0 Votes
4 Answers
COPD and medications

Hi guys, I'm new on here. I'm 60, married, born with cerebral palsy, asthma all my life (although not diagnosed until age 22. I've literally had bronchitis over 400 times in my life, and pneumonia 5 times. I use Albuterol and Ipratropium for my nebulizer …

Author: ShelleyC
0 Votes
2 Answers
Heat source

It is becoming necessary to have heat as we progress in to winter in my neck of the woods. I have a choice of natural gas or electric heat. Anybody have suggestion as to which would be less harmful? If it is relevant the CO2 readings in the house vary …

Author: ddhort
0 Votes
6 Answers
Spiriva-breathing

Has anyone found Spiriva, or any daily meds, to make your breathing worse ?

0 Votes
5 Answers
Does anyone get sob off and on for no reason?

It seems that every day at some point whether  sitting, driving, walking in a store, eating lunch... I get that "elephant" and for a period of time (hour to two hours) have sob... it passes as oddly as it comes. I use my nebulizer and/or proair …

Author: dustybill
0 Votes
6 Answers
Holiday

Just wanted to wish everyone a Merry Christmas

0 Votes
5 Answers
Low sp02

my le els jave dropped from 94 to 83% at rest for more then 10 minutes. Just starting polmanary rehab . in Jan 2019.i am not pn oxygen and pol.anary doc siad 02 was o.k. at walk so it shouldne fine. Whe. Should i be concerned??

Author: John John
0 Votes
2 Answers
Prolastin costs?

After reading some Q & A when I first joined, I saw something about Alpha-1. Given that my husband's mother died of COPD and my husband has severe COPD, I suggested he be tested. He does, indeed, have the gene. He's been talking with a Prolastin rep …

Author: KittyKatt
0 Votes
4 Answers
Recovery from surgery

I met with a thoracic surgeon today as a referral from my pulmonologist. No definitive decision on surgery yet, he want 2 more tests. But he did discuss the potential/likely surgery. It would be a lung volume reduction surgery for both lungs. He …

Author: Ratch
0 Votes
4 Answers
Are you wondering about the difference in oxygen delivery systems?

Thank you, Stephanie, for opening the discussion about Concentra tors >>> It is a very serious issue that needs to be addressed for stage 4 COPD sufferers >>>> Concentrators as the word indicates CONCENTRATES the air by removing Nitrogen ONLY…. as you so rightly point out >>> This NEW AIR …

0 Votes
5 Answers
Spiriva Respitmat puffs

Do you get your Respimate in a box with a direction sheet on how to insert the small cylinder into the larger inhaler? That sheet also has instructions on how to breath in the medication. Most inhaled meds say to wait one minute before taking another …

Author: perkyH
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0 Votes
4 Answers
What has your experience with Anoro Ellipta been like?

I had been taking Symibicort, Spiriva and Combivent Respimat for several years. Recently my dr. suggested substituting Anoro Ellipta for the first 2, and it seemed like a good idea in light of the cost savings. My Part D provider at the time was charging …

Author: Susann
0 Votes
4 Answers
New patient

Hi, I went for a spirometer test yesterday and she said my readings show I have copd although she didnt think it fair to diagnose it as I have a very phlegmy chest and wants to re do it, OMG I hadn’t even heard it copd until then, what if it is?? I’m …

Author: Copd490
0 Votes
12 Answers
Long Post -- Smoking / COPD / Many Questions

I thought for a minute you should find another doctor but reading between the lines it seems the doctor was trying to SHOCK YOU into quitting and it seems to have worked>>> you are now accepting the need to STOP lighting bonfires in your mouth >>> as you have found out it is not easy …

Author: GroovyLit
0 Votes
12 Answers
Swimming and Supplemental Oxygen?

I am new to oxygen. One thing I do twice a week is the water arthritis class. It's slightly less strenuous than water aerobics, so I don't get too winded. . . I've been doing this for 6 years. When the Doc prescribed oxygen I had visions of fighting …

Author: JeanO53
0 Votes
3 Answers
Should peak flow meter result correlate well to FEV1 result?

Thank you for that explanation Jane it really is an EXCELLENT question and a BRILLIANT ANSWER >>>> Thank you >>> I feel the need for a short leaflet explaining each and every test for COPD and the reasons behind it BEFORE the test is taken should be handed to the patient …

Author: Dratsab
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0 Votes
1 Answers
Cellcept side effects

Hi all, anyone else on Cellcept having a side effect of being extra tired?

Author: Evie
0 Votes
1 Answers
Oxygen colder

I am on oxygen 24 - 7 at home. Sometimes the oxygen from my concentrator is colder than other times. Does anyone know why this hapens?

Author: SamMac
0 Votes
4 Answers
Any Tricks for Transitioning from BiPAP to O2 Canula?

I've been living with severe COPD for years & am on BiPAP (w. O2 bleed) & HiFlow O2 concentrator. I'm educated on IPAPA, EPAP, and Vt so BiPAP therapy goes well, but when I transition to my 02 canula for daily activities, I can't breath but in …

Author: Jimi-James
0 Votes
8 Answers
Has anyone used a POC as their only concentrator for 24/7 use?

Dear kittypie >> I strongly advise you to ask for a breakdown of ALL gases these POCs and your home machine deliver from the ambient air >>> it takes a HUGE plant to remove CO2 from the air >>> UK Mike

Author: kittypie
0 Votes
4 Answers
Recently Diagnosed - I have a couple questions

My PCP does my referrals. You already quit smoking so you're ahead of the game. Good Luck---you will get good info here

Author: JPat
0 Votes
6 Answers
abg test

Hello lazy t >>> your pulmo and Debbie are correct >>> I am speaking from 10 years caregiving only and believe a regular ABG test is essential ONLY IF you are COPD Stage4 and have been diagnosed as a CO2 RETAINER >>> ABG is not normally necessary unless your levels are …

Author: lazy t
0 Votes
12 Answers
What boosts your mood?

I paint or draw to lift my spirit. I also move to hear my music

0 Votes
2 Answers
Need Some Guidance

Good Morning I am a caregiver for my 74yr old mother. She has COPD and stage 3A lung cancer. The COPD is the bigger monster right now. She was receiving chemo and developed a bad cough. It was rather glazed over at the oncologists and they simply gave …

Author: Annie119
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0 Votes
2 Answers
COPD OR ANXIETY

I am awoken every morning with tightness in my stomach that feels like anxiety. I use CPAP. I take medications for COPD, Spiriva, and am treated for anxiety. Increased anxiety medication has no effect. I also have the same issue when I doze off in my …

Author: King12345
0 Votes
1 Answers
Stuffy and Runny nose

Of course i have COPD and i woke up yesterday with a runny stuffy nose. The mucus is clear........Do i worry about this or just take some medicine? Thanks

Author: perkyH
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.