the trap may overflow and you'll end up with a nose-full of water (been there, done that). …

Author: dustybill
0 Votes
6 Answers
Join us in a focus group for people with multiple chronic conditions

This focus group is very important. They still need some people to participate. Also do you happen to have other chronic conditions like arthritis, high blood pressure, heart disease, glaucoma? Its not just for COPD If you meet the criteria , I hope you …

0 Votes
2 Answers
What kind of Psycho-Social Assessment is best for COPD readmission patients?

I watched the Webinar last Wednesday Innovative Models of Care to Prevent Avoidable COPD Readmissions and they recommended a psycho-social assessment within 24 hours of admission. I was wandering if they used a particular assessment or form for it?

Author: Renee Grim
0 Votes
5 Answers
what is envolved with 6 minute walk are you aloud to wear oxygen

i have to take this test

Author: urbansrs
0 Votes
3 Answers
Are any of you with COPD taking a beta blocker?

The answer seems to be both "yes" and "no", Kandy: http://www.ccjm.org/index.php?id=107937&tx_ttnews[... PS  My pulmonologist knows I'm on Metoprolol and expressed no concern at all.

Author: wood768122
0 Votes
5 Answers
Has anyone been evaluated with an oxygen dose recorder?

Hi Joyr, Yes, I have - in 2011 I attended the Long Term Oxygen Therapy Conference (LTOT) in Orlando and was part of a demonstration of the Oxygen Dose Recorder.  The following is excerpted from my report to EFFORTS re the Conference: …

Author: Joyr
0 Votes
4 Answers
Passing of a long time COPD Advocate Maggie Borger

I just got word that Maggie Borger died peacefully yesterday afternoon at 5:18 in her own bed surrounded by her family. Maggie was one of the original COPD Information Line volunteers, a member of Coaches Corner and was on the board of Efforts and a …

0 Votes
3 Answers
Prednisone

I know the side effects of prednisone. I would like to know if any of you have been on long term Prednisone and experienced side effects. If so what were they and how long had you been on it when the side effect  started?

Author: wood768122
0 Votes
3 Answers
BiPap questions

Has anyone needed to be on a BiPap while in the hospital? Is it usually a temporary thing or do some people use one at home while sleeping?  Just trying to understand more about it from people who have used one. Thanks!

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0 Votes
4 Answers
Anyone traveled by car, suv or RV with one of the smaller liquid oxygen reservoirs so that you could

I don't know if this is even possible as the tanks weigh almost 100 lbs when filled. Am just curious if anyone has done it and if things worked out ok?

Author: Ken W
0 Votes
10 Answers
Kind of a game question: Whats he talking about?

So...no one guessed it which means the brand new Lexus is still up for grabs? We will need another riddle competition! :)

Author: hack
0 Votes
4 Answers
Lawn mowing and fertilizing while wearing oxygen

Hi everyone, I had asked my PULMINOLOGIST about taking my home concentrator outside to the porch, with my 75 ft. Hose so I can cut out last year's debris and remove the 100's of dandelions from my flower gardens. She said that would be ok. I'm in …

0 Votes
7 Answers
What are the main concerns for COPD patients !

Hi All, I'm coming over to run the New York marathon this year as part of my yearly awareness campaign.Being from Australia I'm not fully aware of all the issues in the USA relating to COPD, other than the fact more funding for research will never …

0 Votes
8 Answers
right or wrong

I would like to see some response from the RTs on this. I don't like the use of the terms always or never such as used above. I understand the challenges of CO2 retention and hypoxia but at the same time there is a difference between being static or …

Author: urbansrs
0 Votes
4 Answers
How do you get rid of a smoky smell in books?

A very close friend and her husband are smokers - heavy smokers.  We exchange books frequently and hers always reek of smoke.  I spray them with Febreeze and leave them on the porch to air out for a few days , but I'm wondering if anyone …

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