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Purchasing Home Oxygen Concentrators and Bi-pap
Always purchase on the internet but from a business that also has a physical store. A lot of companies on the internet carry no inventory and just dropship. Check out sites like First medical for oxygen and CPaps.com for CPaps. Also check out what they …
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what is the best way to cope with frustration when your breathing gets worse?
This is a great conversation and one that's so important! I think we can look at COPD frustration in two major ways. short term and long term. You may have frustration over the fact that you can't get from "here to there" without running out of air...or …
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Questions regarding the Pulmonx Zephyr valves
You can view a full list of centers offering the Zephyr Valve treatment here - https://mylungsmylife.com/patient-treatment-centers/
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What Would John W. Walsh Do?
Thanks for posting this Fabiana. I have one of those bracelets. As it relates to the COPD community John would ask as many people as possible to get involved and make their voices heard. Whether through advocacy efforts, getting involved in COPD360social …
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How can I use my jewelry making into a fund raiser?
Hi Caroline, Etsy would definitely be an option. I have been on Etsy since 2009 and have two shops there, though both are temporarily closed while I try to keep up with a heavy freelance workload. One downside to Etsy is that there is overwhelming …
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Songwriter and COPD Patient brings COPD Awareness through music
New song https://www.youtube.com/watch?v=G-xVkrpFf6k&feature=youtu.be
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Would a series of exercise video blogs be helpful for people who live in remote areas ?
Hi, I believe the COPD Foundation's Pulmonary Education Program (PEP) utilizes videos from the "Sit and be Fit" Series. I believe these exercises are good for those with limited mobility or beginners: https://www.sitandbefit.org/ I'll see if one of …
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Looking for Friends =)
Stacy there is a free test thru the mail confidential that you can do from your own home. I have done it myself being so many generations of asthma in my family. You e-mail them give them the information they will send it to you and you do the test 3 …
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Will SeQual Equinox work for someone in advanced stages
My partner / husband has Pulmonary Fibrosis which is obviously different than COPD but they share many characteristics. I got here by way of Google looking for information about portable oxygen concentrators and continuous flow vs pulse dose. My partner …
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Breath Training Explanation Please!
I found this site to be interesting: Natural Breathing Gently and slowly inhale a normal amount of air through your nose, filling only your lower lungs. (Your stomach will expand while your upper chest remains still.) Exhale easily. …
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What written forms & samples have you found for organizing medical information?
I'm attaching a checklist and action plan that's on my website, as well as the sample emergency information card that I have customized and carry in my wallet. The information is from a fake patient with the form that can be used to complete (or modified …
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Advice please
What you heard from the pulmonologist is not absolutely certain-sure true, but given those spirometry results (that's the breathing test you were given the results of) and what was shown in the CT scan, that's exactly what I would have told you. Your …
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What do these exercises do to help me with my COPD
Wow!! I am posting a link that proposes we stay fit while traveling. No equipment is necessary for any of these exercises. My goal is to work up to about half of the warm-up and then add one or more of the other exercises per day. If I am not back on for …
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What are some Recent Articles and Materials about COPD in the News?
It's easy to feel that COPD doesn't get nearly enough press. Let's post articles about COPD here. Bonus points if they explain COPD in a positive light and are helpful.
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Brachiecstasis
I was diagnosed with COPD several years ago and was told I had emphesyma. I was a former smoker who only smoked lightly and quit 45 yr. ago but asthma runs in my family. About 2 months ago I was diagnosed with brachiecstasis. I have mucus in my lungs …
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Integrative Therapy--Scientific Links for COPD, etc?
I am a member of the Integrative Therapy Special Interest Group of the American Thoracic Society (ATS). Our group has a website on the ATS and would like to a few select scientific websites for complementary, supplementary, integrative therapies for: 1. …
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Support Groups
Rolando, Another COPD patient and I started our own very casual support group a few years ago in Central Florida - we called it the "Lunch Bunch Group". We didn't have a set schedule, but met occasionally and in various restaurants in the Central …
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Check in – Clowns to the left of me… 😊
Good afternoon! I mentioned yesterday that I would be posting my Tuesday Tunesday song on today’s check in. I have to tell you that there are few songs that really amuse my kids when we hear them on the radio or better yet, if they play while we are out …
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Restaurants and covid
I agree with everyone who has commented thus far; eating inside a restaurant is still high on the list of risky activities for us. I’m still avoiding groups of people, even when outdoors.
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neck gaiters for COVID protection outdoors: pros/cons
If I've missed something already on this, I apologize -- couldn't find it in a search... I try to still walk outdoors regularly because I live in a small apt. and of course am not going to go to the gym. Masks, as you all know, are tough to wear and …
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What Great New COPD Resources are YOU Aware of?
I don't think they need to include anyone in the video to make a powerful point. It would have been more powerful if they had left out the testimonials, actually. Despite some outliers (ie, the 9/11 firefighter), the other testimonials played into the …
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Coronavirus ranking
Attributing virus for death is not right because our life is essential for virus survival. they can replicate only in living cells. killing a patient is suicide mission for virus itself. the other thing to blame is the our own immune response and turns …
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What to talk about on radio show about COVID & COPD?
It’s difficult to addmuch without knowing the demographics of your audience or what your messagegoal is. Personally my goal would be different if the audience knew that I was a COPD patient and advocate versus unknowing listeners. Can you elaborate?
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What are the possible dangers in leaving your oxygen turned up too high?
Hi. I heard about a condition called “hypoxic drive.” I also read something from an article about that. The target saturation is 88-92%. “Patients most susceptible to oxygen-induced hypercapnia are those with the most severe hypoxemia. How can oxygen …
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How can you tell if a clinical trial is legitimate?
One of the most reliable resources in determining whether a clinical trial is legitimate is to go to: https://clinicaltrials.gov/ . This is run by the National Institutes of Health and lists over 100,000 clinical trials. I also found a very good …
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