0 Votes
3 Answers
​Post-bronchodilator FEV1/FVC > .8, but PFT form says “emphysema”?

I took a PFT test recently, and my post-bronchodilator FEV1/FVC was 0.863. I did have a pre-bronchodilator FEV1/FVC of 0.354; I think I was taking the test wrong, and my test results say “no interpretation, not enough acceptable maneuvers” for the “Pre” …

Author: adam29283
0 Votes
3 Answers
Does anyone else use Lonhala in place of Spiriva

Lonhala is the same as Spiriva Respomat same company . The difference is Lonhala comes wuth a starter kit containing a small Nebulizer and mouth peice. I find it is much easier to get the most out of my medicine. Wish they would come up with something …

0 Votes
4 Answers
Does anyone here use Fluticasone/Salmeterol 55/14mcg?

my doctor called in this medication for me. She originally called in Breo, but it was over $400 and I currently have no insurance. Does anyone know about the medication Fluticasone/Salmeterol? Does it help? Thank you!

Author: Kattlyne
0 Votes
2 Answers
is it realy asthma or COPD? im worried

I had asthma since i was born and was always on flixotide and salbutamol until about 7years old. from then i never used any type of asthma medication and my asthma was gone untill i was 15/16y old. 8yo was first time then i tried smoking and between 14 …

Author: dougg1
0 Votes
6 Answers
How do you know the Total Lung Capacity

Can I calculate the TLC with these report values? FVC, FEV1, FEF, FIVC, FIF, MVV Lung volumes: SVC, IC, ERV Diffusion: DLCO, DL/VA, VA

Author: netmouse
0 Votes
5 Answers
How to deal with emphysema

My pulmonologist states I still have COPD (recent PFT), but with an emphysema component (she saw from a spine CT..follow-up for C12 fx that showed the upper lungs). I asked if was mild and she said stop smoking and get repeat PFT and chest CT in December …

Author: PatriciaK
0 Votes
14 Answers
How do other members react to weather changes?

I maintain a normal (95) O2 level but get sob if outside very long. Just feel a heaviness so I come back in! It has been humid and pollen counts up and down.

Author: dustybill
0 Votes
1 Answers
Is oxygen saturation test done by the device they put on your finger?

I was wondering if the oxygen reading from the device on finger is what everyone means by oxygen saturation level. Thank you!

Author: Kattlyne
0 Votes
1 Answers
Good explanation of COPD (video)

This is a clear explanation for anyone newly diagnosed: https://tinyurl.com/q8anv8n

Author: netmouse
0 Votes
4 Answers
Diagnosed at 28 with no testing

I have recently been diagnosed with chronic bronchitis, COPD. I am 28 years old and in decent shape and live an active lifestyle, although a little over weight. I smoked for just short of 9 years and smoked “socially” for 4 of those years while in …

Author: Allysa
0 Votes
2 Answers
How long will I be able with COPD stage 0?

Good morning. I am a Portuguese citizen diagnosed with COPD stage 0 this year. Unfortunately, I have a chronic bronchitis and I say it is at stage 0 because my lung function, (FEV and other measures like that), is at 100% yet. I am only 31 and I only do …

Author: Manuel87
0 Votes
6 Answers
Zepher and FDA

Approval now 8 months old. I have seen nothing that indicated during the recent enrollment period that had any of the insurance companies advertising or even suggesting they would pay. Likewise no jump for vast numbers of hospitals to provide nor …

Author: Grover
0 Votes
1 Answers
Most accurate oxygen saturation monitoring?

Hi my dad has stage 4 emphysema. His hands are often cold (leads to strange oxygen sat readings using fingertip pulse oximeter). Does anyone know of another recommended piece of equipment for oxygen sat monitoring that is effective and accurate? In the …

Author: Ffm
1 Votes
13 Answers
Pulse oximeters

how many people own and use. Pulse oximeters? How do you feel it benefits your overall health? Do you use it to help spot exacerbations?

0 Votes
1 Answers
COPD and Co2 ?

I was just released fromthe hospital. I have COPD but have not been on oxygen, I had a Cpap. They changed me to a Bipap. I was told my Co2 was in the upper 90s. I've never even heard about Co2 before. Now I'm on 2 liters of oxygen. I guess I'm asking, …

Author: LeighM
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0 Votes
5 Answers
When I'm not breathing well why do people stare are we ready now okay

People stare when I'm not breathing well

Author: lanesf
0 Votes
7 Answers
Can you take 5 minutes to support PCORI reauthorization?

Today marks the start of the PCORI Annual Meeting and COPD360social's own Clipper is participating in-person, but did you know that there is something you can do to help right from home? PCORI, or the Patient Centered Outcomes Research Institute, funds …

0 Votes
1 Answers
Appointment with Pulmo Doc follow-up

1 month follow-up after start of Trelegy. Fev1 - 1st was 40's after sitting in the waiting room 45 minutes filled with perfumed people (my asthma trigger). Of course the test was bad. 2nd a week later was better at 51. Today a month later was 60. He …

Author: netmouse
0 Votes
2 Answers
Anyone heard of DIP?

Desquamative interstitial pneumonia (DIP) is almost exclusively seen in smokers or ex smokers. If stop smoking, prognosis is good. Hi everyone, I had a PFT on 9/10. The FEV1 was 70%. I don't use oxygen or inhalers, not short of breath + O2 sats 95-98. …

Author: PatriciaK
0 Votes
1 Answers
Physical Rehab - And

I am on oxygen 24/7 at lit 2 with upper liters needed for physical execise (3-4 range). I enjoyed my physical therapy sessions and they seem to help my breathing so much BUT I have a very bad back plus a large cyst sitting on my nerve and walking and …

Author: NancyNM
0 Votes
12 Answers
worst copd question ever!

yep, smoker; yep trying to quit! But, BIG B BUT, does anyone have experience w/ the menthol in cigarettes actually relieving chest tightness so you breath better short term at least? Any suggestions. Mentholated cough drops work but not for long nor as …

Author: s'ri
0 Votes
2 Answers
COPD ICU

Hi All, I want some advice. I am form philippines and last friday we rush my father to the hospital and he's in the ICU room from that day till now. His oxygen is 89% coming from machine. He got emphysema and tuberculosis. The doctor said that he needs …

Author: Clades
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0 Votes
17 Answers
How did you quit smoking-having a hard time

Having a hard time stopping... when I get anxiety or stressed I keep going back

Author: Beezer
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0 Votes
3 Answers
Mild upper lobe scarring and paraseptal emphysematous changes

hey new friends - I am really in a state of panic. I was in a car accident and coincidentally my CT scan showed Mild upper lobe scarring and paraseptal emphysematous. My PCP then sent me for an xray as well. She said the scarring is very mild (i think i …

Author: Mandih
0 Votes
10 Answers
What can I expect when I go to Pulmonologist?

Hi, everyone. I'm new here and hope that I am posting correctly. I am a 49 year old single mom with a 13 year old daughter still at home. August 20th I woke up with extreme trouble breathing. I felt like I couldnt get a deep breath. It was scary. Im no …

Author: Kattlyne
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.