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4 Answers
Can someone please explain?

I have mild emphysema, just diagnosed at age 53, I'm very active, running regularly X3 times a week, no cough or breathing issues just a small crackling sound in left lung when lying down at night. I stopped smoking 12 years ago and my doctor assures me …

Author: Anonymous
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1 Answers
Quit smoking after diagnosis

I was diagnosed this July with trace of Paraseptal emphysema at the tops of both lungs PFT was normal. FEV1 96%. FEV1/FVC .75. DLCO 73 I’m 57. My question is now that I have been off cigarettes I’ve been told I’m not doing any further damage in the ways …

0 Votes
6 Answers
what brand of poc is best?

what brand of poc is best, iam looking at inogen 4 and 5

Author: Ruffshod
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0 Votes
1 Answers
COPD awareness month is just around the corner! Are you ready?

Every November, people from around the world work together to create awareness surrounding COPD, alpha-1 antitrypsin deficiency, and chronic lung disease. We share information and education about the symptoms, diagnosis, and treatment of these conditions …

0 Votes
2 Answers
Can anyone recommend a reputable, trustworthy medical supply company for me to purchase a POC?

I would like to talk with someone who knows about the needs of a person with COPD and the person doesn't "hard sell" their POC's. I would like to purchase one that Medicare doesn't pay for that has higher settings. My current pulmonologist has not been …

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0 Votes
5 Answers
Check in: Help Protect Yourself Against RSV, Shingles, and Pertussis by Getting Your Vaccine.

Earlier this month my colleague and friend Christina, wrote an interesting check-in about the flu and pneumonia vaccines . Did you know that there are other vaccinations that are important for adults, especially those with chronic lung disease? RSV …

0 Votes
6 Answers
Should I tell my family

I've recently been diagnosed with very mild COPD, very active and fit, no cough or breathing issues. Should I tell my wife and kids, I feel like they don't need this and all the worry that goes with it. If I can keep fit and keep this mild do they need …

Author: Anonymous
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5 Answers
incipient paraseptal emphysema

Hello, I'm Slovak, so I apologize for my English, google translator helped me. I am 28 years old and a month ago I was diagnosed with paramediastinal paraseptal emphysema on HRCT. I also went to a pulmonologist and she also did a spirometry fev1 100% …

Author: Jane1496
0 Votes
4 Answers
SOME REASSURANCE PLEASE.!!!

I've recently been diagnosed with COPD, I'm 53yrs old, stopped smoking 12 years ago. I had a crackle in my lung and got a CT scan which showed mild COPD. I then got a spirometry test which the nurse told me, on it's own it would have been "pre" or "at …

Author: STEVIE 53
0 Votes
16 Answers
Is it normal to be informed you've got COPD by letter

I, for one, am glad the medical system is o longer treating us like mushrooms (kept in the dark and fed sh--). With "MyChart" I get test results before the doctor even sees them. Sometimes I choose to panic. Sometimes I choose to wait and see what the …

Author: TrishT
0 Votes
9 Answers
If I need 4L/min on a flight but can only get 2L/min from approved devices, what are the risks?

To add to Bill's excellent explanation of the settings on the Inogen G5 - here's a link to the Running On Air website's complete list of all current POC's and the actual amount of oxygen each puts out at their settings. https://runningonair.net/pocs …

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Ohtuvayre (ensifentrine)

We have been getting questions regarding the new medication Ohtuvayre. While the COPD Foundation does not endorse any medications we feel it benefits the community to know where to find factual information they need regarding their health choices. Please …

0 Votes
1 Answers
Does Ensifentrine works on the emphysema component of COPD?

Hi. I am new to the group and I have severe COPD and was diagnosed approximately 10 years ago. Lately, nothing seems to help my breathing on exertion. I am waiting for my doctor to get approval for Ensifentrine, hoping that this will help. I am having a …

Author: Jpkp
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2 Answers
Can you take Atrovent and Symbicort at the same time

Can you take these drugs together

Author: Lee1100
0 Votes
2 Answers
Anyone here been diagnosed with copd and raynauds

auto immune symptoms fatigue muscle weakness joint inflamation swollen lymph nodes

Author: Franko
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3 Answers
COPD and Raynaud’s?

Just curious, anybody else out there have both COPD and Raynaud’s? Wondering if there’s a link. My Raynaud’s appeared around the same time as my COPD, and its getting colder now so it’s more on my mind. :)

0 Votes
11 Answers
My oximeter says 96% BUT...

I was putting up some Christmas lights and started to get SOB. I sat down and took a reading on my oximeter. It said my SpO2 was 96% but I was gasping for air. Until I can see my pulmonologist on this does anyone know what could be happening to me or …

Author: hack
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anybody out there using zephyr valves?

I'm scheduled to get a few installed and would like to hear from someone who has experienced such.

Author: jtg1957
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6 Answers
Understanding

CT scan showed Mild emphysema and all else was ok. I’m a confused that my dr said it should not progress however I reading it will. What am I not understanding?

Author: Kelly 1515
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5 Answers
WHAT DOES HIGH RV TLC NUMBERS MEAN

Hello. Can someone tell me what a high RV score could mean? Mine is 139%. Does this mean I have COPD. Is there any way to lower this number? I quit smoking the day I found out I have emphysema about 3 months ago. I changed my diet and exercise daily. …

Author: Tina0624
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3 Answers
Mucus In Throat

Maybe try drinking more water and gargle with salt water---helps me

0 Votes
1 Answers
Confused about pulmonologist findings

ok. I was in the ER months ago for neck issues. I had a cat scan On that cat scan it read maybe mild emphysema.. I have since seen 3 pulmonologists. Talked with myPCP. and 3 ER doctors. And all of them are saying that what was found on the scan does not …

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0 Votes
3 Answers
Relatively Recent Diagnosis, Prognosis?

The good news is that your lung function is normal. Chronic bronchitis/ chronic cough can be related to a number of things ( asthma, sinus disease, reflux are the most common). It may be worthwhile asking to get some imaging (CT scan) to see if you have …

Author: copdninja
0 Votes
10 Answers
does humidity effect copd - I want to move to Texas.

I WANT TO MOVE TO TEXAS BUT UNDERSTAND THAT THE HUMIDITY IS BAD. I HAVE BAD COPD BUT WANT TO GO AND DIE WERE MY FAMILY IS. I AM 67,CAN I STILL STAY ALIGVE FOR AWHILE AS I I LIVE IN NV. BY VEGAS. CAN ANYBODY GIVE ME SOME RECOMMENDATIONS. OR MAYBE ANOTHER …

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5 Answers
Lung Function Tests-How often do you have spirometry tests?

How often do you have spirometry tests? I used to have one once a year and they stopped during covid and haven't ordered one since.

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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.