HI. Medical history of Kidney cancer. Removed Nov 2021. Sept 2022 I got very ill with a respiratory infection. After that I started having “attacks” heart was checked. Gastro checked. Tons of scans nothing showed anything. April/May I was diagnosed with allergies. Given oral meds and trellegy.
Things were mostly fine. I got sick in sept/Oct again this year and after that I’ve been left with severe dyspnea. I’ve been to the ER multiple times. I’m on allegra. Trellegy. Azelastine. Flonase. I did three weeks of prednisone. I have a nebulizer although I for some reason get worse after using it.
Even my emergency inhaler doesn’t do anything anymore.
I had a chest and sinus cat scan. Allergy blood work.
My doctor at that point by rule out said I had eosinophilic asthma even though my eosinophils weren’t that high.
He put me on dupixent over two weeks ago. I haven’t noticed a change yet. But the blood work at my last ER visit showed low eosinophils absolute was 0.1/0-.7.
percent eosinophils was 1.2/0-9.0.
Anything else that was high or low was barely high or low. Lymphocytes were 1.4 when 1.5 is normal. Carbon dioxide was 32 when 31 is the cut off. Anion gap was 4 when 5 is the cut off.
blood oxygen was 98.
But it literally feels like everyday I’m going to die. I can’t breathe. It ebbs and flows but never fully goes away. It doesn’t come on in attacks like last year. I’m just constantly in this state. I can’t do anything physical at all. And it’s getting to the point where I fear driving and hate being home alone ( I live alone most of the time) or worse when I’m home with my young son.
If anyone has a similar experience. If anyone can lend any advice at all or point me in the right direction please do. Im desperate to get my life back.