Have you seen this article about research that relates to future COPD treatment at this website? https://www.pennmedicine.org/news/news-releases/20...

I am a COPD patient. I can think of no reason why I would not want to be involved with the COPD PPRN. It is a network of COPD patients or individuals at risk who have agreed to share their health information and the impact the disease has on their …

Can you help us understand how new lung cancer screening may impact the COPD Community? New recommendations suggest that a group of people who are at high risk for lung cancer should get yearly chest CT scans and in February Medicare announced they would …

The COPD10usa conference is less than a week away! Follow this thread on Friday July 28, 2017 and Saturday July 29, 2017 for real-time updates on the conference and the patient workshop.

Thanks for your insights!! We will definitely make sure that the research teams are aware of your concerns.. With surveys in general sometimes the questions asked may seem like they don't quite fit with the person taking the survey, and that is in many …

When joining a research registry, what is the process like? What kind of commitment is there? What, if any, is the difference between joining a registry and participating in a study? Does one have to go to the doctor more frequently? Is there …

OK, any more questions about the Long Term Oxygen Treatment Trial? I've received some from several people--Bonnie, Bob S. Mike H., Bruce M, and Jean R. Anyone else? I'd like to have as complete a list as possible so that the authors and NIH can …

The COPD Foundation will participate in the COPD National Action Plan: Tracking Our Progress meeting, hosted by the National Heart, Lung, and Blood Institute on November 13, 2019, at the National Institutes of Health in Bethesda, Maryland. I will be on a …

We want to bring several research and survey opportunities to your attention. For those not yet diagnosed : Animportant study is under way to test if current and former smokers who havesymptoms of COPD, but do not have evidence of airflow obstruction on …

Debbie posted this last week as a comment. I'm re-posting it as a question, to make it easier to find again. It is both very technical and informative. While meant for clinicians, us patients can gleam vital facts from it that can improve our state. It …

On June 18 and 19, 2019, COPD champions will converge in Washington, DC for two days of training, relationship building and advocacy. IMPACT COPD includes an interactive training workshop, networking opportunities at an evening reception, and visits with …

I'm going to be at the American Thoracic Society's annual meeting. I've already been asked to see if I can get any new information regarding CDB oil and COPD and stem cell treatments for COPD. I will be attending a meeting on O2, and will certainly be …

Join the COPD PPRN and complete the Pulmonary Rehabilitation Survey Today! The COPD PPRN, the COPD Foundation’s patient led research registry, has developed a survey on Pulmonary Rehabilitation to capture who has been offered Pulmonary Rehabilitation, …

Well that's good to know  omega-3 by beef and eggs which I can eat. Didn't know that. Tuna isn't the best the cans look all mushy. I like tuna in the packages but they are expensive.  Salmon in can I like too. I also tried flaxseed and seemed to have a …

I attended the conference in San Diego as did Jean Rommes, Jaimie, Cara, Karen, plus over 16,000 doctors and other healthcare professionals. This is a place to share highlights of what we learned

If not do it today!  Help us, help you find a cure for COPD! Once you join the COPD PPRN come back and LIKE this Question.  I also encourage you to share your thoughts about joining the PPRN. The COPD PPRN will be the  …

With hopes that these advances will apply to COPD. https://www.theguardian.com/science/2017/aug/27/anti-inflammatory-drugs-may-lower-heart-attack-risk-study-finds?CMP=fb_gu

Watch this video to learn more - https://www.youtube.com/watch?v=SNZYk7SOfMs

Does anybody know if any of the money in this research bill, signed into law this week by President Obama, will go towards, either directly or indirectly, lung research?

Most of you know that I sit on the ATS PAR Council representing EFFORTS. EFFORTS is sponsoring this webinar along with the Council and ATS next Wednesday. Dr. Robert Sandhaus, a highly respected pulmonologist with many years of experience with COPD, …

Many of you know that I'm doing a little research project on the ways that insurance companies are making meds available to us (or not).  I will be reporting on this research at COPD9 in Chicago, and I want to be able to tell some of the things that …

There has been much mention lately about the PPRN. Who can sign up for this and be a part of the database?

Hi All, I'm coming over to run the New York marathon this year as part of my yearly awareness campaign.Being from Australia I'm not fully aware of all the issues in the USA relating to COPD, other than the fact more funding for research will never …

There is a huge disparity between the number of people living with COPD and the number of people enrolled in research studies. For some, when they think of research, words like “guinea pig”, “lab rat”, etc. come to mind. What fears do you have about …