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0
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3
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Inhaler Costs
I was diagnosed with COPD a year ago and am on two inhalers, Spiriva and Arnuity. I am on Medicare and copays under Part D are very expensive. Coupons don’t apply to those on Medicare. Is there anything in process to encourage manufacturers to reduce …
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20
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Confused About Diagnosis
I feel quite silly asking this question since I never really noticed this. When I took my first spirometry test the diagnosis says "Moderate COPD/Asthma. I'm confused by this. No one ever said anything to me about asthma. Does anyone know what this means …
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5
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Resources for diet
While I have had respiratory issues going on for several years I’m still really new to understanding how to do things for my breathing. One of the main issues I have is dietary. I tend to eat to much. It causes me a great deal of difficulty breathing …
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6
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Anoro Query
Hi Just got switched to Anoro, from Symbicort,after 5 years. I read the backstories on this site from last year on this drug, was wondering about more recent experiences, now that it has been out in the marketplace. Comments? Issues? Dr may combine it …
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12
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What are your COPDCOPE'ing tips?
As some of you have already mentioned I lay my clothes out the night before. I have the medications that I take by mouth in containers that have the 7 days of the week on them. I have a clear one for morning and a blue one for evening. When it is time to …
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I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%
Hi nothinordinary. Good for you with the exercise !! That is inspiring
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1
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The right order for taking a LABA and SABA?
Thanks to, I Think Jean, I am a "Pulmonary Paper" subscriber. This Sept issue has a chart showing the various inhalers available for COPD. But to the point - if you take both a SABA and LABA, you should always take the LABA first, and possibly wait 2 …
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12
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Marijuana
I was recently told that smoking weed is helpful to people with emphysema. Thoughts?
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1
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CO2- retention - How much is too much?
I am totally confused about the standards used to measure CO2 blood levels. One time to the doctor and I’m told my CO2 is at 32% and too high. The “standard” is 25 to 30%. Another time I’m told that my CO2 is within the normal range of 30 to 40%. I asked …
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7
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We know exercise is important, and medicare is cutting back, have you considered just a gym?
We have been talking about the importance of exercise, and COPD. There are specific COPD PT programs, where {at least the one I attended} in-addition to providing a variety of gym equipment, they also monitor your physical stats. For the most part we …
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7
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CT Scan says (radiologist) Mild Emphysema Pulmonologist says NO
I don't have an answer but a couple of things to keep in mind..... COPD is not that easy to diagnose, especially when distinguishing it from asthma. If you were to dig around you would stumble on articles that debate that 70% ratio. PFTs are not perfect …
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3
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Any experiences with ventilators & COPD?
I’m facing spine surgery next week. After a severe fall, I’ve fractured my T9 vertebrae. I’m also a COPD stage 4 patient. Obviously a major concern is the condition of my lungs and whether Or not I can be removed from the respirator after the surgery …
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6
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Breathing Difficulties
Over the last several weeks, it has become more difficult for me to breath, primarily when I am exercising or walking up hills. Over the last week, it has begun to hurt when I breathe. Primarily after I've exercised or been on a long walk or get stressed …
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2
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Increasing O2 Sats With Novel Cannulas?
my dad has Obstructive (not restrictive) empysema. Hes on 6L at night with CPAP and 5L during day with cannula. We are trying everything we can do raise his O2 sats. 2 questions: 1-has anyone tried and had any success with the cannilas with an oxygen …
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2
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6
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Pros and Cons of Lung Volume Reduction Surgery. I have been reading some about this. What is your op
Pros and Cons of LVRS
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5
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Have you participated in Pulmonary Rehabilitation?
Join the COPD PPRN and complete the Pulmonary Rehabilitation Survey Today! The COPD PPRN, the COPD Foundation’s patient led research registry, has developed a survey on Pulmonary Rehabilitation to capture who has been offered Pulmonary Rehabilitation, …
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6
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Shopping for clothes while on oxygen
I recently had a rather bad experience and wondered if this has happened to anyone else. I'm not quite sure if I should lodge a complaint. I was shopping for an outfit at a very well known retailer. This store has 2 locked rooms available, you have to …
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12
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Goal Setting
Have you had a chance to think about what goals you are setting for COPD Awareness Month? I am going to put my goals here in the format similar to the method Jane described on the webinar. I am counting on all of you to keep me accountable :) My goal …
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3
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Where can I get a free or low cost portable oxygen concentrator? I need oxygen at home and for trave
need help with oxygen
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2
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does anyone have these syptoms
normal spirometry fev around88%. .diminished diffusion around 69%. shortness of breath.
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2
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Liquid O2 vs Exchanger
Hi everyone. Does anyone know why I would feel I am getting more O2 when I am using my portable liquid than when I am at home on my Exchanger? I am at a level 6L, but feel better when on the liquid. I do know that the hose is larger on the liquid O2 one. …
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5
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What is November?
I sent to my SD governor on 9th received a note saying was accepted so nothing since sent the secretary a e-mail she said I never got back to her and I did. I sent another e-mail told her I had done many of these never ever had this trouble. Then she …
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7
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Back and chest pain when breathing
Have you ever had a blood clot? The first thing that jumped to my mind was pulmonary embolism. They can come an go on their own with no lasting effect, but I would guess whomever you saw would have considered this, especially with chronic lung disease …
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2
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What help is out there for End Stage COPD?
My Father is in Stage 4 Emphysema & COPD. Diagnosed around 13-14 years ago. No one can prepare you for what this does to your loved one. In the past 2 months there have been ER trips, an ambulance trip, & hospitalizations. He is prone to blood …
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2
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What does a vagus nerve response mean when I do nebulized Brovana?
Sometimes when I am nebulizing Brovana I hold my breath for a few seconds to increase drug absorption. One in six times I will get a vagus nerve response , That is a tingling or fuzzy feeling all the way to my feet. I wonder if this is a good thing or …
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