0 Votes
3 Answers
Flare ups

This can be challenging! Our goal for exacerbations in "Zero". Lots of helpful hints in our educational materials. Go to our sister bronchiectasis site for additional info on bronciectasis!

Author: Aura
0 Votes
7 Answers
Xray changes

I agree you should have a real pulmonary function test. peak flow measurements that you do at home provide some information- but it is not spirometry. Others here have provided advice for negotiating through the nhs system. It sounds like you may have …

Author: JonnyBoy
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2 Answers
Question about Alpha1 Anti trypsin test

Hi, Serum level is the amount of alpha1 antitrypsin present in the blood Phenotype relates to the genes controlling the expression of A1AT e.g I had my serum levels checked, I was just outside of the normal range due to having 1x faulty copy and 1x …

Author: MGomaa
0 Votes
1 Answers
Check In: Did you know that your breathing can impact your brain?

Great tips Amanda....I've used all the breathing tips....my go-to is plb---always a help--even just to relieve stress!!.....i too received many tips from my grandmother---she was the best!!! My other grandmother ( dad's mom ) had such a thick irish …

0 Votes
6 Answers
Essential oils?

If by chance he isn't using a humidifier bottle with his oxygen concentrator, try that first. I was way too slow doing so, waiting until i was at 8 lpm, and it's amazing how much it helps with nasal problems. And it seems like the effect was quite quick, …

Author: PamBar
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0 Votes
4 Answers
Do you get dry eyes from using oxygen?

I am new to using supplemental O2--just a few weeks in--and it seems like my eyes have felt more dry and itchy since I started using it, especially at night. Does anyone else experience this? My prescription is for oxygen with activity and overnight. …

Author: Merry
0 Votes
6 Answers
Copd vems 41%

hello, let me introduce myself, my name is petre, I'm from Romania and I'm totally shocked by the diagnosis made by the pulmonologist after a spirometry which shows a 41% vems, I was given treatment with 2 inhaler sprays spiriva and everio airmaster and …

Author: Peter84
0 Votes
8 Answers
mild emphysematous changes!

Dear Duke14, You seam to bit worried about lung cancer, but you have to understand context. emphysema occurs in lung cancer too, As a result, when you study patient with emphysema, lung cancer rate will be elevated. but doesn't mean emphysema causes …

Author: Duke14
0 Votes
3 Answers
New Diagnosis... Advice on progression..

Hi, firstly I'm so glad to have found this resource, thanks to you all... I've recently been diagnosed with COPD, obviously it's shocking at first, but now I need to do some life planning (family and friends look at me as if I've received a terminal …

Author: 1fatfanny
0 Votes
6 Answers
Check-in: Managing Mucus

great topic, especially as we inch closer to copd awareness month in november as well as cold and flu season. i'd like to add one thing to this conversation of airway clearance. deep breathing and coughing techniques are first and foremost the importance. …

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3 Answers
STAGE 1

What were your symptoms in stage 1 copd when you first were diagnosed?Just wondering...

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1 Answers
Intubation for bacterial pneumonia

Hello all. Im Tracy. Im new here. I am 44 and was diagnosed with COPD at 43. I was intubated in 2021 for bacterial pneumonia and that's when it all started. My life changed. Any other ladies my age diagnosed?

Author: Tracy Anne
0 Votes
11 Answers
Your Opinion: How could your pharmacy better support you?

One of our partners is interested in learning more about the experience of patients in our community. To help them improve their customer service, please feel free to share your thoughts on the following question: What kind of support or information …

0 Votes
2 Answers
How do you keep up energy

i recently was diagnosed with Copd. I know exercise is a good thing, how do you manage to exercise? Between being short of breath and fatigue I don’t know how it’s pos

Author: DennyAnn
0 Votes
3 Answers
Continuing to see pulmonologist after entering hospice care?

Hi all- My 85-year-old mom has severe COPD and severe congestive heart failure. She has made the decision to enter hospice care at home—she is not interested in cardiology interventions. She would like to continue seeing her pulmonologist in hospice, but …

Author: mom93
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2 Answers
SMALL DIFUSSE BEARLY SEEN OPACITIES

Got this news today on follow up x ray.Finger crossed.

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5 Answers
HELLO-is it true that early onset copd carries a worse prognosis

https://www.copdfoundation.org/activity-feed/userid/63309.aspx @hoobs Hi Hoobs, I can only speak for myself, I was diagnosed at 51 / mild (March 2022) with lots of contributing factors:- 30 year pack history / childhood bronchitis / work related …

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0 Votes
4 Answers
Evening issues

I started wheezing in. 2022 late summer was diagnosed with stage 1 copd 102fev1 so super mild one year latter i tell doc in thw evenings i start to wheeze and sob i need puffer.I mean how can a doc tell you last year you will be like this for years as …

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0 Votes
2 Answers
PFT Results-what does "diffusion defect" mean when noted on hospital PFT

For any of the RT's reading these pages: what does "diffusion defect" mean when noted on hospital PFT (done in the phone booth- not the mini test done in a PCP office)?

0 Votes
6 Answers
Hello-i have copd/asma overlap syndromes

Pardon my english i have copd/asma overlap syndromes.I heard this website is amazing for informational purposes.Im 48 now with this and scared i have no idea what to expect. Thanks

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4 Answers
SPIRO TEST - input please

Hello lovely people. Well, had my tests yestetday. It is now official, I have COPD. Although was told its mild i am not so sure i beleive that, numbers seem low to just be mild. My results: Fev1: 70% Fvc: 88% Fev1/Fvc ratio: 63% My numbers post …

Author: DEE777
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2 Answers
Please help me understand my lung test results.

Hello! I am a 25 y/o male. 187cm height and 105kg, not obese but a lot of belly fat. After a few months of struggling with shortness of breath and a feeling like I need to get a big breath every minute I decided to get a body pletismography and a …

0 Votes
12 Answers
Good afternoon just got diagnosed with Emphysema and I’m having a tough time :(

My wise old grandmother often said "we cross more bridges than we ever come to". That is kind of what you are doing. First off a CT scan can tell changes in your lung that might be COPD but it could also be a number of things like results of lung …

Author: Shannon*
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4 Answers
Basics of Phlegm

hi Mark, all of the advice given is great, However I also use a couple of supplements that has reduced my mucus about 80 %, a mix of Fisetin and resveratrol . The other is NAD... I can just say they are a game changer for me. I have greatly reduced my …

Author: mcat43
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0 Votes
1 Answers
FEV1 is 19%

I've had emphysema for at least 20 years or better. My condition has steadily deteriorated over that period of time. I feel SOB with the least amount of exertion. I've been O2 24/7 for about two years. My usage is set at 3 liters. In addition to my …

Author: Mike2024
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