0 Votes
1 Answers
Does anyone have a trembling feeling in their torso?

I have the trembling feeling around stomach or lower or sometimes higher into chest. Others have said they also have it but no one knows what the cause is. It comes and goes with no particular connection to eating or other activity.

Author: Big O
0 Votes
4 Answers
What can my mother take for sleep that won't interfere with her breathing and allergies, heart, etc.

I'm new to the group today. my mom is 68 and has copd 24/7 oxygen. And uses nebulizer and inhaler, takes a few medicines. Benadryl does not work or chamomile tea. She doesn't want to try certain herbs, because of side effects with her breathing problems …

Author: Anonymous
0 Votes
3 Answers
HAPPY VALENTINES DAY!!

HAPPY VALENTINE'S DAY! Do something special for yourself today...take a walk, watch a rerun of a favorite show, look through some old pictures and let the memories flow, call a good friend. Above all, just take a bit of time to count your blessings. …

Author: Uncle Jim
0 Votes
7 Answers
Prednisone and Irritability

When I started getting prednisone bursts (40mg x 5 days with no taper) rather than a prescription for slowly tapering dosages over two weeks, I found my " 'roid rage" and grouchiness to be FAR LESS. Also taking the dosage in the morning, so I can get a …

Author: Jetsey
0 Votes
15 Answers
I'm at 38% FEV1 and even though I quit smoking over a year ago I'm in what is called a rapid decline

Russell, I agree with whoever recommended Pulmonary Rehab for you. Ask your doctor to refer you to a good PR program. That made a big difference for me. Joining a Better Breathers group might help too. I also quit smoking, followed the medication …

Author: Russell954
0 Votes
14 Answers
What happened/was happening the day you decided to find the 360social site- what made you look? t

I was speaking at a conference last week and someone asked me why and when do individuals with COPD or their caregivers come to the COPD Foundation? What makes them take that step to find the COPD Foundation? So I thought I would ask you, the experts, …

0 Votes
1 Answers
How does FEV1 rates relate to stages of COPD

COPD stages

Author: russellp
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0 Votes
3 Answers
Traveling with oxygen... is it difficult?

My mother is an avid camper and has recently started on oxygen for her COPD/emphysema. She has the main concentrator at home and a portable tank for up to 10 hours use. What should she have to take with her for weekend or week long trips?

0 Votes
1 Answers
Any info on hemaglobin c cause false negative in alpha 1 testing?

My daughter is 17 years old. Confirmed stage 2 with CTscan and full PFT's. No history of exposures, genetics testing for alpha 1 came back negative. have known since she was 2 das old she is a hemaglobin c carrier. Does anyone know if the hemaglobin c …

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0 Votes
9 Answers
Are you working toward items on your Bucket List?

With severe COPD comes limitations on physical activities of certain types. In some cases it leads to people giving up on long term dreams. My opinion is that we need to keep, replace or find items we would still like to do and work to do them if at all …

Author: Ken W
0 Votes
14 Answers
high no. on oximeter

I register very high on oxygen/heart rate usually but I am so short of breath that it does not seem to matter what I do, nothing seems to help, any ideas for me?

Author: Kelseytwo1
0 Votes
1 Answers
Is it possible to get nauseous from not wearing your oxygen and then putting it on full blast?

my grandfather walked his dog the other day and became out of breath. Once he got inside he put his oxygen on the recommended level of four. Shortly afterwards he became nauseous and threw up. Could it be from increasing his oxygen levels too fast

Author: AbbyG13
0 Votes
2 Answers
Looking for an 'open' pulmunologist

I am in Canada, but will travel. I wonder if anyone could steer me to a pulmunologist who will not belittle my symptoms, or worse completely pretend they do not exist due to my PFT. I do think they exist, I have tried a few here but my GP said it is a …

Author: eves
0 Votes
6 Answers
Medicare changes on Albuterol prescriptions

I have always been able to refill my Albuterol prescription for Nebulizer for 4 months at a time. Now my Pharmacy will only give me 60 days at a time saying that this is a change by Medicare. Has anyone else run into this situation?

Author: Ken W
0 Votes
4 Answers
How can I get a hair permanent without problems?

since I found out I have copd, going to have my hair done weekly at the salon bothers me with the hairspray. Now I'm due for a perm and wonder if that will be something I will have to give up. Lori

Author: LoriT
0 Votes
4 Answers
FEV1 Levels

Hi friends. When I was first diagnosed with COPD, my FEV1 level was 24%. Today that level has gone up to 29% and I was told it would not go higher than that. My question is, has anyone been told their level would not improve only to have it do so? I just …

Author: tlane
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0 Votes
8 Answers
When does inhaler start working?

How Long does it take for an inhaler to start working. I was recently diagnosed and taking Breo for a month with very little improvement. Is that normal. My pulmonologist also told me to lose 20 pounds in six months which I am seriously working on. Lori

Author: LoriT
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0 Votes
1 Answers
Asbestis exposure and COPD

I had extreme asbestos exposure from 1972 to 1982 because of being a drywall contractor. I also smoked heavily until 1985. Now I am 68 and have COPD. My question is what are the chances asbestos was part of the cause?

Author: hestko
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0 Votes
4 Answers
Oxi meter results, and factors affecting them?

I've herd that smoking raises the O2 readings. I know wet hands appear to dramatically lower O2 readings. This morning, after carrying the junk out {snow on the ground, 30F} I was SOB, on both trips to the curb, did PLB to restore myself. Also it was …

Author: edpe77
0 Votes
11 Answers
Spirometry Test & Anxeity

I have rebooked or am rebooking my Spirometry test my doctor wants me to take. I had an excuse to cancel last mondays appointment as I was moving into a new home. But to be honest im scared of what will be found out. Sounds pathetic I know ... even …

Author: Dino68
0 Votes
5 Answers
Suggestions for a loved one with COPD

My mother has COPD and her doctor has ordered oxygen for her. She is 61yrs old and still working (a pretty tiresome, physically demanding job.) Does anyone have any advice or suggestions from your experiences? She is scared and not sure what to expect. I …

0 Votes
3 Answers
Do i need to get help?

Oxegen sat.numbers have been great for most of a year,Thursday they dropped from high nineties to low eighties, even saw a 77, I'm right now on three liters ox, still low nineties upper eighties. Should I wait till Monday to see doctor or go to ER?

Author: Marko
0 Votes
5 Answers
any one have experience with low cost treadmills?

I'm looking at Amazon's Confidence, Best and Merax. Comments/experience ed

Author: edpe77
0 Votes
4 Answers
Travel Oxygen

My insurance approved a POC for travel, but what is recommended for sleep? My provider says a POC can not support O2 requirement during sleep, others have said it can. What is the real answer? It is not always practical, especially if traveling by air, …

0 Votes
7 Answers
Breathing systems

I have COPD, emphysema , my question is, as strange as it may sound is this. I can hear me making all kinds of noise while breathing. like humming, loud exhales , short breaths with noise . while doing this it seems to make it easier to take breaths. I …

Author: Chrisklees
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.