0 Votes
1 Answers
WIM HOF and COPD

Today I spoke to a guy who is a keen supporter of a system called Wim Hof.He suggested that this method would be most beneficial to any person with COPD.I did do a google search of this and discovered that it seems it does improve the symptoms of COPD.I …

0 Votes
1 Answers
ELF Fact Sheets on Lungs

The European Lung Foundation has this index to their factsheets. Get comfortable … lots to read ! https://www.europeanlung.org/en/lung-disease-and-i...

Author: netmouse
0 Votes
1 Answers
Make breathing easier at night

I just found this link to products that open up the nose for easier breathing. The little plastic nasal dilators sound great. So if your nasal cavities are narrow or stuffed up or you snore, these items may help you breath easy. I tried Breathe Right …

Author: netmouse
0 Votes
1 Answers
Zephyr Valve video

This was posted by Gramma Cheri in another post. It is a documentary about Leonard Nimoy, but also great info and a video on the Zephyr Valve. it sounds so promising, as others have posted here, for those with severe disease. https://mylungsmylife …

Author: netmouse
0 Votes
5 Answers
Bladder cancer?

Smoked 54 years/about pack a day. Was going to quit Sept 1st, but now too anxious. Had recent pink urine and urinalysis shows many red blood cells, but NO infection. Doctor is concerned. Ordered CT scan of kidneys and bladder (Urogram) 9/12, then …

Author: PatriciaK
0 Votes
3 Answers
Good explanation of DLCO

I found this helpful to understanding the test for air transfer in the lungs. A low score points to emphysema. https://www.consultant360.com/articles/using-and-i...

Author: netmouse
0 Votes
1 Answers
TRELEGY options

DD360 New here. Just diagnosed with 60% COPD. Couldn't believe the TRELEGY inhaler per month cost is $500+. Going to try Canada . Any suggestions would be welcome. Kindest Regards,

Author: DD360
0 Votes
9 Answers
Help with understanding spirometry results

Thanks Mike

Author: netmouse
0 Votes
5 Answers
Possible Asthma induced COPD only 21 very scared need advice!

I've had asthma my entire life but it was only a real problem a few years ago. I heard uncontrolled asthma can cause complications but nobody really stressed the importance of taking my preventive meds. The inhalers worked so great so i just stuck with …

Author: Paradox314
0 Votes
3 Answers
​Post-bronchodilator FEV1/FVC > .8, but PFT form says “emphysema”?

I took a PFT test recently, and my post-bronchodilator FEV1/FVC was 0.863. I did have a pre-bronchodilator FEV1/FVC of 0.354; I think I was taking the test wrong, and my test results say “no interpretation, not enough acceptable maneuvers” for the “Pre” …

Author: adam29283
0 Votes
3 Answers
Does anyone else use Lonhala in place of Spiriva

Lonhala is the same as Spiriva Respomat same company . The difference is Lonhala comes wuth a starter kit containing a small Nebulizer and mouth peice. I find it is much easier to get the most out of my medicine. Wish they would come up with something …

0 Votes
4 Answers
Does anyone here use Fluticasone/Salmeterol 55/14mcg?

my doctor called in this medication for me. She originally called in Breo, but it was over $400 and I currently have no insurance. Does anyone know about the medication Fluticasone/Salmeterol? Does it help? Thank you!

Author: Kattlyne
0 Votes
2 Answers
is it realy asthma or COPD? im worried

I had asthma since i was born and was always on flixotide and salbutamol until about 7years old. from then i never used any type of asthma medication and my asthma was gone untill i was 15/16y old. 8yo was first time then i tried smoking and between 14 …

Author: dougg1
0 Votes
6 Answers
How do you know the Total Lung Capacity

Can I calculate the TLC with these report values? FVC, FEV1, FEF, FIVC, FIF, MVV Lung volumes: SVC, IC, ERV Diffusion: DLCO, DL/VA, VA

Author: netmouse
0 Votes
5 Answers
How to deal with emphysema

My pulmonologist states I still have COPD (recent PFT), but with an emphysema component (she saw from a spine CT..follow-up for C12 fx that showed the upper lungs). I asked if was mild and she said stop smoking and get repeat PFT and chest CT in December …

Author: PatriciaK
0 Votes
14 Answers
How do other members react to weather changes?

I maintain a normal (95) O2 level but get sob if outside very long. Just feel a heaviness so I come back in! It has been humid and pollen counts up and down.

Author: dustybill
0 Votes
1 Answers
Is oxygen saturation test done by the device they put on your finger?

I was wondering if the oxygen reading from the device on finger is what everyone means by oxygen saturation level. Thank you!

Author: Kattlyne
0 Votes
1 Answers
Good explanation of COPD (video)

This is a clear explanation for anyone newly diagnosed: https://tinyurl.com/q8anv8n

Author: netmouse
0 Votes
4 Answers
Diagnosed at 28 with no testing

I have recently been diagnosed with chronic bronchitis, COPD. I am 28 years old and in decent shape and live an active lifestyle, although a little over weight. I smoked for just short of 9 years and smoked “socially” for 4 of those years while in …

Author: Allysa
0 Votes
2 Answers
How long will I be able with COPD stage 0?

Good morning. I am a Portuguese citizen diagnosed with COPD stage 0 this year. Unfortunately, I have a chronic bronchitis and I say it is at stage 0 because my lung function, (FEV and other measures like that), is at 100% yet. I am only 31 and I only do …

Author: Manuel87
0 Votes
6 Answers
Zepher and FDA

Approval now 8 months old. I have seen nothing that indicated during the recent enrollment period that had any of the insurance companies advertising or even suggesting they would pay. Likewise no jump for vast numbers of hospitals to provide nor …

Author: Grover
0 Votes
1 Answers
Most accurate oxygen saturation monitoring?

Hi my dad has stage 4 emphysema. His hands are often cold (leads to strange oxygen sat readings using fingertip pulse oximeter). Does anyone know of another recommended piece of equipment for oxygen sat monitoring that is effective and accurate? In the …

Author: Ffm
1 Votes
13 Answers
Pulse oximeters

how many people own and use. Pulse oximeters? How do you feel it benefits your overall health? Do you use it to help spot exacerbations?

0 Votes
1 Answers
COPD and Co2 ?

I was just released fromthe hospital. I have COPD but have not been on oxygen, I had a Cpap. They changed me to a Bipap. I was told my Co2 was in the upper 90s. I've never even heard about Co2 before. Now I'm on 2 liters of oxygen. I guess I'm asking, …

Author: LeighM
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0 Votes
5 Answers
When I'm not breathing well why do people stare are we ready now okay

People stare when I'm not breathing well

Author: lanesf
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.