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1 Answers
Best Function Test Explanation

I find this the most clear explanation yet. Now, to get out my test results and compare. https://tinyurl.com/y46x92yf

Author: netmouse
1 Votes
4 Answers
Have you heard NHLBI's Dr. James P. Kiley and COPDF president John Walsh's radio interview?

Listen here -  https://www.youtube.com/watch?v=6GOs1BKOjes !

0 Votes
5 Answers
How to encourage productive coughing to clear mucus

I am a family member of someone with stage 3 COPD. I worry she is nearing stage 4 very soon. My question and concern is around her very high mucus production and her constant small unproductive coughs which sound like she is drowning in mucus, but I have …

Author: Maebur
0 Votes
2 Answers
PFT Report

Hi, I just had my second PFT test yesterday. I asked for a copy. I do not understand the results. Can someone please explain this to me

Author: PamK
0 Votes
1 Answers
What is a plethysmograph?

Below is an abridged Wikipedia description. We've all used one during our Pulmo function test. Very interesting discussion for those that are just a little curious. I got curious about this because of my new oximeter {described elsewhere} has one for …

Author: edpe77
0 Votes
16 Answers
Can you over due O2?

Hack, You mentioned earlier that you exerted yourself and got into trouble with your breathing, feeling like you had to really dial up your oxygen flow. Something that helps a lot when you're exerting is to do pursed-lips breathing. It really helps so …

Author: hack
0 Votes
12 Answers
Good Days - Bad Days

Hello Friends, How are you doing today? Today’s Wednesday check-in comes from me, Jane Martin. I’ll be filling in for Stephanie for a couple weeks and maybe stopping in after that, too. Are you having a good breathing day – a “good air” day, or a “bad …

0 Votes
5 Answers
Is it really necessary to have a machine if you have been diagnosed with mild sleep apnea?

I have been diagnosed with mild sleep apnea and copd. I tried that cpap machine and cannot handle it.

Author: Cailey
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0 Votes
6 Answers
Should I be getting regular scans

I am looking for some advice to see if my GP is following correct action I am 36 and had a CT scan in 2018 on a broken shoulder. On this CT it was picked up I have mild emphysema which was unusual due to my age. I did smoke but not long term. since this …

Author: Df2400
0 Votes
4 Answers
What Steps Are Folks Taking to Prepare For Emergencies, Evacuations and Power Outages?

Here and now is a good place to write steps you have/will take to prepare for emergencies, evacuations and power outages, as prevention seems a lot better than having to be in crisis mode.

0 Votes
5 Answers
COPD and Air Travel—What Should Be Considered?

So many of us with COPD have loved ones spread across this wonderful world and/or places we want to see, events we want/need to attend. Often flying is one of the fastest ways (sometimes the only way) of getting between distances. What should be kept in …

1 Votes
12 Answers
Holiday Travel and COPD

Hi Everyone, The holiday season is upon us which means more travel to see loved ones. Are you going anywhere this year? Do you have any advice or tips on traveling with oxygen? Do you have any general tips for traveling with COPD? On a side note: The …

Author: Janina K
0 Votes
9 Answers
Dizziness-Does anyone out there have dizziness?

Does anyone out there have dizziness - it happens when I take a smoke but now I notice I can’t even take 2 beer it feels like 4 and I get extremely drunk

0 Votes
4 Answers
Will you share your experiences with being hospitalized for COPD?

I am working on planning a program that aims to help reduce the likelihood that COPD patients will land in the hospital and if you do end up in the hospital, reduce the likelihood that you will have to go back. Please help us understand more about the …

0 Votes
1 Answers
How can I purchase such a protable oxygen concentrator if I'm not in the U.S?

Hi all, My father has got COPD for nearly 6 years, I want to buy him a Inogen G4 oxygen concentrator online, since it it not available now in China. However, it seems much more complicated than I thought: 1. I need a prescription from a certificated …

Author: Zhou
0 Votes
5 Answers
What does it mean if your oximeter reading is 100 and you have shortness of breath?

The oxygen transfer from lung to cell is mediated via blood. The blood is just a reservoir for oxygen similar to u tube which fills when it is low automatically. as the blood oxygen measurement is much easier, it is widely used. water reservoir level, …

Author: Gwynne
0 Votes
1 Answers
FEF25-75 only low score

I recently had a PFT redone because the first one was abnormal. My levels improved in every area on the new test, except my FEF25-75, which had a value of 65. The pulmonologist did not seem concerned but wants me to redo the PFT in 3 months. I’m still …

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0 Votes
12 Answers
GERD & COPD: Your experience?

Hi Janina, Within a year of taking inhaled meds I started experiencing what my former doctor (a P. A.) and I suspected were symptoms of GERD. The only thing I could eat that didn't cause problems were Twizzlers and liquids. I was given a prescription for …

Author: Janina K
0 Votes
1 Answers
Has anyone had hyponatremia (low sodium) from COPD?

If so, once your levels came up, did they stabilize? My mom's sodium levels dropped pretty low to the point where she could not speak coherently. They are going up. I would like to know how they can stay up and stabilize.

Author: Gwynne
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0 Votes
2 Answers
Purchasing Home Oxygen Concentrators and Bi-pap

Always purchase on the internet but from a business that also has a physical store. A lot of companies on the internet carry no inventory and just dropship. Check out sites like First medical for oxygen and CPaps.com for CPaps. Also check out what they …

Author: mvwitty
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5 Answers
what is the best way to cope with frustration when your breathing gets worse?

This is a great conversation and one that's so important! I think we can look at COPD frustration in two major ways. short term and long term. You may have frustration over the fact that you can't get from "here to there" without running out of air...or …

Author: Dennis
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0 Votes
18 Answers
Questions regarding the Pulmonx Zephyr valves

You can view a full list of centers offering the Zephyr Valve treatment here - https://mylungsmylife.com/patient-treatment-centers/

Author: Anonymous
0 Votes
2 Answers
What Would John W. Walsh Do?

Thanks for posting this Fabiana. I have one of those bracelets. As it relates to the COPD community John would ask as many people as possible to get involved and make their voices heard. Whether through advocacy efforts, getting involved in COPD360social …

0 Votes
3 Answers
How can I use my jewelry making into a fund raiser?

Hi Caroline, Etsy would definitely be an option. I have been on Etsy since 2009 and have two shops there, though both are temporarily closed while I try to keep up with a heavy freelance workload. One downside to Etsy is that there is overwhelming …

0 Votes
3 Answers
Songwriter and COPD Patient brings COPD Awareness through music

New song https://www.youtube.com/watch?v=G-xVkrpFf6k&feature=youtu.be

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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.