PELICAN: The Peer-Led Oxygen Infoline for Patients
Posted on March 17, 2016 |
About 1 million people with severe lung disease, most commonly COPD, are treated with oxygen in the U.S. Appropriate oxygen use can save lives and increase quality of life, yet adherence to therapy is poor. In focus groups conducted by the COPD Foundation, patients with COPD and their caregivers emphasized the need for reliable information and coaching on oxygen, such as availability and appropriate use of oxygen delivery systems and social aspects of oxygen use. They expressed a strong interest in getting help and education.
In April 2015, researchers from the University of Illinois at Chicago, National Jewish Health, and LA-BioMed developed a broad-based collaboration with the COPD Foundation, AlphaNet, patients, caregivers, a national oxygen supplier, and others to conduct the PELICAN: The Peer-Led Oxygen Infoline for Patients and Caregivers. The study was designed for adults with COPD who have a prescription for oxygen 24hrs/day, 7 days/week, with the goal of improving the health and wellbeing of people with COPD and their caregivers.
Participants will receive patient-friendly educational material, developed by the COPD Foundation, and receive phone calls over a three-month period.
Interested? From your home, call toll-free a PELICAN study staff member at: (844) 627-5587 Hours: 7:30 AM - 6:30 PM (Central time, Monday to Friday).