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9
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Mom won’t wear her oxygen
My mom has end stage COPD needs oxygen any time she ambulates. Can people post links to backpacks and bags that work for them to carry their concentrators around? She is little now and only weighs 112lbs. She has lost 48 lbs in the last two years. I …
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15
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Fun Friday Wacky Wordie Puzzle
14...Just Under the Wire 6...I am over the moon
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7
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Abnormal results on PFT
Hello everyone! Just joined the group. Here is my story: since the last weekend in July, I have been battling breathing problems. It happened overnight-literally woke up and felt very congested. Per a covid antibody test, we think this might be the …
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3
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Running in a treadmill with one lung
Hi there - I have one lung (my left one was removed 3 years ago as a result of metastatic bowel cancer). I am a really keen runner and always was prior to being diagnosed back in 2013. I have run a few marathons and try to do my best now to hit the …
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7
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CT Scan Question
I have COPD. My pulmonary doctor wants me to get a low dose CT Scan because I am a former smoker I quit 4 years ago. Can anyone tell me what the difference is between regular CT Scans that I get all the time and this low dose CT Scan.
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1
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Is it a good idea to use a respiratory muscle trainer device post zephyr placement?
Just wondered if anyone had any experience with this combination.
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3
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The Benefits of Tracking Exercise
Spring is here! In many parts of the country, the weather is warming up and folks are ready to start going outside again. Some people tend to do more activity when the weather is nicer, since cold air can sometimes cause COPD to flare up. Do you notice …
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Check in – Benefits of Pulmonary Rehabilitation Down the Road
This month at the COPD Foundation we’ve talked about exercise, physical fitness, pulmonary rehabilitation (rehab), and nutrition. We’ve looked at: Options for starting a simple exercise program if you are very short of breath and/or deconditioned (out …
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6
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All Day Chemist
I would go ahead and use them and pay attention to whether they are working. Here's some info: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC70402... "to see if the medication could be used even after the expiry date without losing the efficacy. Most of …
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2
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When to use RESCUE PACK?
Hello everyone! My husband was recently diagnosed with bullous emphysema. He currently has a cold. He has green colored mucus and feels fatigued. His pulmonologist has a prescription for prednisone ready for him at the pharmacy as his rescue pack. I’m …
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2
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Every 5 years new oxygen machine??
I have Lincare that supplies my large oxygen machine and a Poc oxygen. Thid year was the 5 year year where Lincare was to replace old machines with new machines. The big oxygen machines seems to be working fine. The POC when the guy delivered it bever …
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4
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Oxygen needs increased so much in six months
I was on 2 L for three years and then in the past five months I’ve gone from 2 L up to 6 L and doctors can’t figure out why. Has anyone else experienced this
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2
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Interstitial lung disease
I was diagnosed with COPD several years ago. I'm not on inhalers or oxygen and feel pretty good:) However after a chest xray, my pulmonologist spotted an area that she said looks like some sort of interstitial lung disease, but said it's probably NOT …
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1
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Check in –How Can Caregivers Help with Exercise and Pulmonary Rehabilitation?
Always check with your doctor before starting an exercise program. This month at the COPD Foundation we’re talking about exercise, physical fitness, pulmonary rehabilitation (rehab), and nutrition. A recent check in focused on options for starting a …
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9
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Does anyone take a Supplement for COPD.
i read thst taking a vitamin supplement helps Copd. Like vitamin c, d, magnesium, omega 3s, zinc and selenium. There is an all natural, Bright Lungs. Has anyone tried any supplements?
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7
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After showering do you get physically sick and shaky?
I have a hard time in the shower even with oxygen. But when I get out I get physically sick, and super shaky. Never seems to last long especially if I can lay down and get something that will settle my stomach.
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9
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What about this activity at our next group meeting?
We have a winner for sure! For those who don't know the song - here it is: Stephanie, I'm guessing berets are optional?
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5
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Check in – Does it Matter What I Eat?
This month at the COPD Foundation we’re talking about exercise, physical fitness, pulmonary rehab, and nutrition. There’s a lot we can talk about relating to nutrition and COPD, but today we’re going to focus on aspects of nutrition that may directly …
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5
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The high cost of medication
My doctor suggested Daliresp. for inflammation.
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6
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pet owners do u sleep with your pet ?
my husband has copd , i know i have to keep his bedding clean so we dont let cat get in the bedroom, and we own a long hair cat , so i want to know how everybody deal with your pet , i feel sorry every time i shut the door on him
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5
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A little food fun for Saint Patrick's Day!
I will have to try this. I have a fondness for both brussel sprouts and grilled cheese sandwiches. Yum! I already make the spinach avocado pasta.
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20
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How about a Little Sunday Fun...?
C2 Different worlds. C3 Degree of excellenc
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3
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Dad’s SOB
Hi, I just want to say I am so happy that this community exists it’s been very helpful to read all the info and see other people’s journeys. My dad is 74, diagnosed with moderate Emphysema last year, in June ended up having a heart attack and a stent …
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4
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I have been diagnosed with a fungal infection in my lung. Has anyone else been diagnosed with this?
I have been diagnosed with a fungal infection in my lung. Has anyone else been diagnosed with this? If so, what has been you experience? Also, I was prescribed a drug that cost $1414.00 per month after insurance. What were you prescribed? Any information …
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2
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Harmonicas for Health - Have you tried it?
Did you know that one of the best tools someone living with COPD can have in their toolbox is the pursed lip breathing technique ? To practice pursed lip breathing, you take a deep breath in through your nose while counting to two, and then pucker your …
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