Last July I suffered my first exacerbation. I saw the VA Pulmonogist and he put me on 3 lpm oxygen. I was completely depressed and still have days where I dwell on dying instead of living.
My sats have improved over time and I can usually get by with 2 lpm. I’m supposed to be using O2 24/7 but I do experiment with not using O2 at all when watching tv or just short walk to the bathroom or kitchen. I can maintain 90-95% readings.
I live in Florida but my Son lives in upstate NY. Can’t afford to move so I thought I would purchase an RV and take my time and my canine buddy to make the 1200 mile trip. I used to drive straight through but there’s no need to rush now. I’m so focused and obsessed with thoughts of having another flare up. Who do I call? Who will take care of my little buddy. Can I call 911 from my cell phone? Where does the motor home go?
I was just approved for a loan that will allow me to buy a nice RV I can stay in for weeks. BUT, I’m afraid to wonder off too far from my safe place.
I’m 73 and aside from copd (severe) I have no aches no pain and still maintain a healthy weight. Haven’t smoked in four years.
Last week I was congested and didn’t feel well. No fever but I had no strength and my sats dropped like a rock using a portable Inogen. Switching to the VA supplied liquid oxygen.
I immediately started using my nebulizer and stayed on my spiriva and symbicort. I wasn’t keeping up with before that.
My sats are now back to My normal range but I’m still hesitant about traveling. I used to be fearless and now I think someone put Kryptonite in my pockets.
I don’t like this. I don’t like being af