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3
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Are there any damages to your oxygen dropping into the 70's multiple times a day everyday?
I've been taking care of my mom who is usually on 4L of oxygen resting and 5-6L when up and around. For the last few months I have observed her more SOB when she's up and moving around. Nothing has changed. She participates in pulmonary rehab which seems …
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6
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Overdose on o2?
I went on cpap last Sept. I had mild sleep apnea with not so mild headaches. Then in Nov, I was placed on o2 for exercise and other activities, like vacuuming, etc. My headaches continued and my pulm doc added 1lpm o2 thru the cpap about a month ago. …
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7
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Rescue Inhaler is this a 911 inhaler?
I suggest you call your doctor and ask them to explain to you very clearly exactly how they want you to use your rescue inhaler. The name implies whenever you need it but albuterol sulfate is a pretty potent drug. I wouldn't take it more than your doctor …
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3
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Navage System
Has anyone used a Navage to alleviate the dryness in your sinuses and the headaches?
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3
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Can't breath,why
You mentioned a couple of things, one that this has been going on long term so I am assuming you were short of breath prior getting the pneumonia. You also mentioned being in the hospital for hip replacement surgery. My guess is that leading up to the …
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5
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Non-U.S. treatments for COPD
Is anyone aware of copd treatments that are approved outside the U.S. but not in the U.S?I am aware of the coils, which are in use in Europe. Any other cutting-edge treatments outside the US?
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1
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Spirometry results - normal
I have my spirometry results back and must confess am totally confused. Based on my research and limited understanding – it seems my lungs are doing quite well. Can anyone throw some light on what I may be missing or misinterpreting regarding having …
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13
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New Type of Nasal Canula
WE like to keep our community advised of new innovation in COPD products. While we do not endorse any products I did want to tell you about a new oxygen canula called the Uni-Flo 2. What makes this interesting is it is only a single nostril canula and …
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5
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DME went out of business
Today's mail had a letter from my Medicare Advantage Plan stating that Univita (oxygen supplier) is no longer in the network, effective immediately, as Univita has gone out of business. Univita seems to have violated Medicare's oxygen regulations, based …
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6
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Different climates
As I get older I hate south central Pennsylvanias winters more and more, especially when the wind is blowing. It really takes my breath away. My family and I have considered relocating to a warmer climate but from what I've read, COPD patients struggle …
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6
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Non-invasive ventilation
It has been suggested by the suppliers of my oxygen supplies that non-invasive ventilation therapy might help relieve my breathing difficulties. The way it was explained to me, it is a machine that I can use for a treatment and it will free up my …
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13
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Pulse Dose vs Continuous Flow
Hey Hack!!! I apologize that you felt you had to defend yourself. The truth is buddy, with all the factors at play here: pulse size, pulse delivered per minute, timing of delivery and method of delivery (burst or measured time delivery) I honestly don't …
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2
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58 year old mum in ICU on a ventilator
Hi I was wondering if anyone had been in a similar situation to me, my mum is 58 with COPD on Thursday (22/3/18) she went in to respiratory failure which she was on a NIV for as she went in with an ordinary chrst infection (Drs said the usual just need …
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4
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Dad being fasted/starved for days AFTER being extubated?
It's so disturbing when you don't understand what is happening to someone you love or why treatment is what it is. I'm deeply sorry for the anxiety you're having and sincerely hope that your worries can be explained in positive ways. Have you been able …
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17
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severe cramping from the knee and below
I know there has been some posts about this, but, surely someone has found a remedy by now. I am having severe cramping below the knees...(front and back) almost every night. These cramps come in 20 to 30 second cycles...and sessions last up to 20 …
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9
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Is any surgery what's so ever out of the question for COPD'ers
I was referred by primary care Dr. to see a urologist, along with a note stating for to avoid surgery because of my COPD. When the urologist read the note to me, my reply was, " it hasn't be that long since I had a colonoscopy and I was put under" . …
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6
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help with using a pulse Oximeter
You have had some good answers already, and I just want to put in a piece of advice about using the pulse ox. Remember it is only one of the tools you need in your toolbox. Don't become too heavily dependent on what it says. There are things that can …
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3
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How do you know if you are a co2 retainer?
Just wondering how you would find out if you are a co2 retainer.
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8
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Re-generation
I have been reading that it is possible to re-generate lung tissue. Is this true, and how would that affect the COPD community? Thanks as always.
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2
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Can a COPD patient be weaned from a vent?
Is it possible to wean a copd patient from a vent? Has anyone here been on a ventilator for resp failure and copd? Thank you.
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1
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Cognitive pulmonary disease
Hi, I am chasing rabbit's and not sure of where it might lead. I am rated at very severe copd along with a host of things now. I am on a program similar to palliative care. This month has been one multiple evaluations and I am try to get all my questions …
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5
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COPD and Depression
My father has had COPD for about 15 years now. As the son, I've relied on my mother to do primary care as she takes care of him. I worry though that she is not given the best advice and that bad habits creep in during the day to day life of my dad. So, …
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1
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I'm not sure what happened....
On Thursday I was dx'ed with pneumonia. Then yesterday something happened that I can't explain very well. The first thing that I was aware of was being in the ER at 6:00pm with my husband with me. I have no memory of how I got there, I have no clue what …
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4
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Do You Feel Invincible?
I don't know about you, but about 15 minutes into my routine I begin to feel invincible. At some times I actually seem to be. Today I felt like I could jog instead of walking. I did jog for a short period of time. I was surprised that I was able to go …
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13
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meal prep ideas
This past week I had the privilege to participate in 2 group meetings of folks who are living with COPD. Something that came up both times was how exhausting it is to prepare meals.They talked about how they often times will just grab something not very …
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