Faces of COPD: Elisha Malanga says, “Let’s all work together to make a real impact on COPD.”

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Elisha talks about her role at the Foundation and why research is essential to finding a cure. She also shares with us who inspired her early on, what motivates her now and how together we can have a real impact on this devastating disease.

Elisha feels “privileged” to be the Chief Research Officer for the COPD Foundation (COPDF), which she joined more than 10 years ago. In her current role, Elisha oversees COPDF’s research programs, working closely with “an amazing staff, patients, partners, researchers and clinicians.”

Elisha As Elisha explains, “research is essential to finding better therapies and ultimately a cure for COPD. Working closely with patients to determine their research priorities has been enlightening and encouraging.”

One way that Elisha leads the charge for more research and ultimately a cure is through the COPD Patient Powered Research Network (COPD PPRN). “We have been using the COPD PPRN to recruit for studies and the response from patients has been overwhelming.” To learn more about the COPD PPRN, click here.

Elisha first learned about COPD early on in her career, more than 25 years ago, when she met John W. Walsh, Founder of the COPD Foundation and patient. And she remembers that first impression clearly to this day.

“John was incredible, a presence larger than any person I had ever met. He could motivate people like no one I had ever seen. While I miss John every day, I continue to work to fulfill COPDF’s mission and John’s vision.”

To fulfill that mission and vision, educating the general public is key. “COPD is the third-leading cause of death in the US and the only leading cause of death on the rise.”

But more funding is needed. As Elisha explains, “mortality and new therapies are directly related to research funding. COPD research is woefully underfunded compared to other leading causes of death and I hope that this will start to change so that we can make a real impact on COPD.”

There are many misconceptions about COPD and Elisha really takes this to heart. “The greatest misconception is that the patient could have or should have prevented themselves from getting COPD.”

As Elisha explains, “Many individuals with COPD either never smoked or stopped decades ago when the dangers of smoking were not known like they are today. Empowering patients is essential to finding a cure.”

On behalf of COPDF, Elisha’s main message for someone affected by COPD is this: “We care about you, we have resources for you and we are all working towards finding better therapies for you.”

Small changes can have a major impact. “There are some things you can do now, like exercise; this makes a big difference for each and every one of us all and for COPD patients it’s essential.”

Most importantly, though, “don’t give up hope,” says Elisha. “Let’s all work together to make a real impact on COPD.”

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  • Thank you, Elisha!! And if any of our 360Social members haven't joined the PPRN yet, now is the time to do it - for yourself, for your family, friends, neighbors and co-workers who may have COPD, and to honor the memory of Edna Shattuck who was on the Governing Board of the PPRN. Please join - it's so important!!
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  • Thank You Elisha for all you do, nobody truly understands the people that are behind the scenes pushing for all of us patients and caregivers! "Small changes can have a major impact!" That's a powerful statement. Thank You again. Love Bill66
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  • Thank you! We, the COPD community will benefit greatly from the devotion of people like yourself !
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  • Hi Elisha, I appreciate the personal interest that you, Karen and many others have in overcoming this disease. I believe that we are at a time in history when we can change things if we all gang up together and prevent the disease from spreading. I can go to CVS or Walmart, and pick up a heart monitor. Same for blood glucose. But there is none for lung diseases. why not? At the very least, can they contain the disease before it gets acute?

    Bill, when you say nobody truly understands us, excuse my naivete, please help us understand it better. what don't we get it?

    I think you all have lots of experience on the challenges these patients have. Can you share the persona of typical COPD patients? If they could have some way to measure how good is their breathing on daily basis, won't that help? if not, why not? What am I missing?
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  • COPD It's a horrible disease, some days are good .But when you get an infection everything changes .You not fit to breathe properly and you don't feel like doing anything just staying in bed ,which is the worst thing to do.As soon as you can get up and walk it helps the mussels.Little by little every and your breathing will improve. It's hard to do but it definitely it was the best thing to do then till i saw a video on YouTube of someone testimony how he was cure of COPD by one herbal doctor and i contacted the doctor's whatsapp number that was displayed on the screen and i told him my own problem he send me the medication and now i'm free of COPD disease if anyone is reading this testimony help yourself health is wealth. contact the doctor for more info on drokosunmusa@gmail.com or Whatsapp him on +2349056175191 on how to get the medication. Thanks for reading my testimony .Good luck everyone

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