Last September I noticed my very active dad getting out of breath over the simplest of tasks. He lost a lot of weight, the house thermostat was now on 80, he always had on sweatpants, a teeshirt under sweatshirt and then a jacket. He is always cold to …

Hey Folks, The BODE Index is a very common tool used by HCPs in pulmonary rehab and pulmonary practice. Like others have mentioned it is a 4 year survivability scale. It is based on a well published study that followed individuals with COPD over the …

I am on 6 LPM oxygen at rest and 8 liters if grocery shopping. I can't seem to keep my breath during sex and sometimes panic. Needless to say, I have been having difficulties having sex because of it. Am I alone in this?

I recently started using 50MG of Prednisone once a day. After the third day my legs cramped up soo bad I could barely walk. Anyone else finding this side effect?

I often see postings that disclose lung capacities in percents. I assume those numbers come from pulmonary function tests (PFTs). If so, which of the many PFT results is considered to be "lung capacity?"

As a COPD advocate and researcher, I am looking to volunteer and offer my help in any way possible in pulmonary rehab classes. My goal is to get to know COPD patients better and understand their needs. Does volunteering, companionship, and possibly …

I have a couple of questions regarding Oximeter readings. New to this, so the questions may appear elementary. 1) I have a Zacurate Pulse Oximeter 500L. My doctor wants me to take readings while I am exercising. The manual on this says that you could get …

Well that's good to know  omega-3 by beef and eggs which I can eat. Didn't know that. Tuna isn't the best the cans look all mushy. I like tuna in the packages but they are expensive.  Salmon in can I like too. I also tried flaxseed and seemed to have a …

I have to concur with Scott. Lungs are meant to take in air, not chemicals. I am very concerned that instead of helping people quit smoking, vaping will actually cause more smoking. Many people, especially youth, are finding vaping to be the in thing to …

I use one pretty regularly and I am not on oxygen except to travel. as it can give me a snap shot as to how my oxygen is at a given time. I try not to get "addicted" to it. I knew a lady one time that wore it on her finger all the time. If you observe a …

Hi My husband's diagnosis has just hit me hard today and I am feeling very scared. My anxiety has been made worse by my growing understanding of how his diabetes might make things harder for him. Does anybody on here have COPD and Diabetes type 1 ? How …

I have lung capacity of 17% but stay active and walk 15-20 miles a week using C tanks on 2 liters continuous. Takes me around 1hr and 40 minutes and I stay around 95% with a heart rate of 105 average. I'm considering purchasing a POC that is the Inogen …

I do not know if I am just in denial. I never know what my copd is going to do from minute to minute . In a typical day I can go from being comfortable to being driven to my knees due to lack of air in a matter of hours. I dont know which way it will be …

Is combining Anoro Ellipta (LABA) and Combivent Respimat (SABA) not recommended. I have been using the two for about a month and day by day I am feeling weaker and weaker.

Has anyone ever heard of this nasal spray and if so, does it work? I know you need a prescription to get it. Thank you!

My pulmonologist was not much of help to my condition besides telling me to keep doing what I'm doing, so I dropped him and I have called few pulmo. doctors to schedule another appointment. I have done the alpha1 and came out OK. My pulmonologist never …

I have a full sized Bipap machine upstairs in my bedroom. However I would like a smaller version to have down stairs to use when needed. Is there a smaller version?

If she is just getting over an exacerbation she is going to feel tired. I would have thought she was given antibiotics for the exacerbation along with steroids? I any case she needs to build herself back up gradually....it can take a while so she needs …

Have my first follow up with a Cardiologist after having a chemical stress test which was ordered by my primary doctor due to some swelling in my ankles. Have a appointment with a New Pulmonologist in a few days .Changed Pulmonologist due to the fact …

The pulmonologist I'm seeing said that although I'm graded moderate COPD all I need is an emergency inhaler (which I've never needed to use) and I'm wondering how I'll know when I need to take meds on a regular basis. I'll be getting a new pulmonologist …

My thoracic surgeon has given me his cell phone # so that I do not ever have to go back to the emergency room again.  He will make sure that I am admitted promptly.  How great is that?  Of course, I hope that I can avoid the need to call him.  He is …

Ok so I've been told that I need oxygen, but I cannot get my head wrapped around the reality of being tethered to a tank.. Is there absolutely nothing else in this whole freakin' country to treat COPD??? I'm ok with the inhalers, just can't accept that I …

For the past few weeks my mom has become increasingly confused. She mixes up day and nights, she sometimes thinks I am someone else and that other people have been taking care of her. I am her sole caretaker and other than the hospice nurse no one else …

I spoke yesterday with an individual with COPD who told me she and her physician never talk numbers. She knows when she is doing better, when she needs a little bit more help -- but doesn't know her FEV1, etc. and does not want to know. Does anyone else …

something like ensure might help boost energy. The thing is that if she is having a problem breathing she is using a lot of energy just to keep her sats up. It is important that she is eating a proper diet and as I said maybe some ensure or fortified …