0 Votes
1 Answers
COPD, COVID-19 and working in public

I'm having a difficult time recently as I have had a few exacerbations with a few trips to the ER. On top of my COPD, I have Factor V Leiden which makes me prone to DVTs and PE which I've had about 10 episodes with. Up until now, I was fortunate to find …

0 Votes
1 Answers
THC for COPD??

Has anyone had any experience with the use of THC to ease anixety and slow down the heart rate associated with exasperations. Said to be a good anti-inflamatory also.

Author: Shebang
0 Votes
3 Answers
Does anyone know of a straw type attachment to use with the Trelegy?

I am new to trelegy ( a few months ) and I am having some trouble at times getting the dose due to the fact that at one point I had bells palsy and it still affects the muscles on the right side of my face so I am not able to fully close my mouth around …

Author: Tricia.B
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3 Answers
Check in— What is an Allergy Tracker Diary?

I thought I would share this I don't know how many of us knew the relation of these foods to pollen. I am very allergic to ragweed that must have started already usually its in August. Some these do cause a weird feeling in my mouth. I know I have some …

0 Votes
11 Answers
Am trying to

Am trying to stop smoking and have copd, is it OK to use a vape pen to help.

Author: Kimbo61
0 Votes
2 Answers
Trilogy machine, Insurance help

I am currently using a Trilogy Machine at night, Viemed charges about $1800.00 a month to Medicare Part B after Medicare pays were stuck with $217.00 billed to us every month. HELP !! What plan/insurance do i need that will offset this charge. Along with …

0 Votes
1 Answers
Gummies

I heard some types of CBD gummies and CBD oil improve lung function and lower inflammation. Is there any truth yo this?

Author: Bronco D.
0 Votes
2 Answers
Information please

I’m recovering from an exacerbation taking all the medication the doctor prescribed I do also have atrial tachycardia recently when I get up and move around especially without oxygen my heart rate goes high and my heart actually hurts or my chest hurts …

Author: Goody22
0 Votes
3 Answers
Hi everyone! I'm new here. I need info about a pulmonary lung function test please

I'm just recovering from cancer and chemo treatments. The chemo left me very anemic. I've been having trouble breathing, and the PET scan showed emphysema. I saw my pulmonologist today and the lung function test is November 1st. Should I wait that long? …

Author: Mary555Kay
0 Votes
9 Answers
Nasal Spray as Antiviral?

I know we want to avoid Covid in any way we can, but would the elimination of other viruses in our system cause us to be susceptible to bugs we would otherwise fight off?

0 Votes
11 Answers
Does anyone have the Zephyr Valves implanted?

Shebang, I have been recommended by my pulmonologist and have spoken with the facility in my area that performs them (UAB). I will likely persue further next year. A couple of things that I learned when talking with UAB included qualification …

Author: Shebang
0 Votes
6 Answers
high heat

Does very high heat hurt your lungs when you have COPD

Author: LeBlanc
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0 Votes
10 Answers
What did you do differently before the decline happened

My pulmo 100 miles away won't give me pred or antibiotic to have at home just call me. I tried my pcp here he says call your pulmo. So that's that here.

0 Votes
8 Answers
Foreign Pharmacies

The cos of the medications for COPD are cost prohibitive. Companies cannot help you if you are on Medicare. Has anyone used Pricepro Pharmacy in Canada? I'm wondering how good they are.

Author: Mariann
0 Votes
5 Answers
Chantix - my own experience.

I'm 66 yr old - I started smoking when I was 10. For the vast majority of that time I smoked 2-3pks/day. About Jul 2019 my Dr. prescribed Chantix. Insurance denied it saying I had try "other methods" FIRST. By late Oct I had satisfied those "other …

Author: Bill_NC
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0 Votes
21 Answers
The Medical use of Hydrogen Peroxide

I find it interesting to say the least that there are so many false statements made not through any form of malice just inadequate information. Food grade h2o2 is available in many dilutions right down to 3%, however there is also an even more pure form …

0 Votes
1 Answers
Want to learn about planning ahead and have a little bit of fun in the process?

Take a scavenger hunt journey through the Guides to Better Living . Read through the Advance Directives and Traveling with COPD guides and fill in the blanks. Post your answers below and join in the fun! 1. It’s important to know that shortness of …

0 Votes
3 Answers
CO2 retention /respiratory acidosis

How do you maintain at home if you have a history of retaining co2? This is a brand new thing for us, 3 hospital admissions in 5 weeks totally 18 days inpatient: intubation, bi-level machines, arterial blood gases, etc its been a nightmare. Was …

0 Votes
1 Answers
Itchy rash

Anyone find out that after using a medication for a long time suddenly have an all

0 Votes
1 Answers
Did you miss any educational events or offerings on World Bronchiectasis Day?

July has been an incredible month for bronchiectasis awareness and education. Through the Foundation’s efforts, we have made strides on a global scale to bring more recognition to this lung condition. We hope that World Bronchiectasis Day will inspire …

0 Votes
1 Answers
Bronchial Atresia

Hi again everyone! I hope you are all doing well, staying safe and enjoying the outdoors as much as you can this summer! My family and I recently moved to California temporarily to stay with family while we save up for a house. We figure it’s the only …

0 Votes
4 Answers
My oxygen levels are dropping on the treadmill. This came on suddenly and makes me very nervous.

Desaturations with exercise is fairly common in COPD ( which is why many in the community wear oxygen when exercising). Do the numbers return to normal when you stop? What is happening to your pulse with this? If this is new for you ( that is, you …

Author: Bronco D.
0 Votes
19 Answers
Trelegy - Has Trelegy helped you more than Anoro?

Hello, First time posting but have been lurking for a year. Am stage two COPD and have been on Anoro for a year. Pulmonologist suggested Trelegy today; am new to Medicare and picked my prescription plan to cover Anoro, so Trelegy, of course is not …

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0 Votes
10 Answers
Need help-diagnosed with Stage 2 COPD

I have been a basket case for the 2 months since I have been diagnosed with Stage 2 COPD. Nothing bur worry, Anxiety, inactivity. I'm scared to death i am making this worse. I have stopped smoking for 2 months but need to know I can overcome the worry …

Author: Chip Gould
0 Votes
3 Answers
Follow up tests on my weird symptom

I'm a 38 years male, have a nearly normal PFT (My PFT done today shows pre-BD FEV1 4.12L and FVC 5.8L, DLCO 99%, RV 100% and TLC 107%), I know the ratio is just a little bit above 0.7, but I'm suffering from frequent SOB and low SPO2 (88% ~ 96%, number …

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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.