0 Votes
13 Answers
Would a series of exercise video blogs be helpful for people who live in remote areas ?

Hi, I believe the COPD Foundation's Pulmonary Education Program (PEP) utilizes videos from the "Sit and be Fit" Series. I believe these exercises are good for those with limited mobility or beginners: https://www.sitandbefit.org/ I'll see if one of …

0 Votes
10 Answers
Looking for Friends =)

Stacy there is a free test thru the mail confidential that you can do from your own home. I have done it myself being so many generations of asthma in my family. You e-mail them give them the information they will send it to you and you do the test 3 …

Author: Stacy624
0 Votes
1 Answers
Will SeQual Equinox work for someone in advanced stages

My partner / husband has Pulmonary Fibrosis which is obviously different than COPD but they share many characteristics. I got here by way of Google looking for information about portable oxygen concentrators and continuous flow vs pulse dose. My partner …

0 Votes
2 Answers
Breath Training Explanation Please!

I found this site to be interesting: Natural Breathing Gently and slowly inhale a normal amount of air through your nose, filling only your lower lungs. (Your stomach will expand while your upper chest remains still.) Exhale easily. …

0 Votes
4 Answers
What written forms & samples have you found for organizing medical information?

I'm attaching a checklist and action plan that's on my website, as well as the sample emergency information card that I have customized and carry in my wallet. The information is from a fake patient with the form that can be used to complete (or modified …

0 Votes
2 Answers
Advice please

What you heard from the pulmonologist is not absolutely certain-sure true, but given those spirometry results (that's the breathing test you were given the results of) and what was shown in the CT scan, that's exactly what I would have told you. Your …

0 Votes
13 Answers
What do these exercises do to help me with my COPD

Wow!! I am posting a link that proposes we stay fit while traveling. No equipment is necessary for any of these exercises. My goal is to work up to about half of the warm-up and then add one or more of the other exercises per day. If I am not back on for …

0 Votes
2 Answers
What are some Recent Articles and Materials about COPD in the News?

It's easy to feel that COPD doesn't get nearly enough press. Let's post articles about COPD here. Bonus points if they explain COPD in a positive light and are helpful.

0 Votes
5 Answers
Brachiecstasis

I was diagnosed with COPD several years ago and was told I had emphesyma. I was a former smoker who only smoked lightly and quit 45 yr. ago but asthma runs in my family. About 2 months ago I was diagnosed with brachiecstasis. I have mucus in my lungs …

Author: Judy Rose
0 Votes
6 Answers
Integrative Therapy--Scientific Links for COPD, etc?

I am a member of the Integrative Therapy Special Interest Group of the American Thoracic Society (ATS). Our group has a website on the ATS and would like to a few select scientific websites for complementary, supplementary, integrative therapies for: 1. …

0 Votes
5 Answers
Support Groups

Rolando, Another COPD patient and I started our own very casual support group a few years ago in Central Florida - we called it the "Lunch Bunch Group".  We didn't have a set schedule, but met occasionally and in various restaurants in the Central …

0 Votes
6 Answers
Check in – Clowns to the left of me… 😊

Good afternoon! I mentioned yesterday that I would be posting my Tuesday Tunesday song on today’s check in. I have to tell you that there are few songs that really amuse my kids when we hear them on the radio or better yet, if they play while we are out …

0 Votes
7 Answers
Restaurants and covid

I agree with everyone who has commented thus far; eating inside a restaurant is still high on the list of risky activities for us. I’m still avoiding groups of people, even when outdoors.

Author: Evie
0 Votes
13 Answers
neck gaiters for COVID protection outdoors: pros/cons

If I've missed something already on this, I apologize -- couldn't find it in a search... I try to still walk outdoors regularly because I live in a small apt. and of course am not going to go to the gym. Masks, as you all know, are tough to wear and …

Author: TXBlue
0 Votes
13 Answers
What Great New COPD Resources are YOU Aware of?

I don't think they need to include anyone in the video to make a powerful point. It would have been more powerful if they had left out the testimonials, actually. Despite some outliers (ie, the 9/11 firefighter), the other testimonials played into the …

0 Votes
4 Answers
Coronavirus ranking

Attributing virus for death is not right because our life is essential for virus survival. they can replicate only in living cells. killing a patient is suicide mission for virus itself. the other thing to blame is the our own immune response and turns …

Author: netmouse
0 Votes
7 Answers
What to talk about on radio show about COVID & COPD?

It’s difficult to addmuch without knowing the demographics of your audience or what your messagegoal is. Personally my goal would be different if the audience knew that I was a COPD patient and advocate versus unknowing listeners. Can you elaborate?

0 Votes
6 Answers
What are the possible dangers in leaving your oxygen turned up too high?

Hi. I heard about a condition called “hypoxic drive.” I also read something from an article about that. The target saturation is 88-92%. “Patients most susceptible to oxygen-induced hypercapnia are those with the most severe hypoxemia. How can oxygen …

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0 Votes
11 Answers
How can you tell if a clinical trial is legitimate?

One of the most reliable resources in determining whether a clinical trial is legitimate is to go to: https://clinicaltrials.gov/ . This is run by the National Institutes of Health and lists over 100,000 clinical trials. I also found a very good …

0 Votes
3 Answers
I need this mask

I wish I knew who to credit for this. Saw it on Facebook: https://www.facebook.com/rthomas74/videos/10159638...

Author: muddleaged
0 Votes
2 Answers
What are some good webinars about COVID and COPD?

The US COPD Coalition will be presenting two webinars that are free and available to all. The first webinar, "Coping with Stress in Difficult Times", featuring psychologist Arpi Minassian, Ph.D., will be broadcast live at 3-4 pm Eastern (9-10am Hawaii …

0 Votes
7 Answers
Last four or five doses in Breo Ellipta?

Hi all! I have a question for those of you who have take the Breo product: A friend of mine asked me if it was normal to have the sensation that the device doesn't deliver the doses when the dose count falls below 10. She said she has been on this …

0 Votes
45 Answers
COPD & Age: Is there a "typical" age?

It's the insidious nature of the disease that fools and misleads everyone isn't it! At 40 or 45 I would have laughed if anyone said I had a problem with my lungs - I considered myself very fit, did lots of hill walking, a very physical job, had great …

Author: Janina K
0 Votes
6 Answers
Inhalers/Medication

Has anyone had any positive experience with a particular type of inhaler. I have on the low side of moderate COPD and have been using a Breo Inhaler for the last several years. It hasn't made a difference whatsover in my breathing. It's still hard for me …

Author: JonDaniel
0 Votes
15 Answers
Anyone up for another puzzle?

#3. Where's the "b"eef?

Author: edpe77
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.