Hi everyone, I've created an account because I can not resort to anyone else around me for advice anymore. They either do not know the feeling of having a loved one with end stage COPD and/or just dont know enough to give any meaningful advice. This …

Thank you everyone. My mom and I were very close. We had about 5 years before I got married where our relationship was awful, but once I moved out we worked through everything and obviously, for the last 5 years we had her live with us, and I wouldnt …

The problem with sinus issues is that they tend to go south and become bronchitis or pneumonia if you don't catch them quickly. Certainly see your doc or at least let her know that you have a sinus problem and follow the instructions you're given. If you …

Hi, just very recently, researchers from pretty big institutes (Duke, NUS, so def not half baked attempt) have found new cure for inflammation and fibrosis. As it shares the same mechanism with COPD, is there any hope for COPD cure too? Link: https://www …

is there any free help out there? I am on a fixed income,

I am so impressed with the sharing and that everyone feels comfortable talking about a very difficult time. I too had a similar experience and like most of the group, it is extremely difficult my mom passed at home with Hospice too young. What I do know …

I have AARPRX Preferred with United Health Care that is pretty good but I have extra help also. I do pay a premium for part d.33.60 a month. My medicare is paid by Soc Sec.. I do have QMB disability which goes to my supplement.

Remember Kattlyne we are not doctors here so the only interpretation of that report that matters is the one your pulmonologist provides. Here is my take. The Pre % Pred stands for ‘pre treatment % predicted’. For the test they take the measurements and …

Every year around the same time my oxygen level drop to 85 and i have to go on oxygen. But the rest of the year my level is 89 -92 and i dont need oxygen. It seem like i break down and have to build my self back up down. Sitting down right now my o2 is …

can you have a beer or two on Symb

In the coming days and months you will hear a lot of talk about the new National COPD Action Plan. What you might not understand is why it is so important. What the plan does is it stresses the impact of COPD in our country and then establishes a road …

This seems a really good overview of testing the lungs: https://www.aafp.org/afp/2014/0301/p359.html These are great videos of asthma (part 1 and part 2) https://tinyurl.com/rght2m5 https://tinyurl.com/wqwaf8r

Does anyone know what advance stage COPD is? The doctor didn't list a stage, just that it is advanced. My Mother is currently in the hospital with it and she has congestive heart failure and pnemonia that they cant clear (she has been there a month now). …

The COPD Foundation will participate in the COPD National Action Plan: Tracking Our Progress meeting, hosted by the National Heart, Lung, and Blood Institute on November 13, 2019, at the National Institutes of Health in Bethesda, Maryland. I will be on a …

This is driving me bananas. Why do I keep getting this error message when I try to have a profile pic. Yes, the user name is in use. It is MY user name! I get the error message and then I cannot save the profile pic. I can upload the photo fine - it just …

My nebulizer treatment it albuterol/ipratropium and about half way through a treatment I want to yawn.  Why is that?  That is not important, but I am just curious and now on the important question what is the shelf life of …

Today's emailed article from COPD.net has some interesting ways to test to determine what the heck you have. I'd like to see the actual level of inflammation indicating COPD or the one indicating Asthma or both. https://copd.net/living/also …

Mist will remember when I had a ct scan and it showed emphysematous changes, today I’ve had my spirometry test and passed thank goodness, My fev1 was 73% Fvc 32.5 litre Percentage of predicted forced vital capacity 109% Are they good numbers I didn’t …

After reading that someone lost a loved one my question seems so trivial. I have been feeling well regarding mental health. I’m always worried about something. The weather here today in central Florida is outstanding. I felt good so I did the laundry …

How long was the flight? That will determine altitude, and yes, it really can be true that the numbers were that low. What are your numbers normally?

having increased anxiety nervousness and tremors. Using pramipexole for RLS at night but don't think that is the cause Thank you

We want to bring several research and survey opportunities to your attention. For those not yet diagnosed : Animportant study is under way to test if current and former smokers who havesymptoms of COPD, but do not have evidence of airflow obstruction on …

I just had my first flare up and was in the hospital for 1 night. Two reasons I went was ....my oxygen was 85 and my pulse was 165 and I really couldn't breathe it was scary My question is what is lowest number on oximeter and pulse meter to trigger me …

I read this on another COPD forum, and it makes no sense to me. What do you think? The part that makes no sense to me is the "DLCO % shows you how hard you have to work to improve your FEV1." Is that true? It seems like bad info. Also note on the PFT, …

First of all – Medicare will cover both a stationary concentrator AND portable oxygen, whether the portable is gas canisters or is a portable oxygen concentrator (POC). However, your doctor may have to specify on your prescription that he/she wants you …