COPD360social welcomes new member Jmat75 who joins 59,198 current members of our community. Weโ€™re glad you're here!

Jackie Paper

Jackie Paper

Wow this site is awesome, been here 5 minutes and have found out more about portable oxy than 6 months surfing the web.
Keith

4 years ago

Angela Bear

Angela Bearanswered the question Do you have a question on the ketogenic diet?

Hello! Where can we find the podcast? My best friend's husband has COPD and is looking to try the keto diet. Thank you so much.
Kristen WillardSara LathamStephanie Williams, RRT (COPDF VP of Education and Engagement) also answered the question Kristen Willardand 2 others also answered the question

4 years ago

Jackie Paper

Jackie Paper

Is anyone using trelegy, If so what is your opinion of it.
Keith

4 years ago

Jackie Paper

Jackie Paper

really interested to hear from anyone who has a portable personal oxygen concentrator.

4 years ago

Jackie Paper

Jackie Paper

Hello puff its Keith from COPD.net
Just jumped over to COPD foundation.
User name: Jackie paper ๐Ÿ˜

4 years ago

  • Jackie Paper
    I'll have to keep the time difference in mind Bob, and yes this site feels slicker than the other one, which I felt was somewhat dated.
    For one I can post a mug shot with ease, which is important to me because I like people to see who they are chatting to, and I also like to see who I'm chatting to.
    I haven't had that much of a look around yet, but that will come. Keith4 years ago
EmmaDee

EmmaDeeanswered the question No one seems to know.

I think I know what you mean. I feel it as heavy air and more difficult to take in. As 2cents said it feels thick. I find it harder to breathe outside in the Texas summer because of the humidity which feels thick and heavy to me.
2centsAnonymous also answered the question 2centsand 1 other also answered the question

4 years ago

loukat

loukat

Hi Friends, just letting you know surgery was successful but they kept me in hospital for 6 days due to a high fever I had the day after the surgery with IV strong AB to ensure there was no infection with the heart valve.  I'm back at home now ๐Ÿ˜„ and a lil sore lol but all is good.  Glad this is finally over!!!  Cheers, Loukat๐Ÿ˜ธ

4 years ago

Jkress

Jkressanswered the question Iโ€™m afraid to go to the doctors

should say bleb not blende
AnonymousAnonymousAnonymousand 2 others also answered the question Anonymousand 4 others also answered the question

4 years ago

Anonymous

Anonymous

I am sure not going to miss the heatwave we are in here on the west coast ,omg had my wife drive me around because thats the only ac thats working lol.

4 years ago

Cutecat

Cutecatasked the question: Last stage of Emphysema?

I was wondering how does it look like at the end? More specifically, how does a patient with severe emphysema die? What causes the death? I searched online but found nothing. Online everywhere it said that respiratory failure is triggered by something …

4 years ago

Jean IA State Captain

Jean IA State Captainanswered the question Are the inogen poc any good

I have two; they're reliable and work well. Depending on your O2 needs they can be great or not good at all. It depends on what you need.
lynn3 also answered the question lynn3 also answered the question

4 years ago

Amanda 521

Amanda 521

Just diagnoised with emphysema, they only did a chest xray, doctor said since im not having any issues just quit smoking, buy now I find myself having panic attacks, and does this cause rib pain?  Im only 38

4 years ago

  • das23Hi Amanda 521.... Welcome. I would suggest seeing a Pulmonologist. A chest x-ray isn't enough for a complete diagnosis.  I was just a little older than you when I was first told I had a "little" COPD. I wish I saw the Pulmonologist then. You don't need to be afraid. You're still young and can keep it from progressing or at least slow the progression down. BUT. You NEED to QUIT SMOKING. With the proper care you should have a long, active healthy life. You will lots of support here. Good Luck4 years ago
John Stratton

John Strattonasked the question: Are the inogen poc any good

po

4 years ago

Bman58

Bman58asked the question: No one seems to know.

No one seems to know what I am talking about. I have COPD and I am on 1 1/2 L of oxygen. A lot of times, especially when I get up from bed or get up in general. When I breathe, seems like I am Breathing humidified air into my lungs. I described it to the …

4 years ago

Britt05

Britt05

Hi All!
Im new to this site. My mother is 57 years old and was diagnosed with emphysema at 34.  She stopped smoking immediately and things had been okay for years. Obviously, she had some bad instances of "asthmatic" flare ups (as the doctors would classify them) and then eventually was put on meds for her breathing issues. Recently her COPD/emphysema has been taking a turn for the worse and my grandmother died of this disease at 58, so its a bit scary. 
Since THIS February, she has been hospitalized for pneumonia and sepsis FIVE TIMES. She just went back today for that 5th time.  Her pulmonologist is the only in the area and is awful to her. She tells her she is fine and refuses to categorize her COPD as severe and tells her that she is overweight and this is why this keeps happening. Lets keep in mind my mother is barely overweight and yes she is not "fit" but this is clearly her lungs giving up on her. Each time this happens, she is rushed from her primary care or an urgent care center to the hospital and this last time, she was lucky she made it to the hospital in time as lactic acid levels in her system were almost fatal. She was kept in the hospital 6 days and then sent home again. The pulmonologist again... said she was "fine", her lungs are clear and was going to send her back to work the next week. She can not even walk to the bathroom without complete exhaustion. This afternoon I receive a message from my mother that she is back in the hospital again with pneumonia and has gone septic again! 
So, I guess where I am going with this, is what would you do if this was your mother? I am a mom of three very young children but trying to help my mom out the best I can. I feel like there has to be some sort of advocating I can do for her but I know nothing about COPD and how to approach any of this. Especially since its not like I am her mother and can attend her doctors appointments with her to make sure she is being treated right.&nbs

4 years ago

Jimmy S. California State Captain

Jimmy S. California State Captain Back to HOT weather here in northern California. ๐Ÿ˜ŸFor people with the chronic obstructive pulmonary disease (COPD), summer heat is not only uncomfortable, it can lead to dangerous complications. Extreme heat and humidity can worsen COPD symptoms, including shortness of breath and bronchospasms. The body is always working to try to maintain a normal body temperature,
which is about 98.6 degrees F. When we are exposed to extreme weather
conditions, such as during the heat of summer, the body must expend
extra energy to try to cool itself down in order to maintain a normal
body temperature. This extra energy requirement causes the body to demand more oxygen. If
you have COPD, you are already using much of your energy just to
breathe, not to mention everything else that you do during the day. So
itโ€™s not uncommon to experience a greater level of shortness of breath
when you are exposed to extreme temperatures. Your body is being forced
to use more energy while it struggles to maintain your body temperature. So try to: Wear Appropriate Clothing and Sunscreen, Plan Your Activities Carefully, Stay Cool, Use the Buddy System, Avoid Excess Activity, Take Your Medications as Directed, and Pay Attention to Weather Reports.๐Ÿ˜ŽSummertime can be a wonderful time to increase your time outside and
exercise, both important for your quality of life. Yet taking a moment
to consider safety in the heat and humidity is paramount. Keep in mind
that your fluid needs can increase dramatically with heat, and
dehydration can occur rapidly. Taking the few simple steps above may
help you enjoy these months of summer to the fullest.๐Ÿ˜Ž  Have a nice day and even better week.

4 years ago

Lovesacowboy

Lovesacowboy

Hello everyone! 
I read my (new) lung doctors notes online and it said stage 3.  When I was in the hospital, an elderly doctor said to a nurse, "there are 4 stages to COPD and she's in 5 !!"  He thought I was asleep... That has depressed me for the month I've been out of the hospital until today.  I have bounced back stronger than ever.  Only sleeping with oxygen at night.  I'll take stage 3.   I'd like to punch that other doctor right in the nose hahaha. Guess I showed him. 
Have a wonderful day all!!

4 years ago

BonBon

BonBon

Hi everyone, I had a doctors appointment a few days ago & not a pleasant one.  The doctor listen to my heart & lungs then asked if we could do some tests.  I started to protest but he stopped me before I could say to much & he said its very important....(if I had it to do over I would have said NO).  They drew about a gallon of blood (it felt like that...lol)...Xrays, EKG & a few more things.  After& an hour wait, he walk back into the room with a worried look on his face (and I thought this is not going to be good news) & I was right.  He passed me all the test results, I reviewed them all & I knew what he was going to say....I said END STAGE & he quietly shook his head yes....I think he took it worse than I did.  We all know that news is coming sooner or later....right???...I have put up a valiant fight all these years & will continue to fight until my last breath.....I will be here as long as God wants me to be here.  PLEASE DO NOT SAY YOUR SORRY, I DO NOT WANT PITY.  I may be around for years yet !!!!!!!  

4 years ago

Jimmy S. California State Captain

Jimmy S. California State Captain Good Morning and Happy Monday everyone. I hope your weekend was a super good one. I had a really good one myself. I was introduce to a new church last week and i was able with Gods willing to go again yesterday. So remember: โ€œDon't let yesterday take up too much of today.โ€ ๐Ÿ˜Ž 1. Remember to take your medications this morning. 2. Try to stay hydrated best you can. 3. Pace yourself, slow wins the race with our disease. 4. Practice your pursed-lip breathing 5. Exercise best you can. 6. REST WHEN YOU GET TIRED. 7. Have a nice day and breathe easy my friend. ๐Ÿ’–๐Ÿ˜Ž๐Ÿ™

4 years ago

Meagan Dixon

Meagan Dixon

Hey Copd Fam,
                            My moms spirometry test score stayed the same. FVC 33/ Fev-1 15%. ๐Ÿ˜ฉ

4 years ago

Jean IA State Captain

Jean IA State Captainanswered the question Is liquid oxygen taken orally good for my mum

Liquid O2 is to be inhaled. It cannot be take orally as it would kill you. It's way below 0 so it would freeze all tissue on contact. I think you must be mistaken about what is actually ingested. Please check with the doc and find out what he's actually …
Ben A also answered the question Ben A also answered the question

4 years ago

Shanaaz

Shanaaz

Please let me know if there is any palmonary rehabs in south africa, johannesburg

4 years ago

Shanaaz

Shanaazasked the question: Is liquid oxygen taken orally good for my mum

mum says it burns her tummy, the dr that gave it to her said it will burn...

4 years ago

Meagan Dixon

Meagan Dixon

Hey Copd Fam! 
               Happy Fatherโ€™s Day to all the dads!!   My mom goes for another spirometry in the morning.  Curious if they were right when they said they didnโ€™t believe her score.  Which is why sheโ€™s doing it again.  Her Fev-1 score was 14%.   Guess we will see.  Iโ€™ll update tomorrow with what happens.    Hope everyone is doing good.  Sending my love and support  ๐Ÿงก

4 years ago

Sharkup

Sharkupanswered the question Will SALT booths help long term with COPD episodes?

Iโ€™ve found that salt spas or therapy is extremely helpful. There are all kinds around me in charlotte Nc. Iโ€™ve been to some that are just booths and you close it and sit for 30 minutes not that great... But others are actually like a sauna with cedar or …
Jean IA State Captainaliingreenvalleydas23 also answered the question Jean IA State Captainand 2 others also answered the question

4 years ago

PamK

PamKanswered the question Second CT Scan - Very Upset

thanks Jean. I will try this is all new to me. I was only diagnosed in December 2018 COPD/emphis
Jean IA State CaptainAnonymous also answered the question Jean IA State Captainand 1 other also answered the question

4 years ago

MelanieJane

MelanieJaneasked the question: Will my Dad improve after catching a cold?

My Dad has had COPD for several years but it has always seemed mild. Just recently he caught a cold and now has been sick for weeks. He has laryngitis and constant phlegm. Unfortunately, he lives alone and is also in a different country to me so I am …

4 years ago

Misty 1979

Misty 1979

Hi im new trying to make new friends i also have copd im 40 

4 years ago

PamK

PamKasked the question: Second CT Scan - Very Upset

I had my second CT Scan last Friday. My first was the first week in May 2019. The radiologist report says several of my nodules have increased in size to 10mm. It also said indeterminate for malignancy. I am very scared. What does this mean? I am …

4 years ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.