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6
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Looking for some real life stories...
Kristen and I are working on an event to be held next month where we will have a group of healthcare professionals gathered to discuss COPD hospital readmissions - well, more specifically how to prevent those readmissions. We would love to be able to …
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10
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Loosing words/memory, focus.......
Today my concentration is somewhere around that of a 2 yearold. That brain fog is messing with me pretty good. As for my saturation, it appearsto be well. I will talk to my Dr. soon and will most definitely be asking aboutthis.And I am so happy for spell …
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7
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Where do I start?
I am new to this forum and have been reading thru some of the questions and answers. Just to get a feel for what goes in here. And in a question someine wrote of their 93 year old mother. And as he described her life and her level of functioning I became …
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My morning cough s ms worse as it takes an hour or so to get mythroat and sinus clear.
when im able to cough up sputum its light green. Im using a CPAP. with o2 bleed in at night and i use the water chamber with heated tubing. Could that be making a difference in cough levels
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4
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COPD Awareness
Sometime ago an idea was posted to offer a cap instead of a T-Shirt for COPD awareness. I would like to know if anything has come of that idea. I would like to have a ball cap that I could wear all year long and have people see it where a T-Shirt will …
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8
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No symptoms or signs
Hi All - I'm new to this!! I was just diagnosed with COPD but I have absolutely no signs - I breathe easy, no cough, etc. I stopped smoking almost a year ago but the damage has been done - what suggestions do you have to slow down the progression- I'm …
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5
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Has anyone ever had thrush and how did you treat it?
Could not tolerate nystatin. Got just 2 small spots but can't get rid of them. From inhalers, of course even tho' I rinse and gargle.
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2
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Portable Oxygen and Teppan Restaurant
My grandmother utilize a small portable O2 tank. We are planning to go to a Teppan Restaurant for dinner. The restaurant said it was fine. But we’re not sure they actually know what they’re taking about. Any advice appreciated.
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Can you rapidly go through copd stages?
I was diagnosed in June of this year. I actually just turned 46 yesterday. Both of my parents have already passed from Copd. I don't have insurance, so the only medical help I receive is through a free clinic. They give me Symbicort, but no other help. I …
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3
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A vet without a pulmonoligist
I am a 75 year old vet with COPD. My primary provider is the Spokane VA which as been without a pulmonoligist for over two years now. Unfortunately, I know more about my condition than my primary care doc. I've been told it's a budget drive problem and …
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2
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Are you a veteran or spouse of a veteran
Reading through some post regarding high percentage of vets with COPD. it was posted three years ago. Ha v e you signed up to participate in the Million veteran program? This program is a national voluntary research program designed to help researchers …
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21
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How much time do you spend with your Pulmonologist
I am curious how much time people get with their Pulmonologist. I have two set appointments per year, one for spirometry test and discussion of results and one six months later for a "wellness" check. No matter what I want to discuss I am allotted …
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8
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Taking Emergency 02
I recently got a POC - it's great, and I plug it into my cigarette lighter (how ironic) and it charges. 2 hour battery, or more on lower settings. Recently, my car stalled, and I wondered, well, ok, what would I do if my battery ran out and my car was …
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9
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Humidity sensitivity
Can anyone tell when the humidity starts to climb over 60%? It seems I can tell with slightly more trouble catching my breath?
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1
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Side effects Brovana vs budesonide
I am taking both these medications and having bad heartburn, backache, weight gain & fatigue. I take omeprazole for acid reflux. Trying to figure out which one might be causing symtons. I was on Symbicort & Sprivia and no side effects but quit …
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16
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New Member Needs Help
I Mom is 93 with diagnosed COPD, AFIB, Asthema, ASD, and Accute Anxiety. Her condition has progressed to the point where she can no longer shower, prepare a meal, or walk from room to room without sweating and breathlessness. She rarely sleeps well at …
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3
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Who lives in a Bidding Area? Involves " Medicare Durable Equipment"
I live in a Medicare Bidding Area. Meaning; whatever equipment I use,must be guaranteed for Five years..The rollater walker,this company sente would not last 6 mos.on the streets of Chicago.. I had to send it back..The frame was horrible,and so was the …
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3
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Any have SOB. yet O2>93%?
I've been experiencing a lot of SOB, yet I'm getting 94% O2 readings. Also, the other day I was outside, medium humidity & 82F, my PulseO2 was showing 85%. But I wasn't experiencing any breathing problems. The meter was in the shade al this time too. …
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9
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Pain
does anyone get sudden pain like your lungs are cramping that seem to last about 10 minutes?
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7
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Get a 2nd Opionion, or Wait? (Long read)
Hi all, thanks for being here. I am having a trouble making a decision and thought some of you may have some insight that could help. This is a long post but I want to give the entire story so it makes sense. I'm a 47 yr old female who is pretty …
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3
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Canula cleaning
cleaned my canula with gentle soap and rinsed well. It took forever(3days) before there was no water in the tube. Think it may not be too sanitary. Anyone help with correct way to clean? The tubing does not detach from the nasal part
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4
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Is there a home-based Pulmonary Rehab Center near you?
Maybe there should be! This recent study shows that a home based PR program following a one-week onsite PR training works. This is the first study of its kind, evaluating the effects of a simple, low cost home based PR program. You can check out the …
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6
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No longer in need of oxygen? Share your experience.
Is There anyone who has been on Oxygen 3 or more years..? How did you or your provider reduce the levels? e.g. from 3-1 or 2-0. How did you feel? Were you able to function without a walker,or a cane? Please if you don't mind,share your experience..
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6
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Anyone tried Power Lung?
Hello everyone, I purchased a device called "Power Lung" from Amazon in an effort to improve my breathing. I'm one session away from being through with Pulmonary Rehab, am using my treadmill 15 min. per day and my elliptical bike another 15 min. but I …
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7
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Asthma College
There are flyers circulating in clinics from the " Asthma College" any one know of them? The flyer has all medications mixed up on one sheet. I was recently informed that Asthma and COPD medications are the same. I disagree,Asthma medications slow me …
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