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Find inspirational stories, tips from the COPD Coach, events, and current news on the COPD community blog. Have a question regarding COPD that you would like to share with our community? Contact our COPD Coach. Coaches Corner is aimed at providing information for individuals with COPD to take to your doctor, and is not in any way intended to be medical advice. If you would like to submit a question to the Coaches Corner email us at coachescorner@copdfoundation.org. We would love to hear your questions and comments.

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Archive: November 2016

Giving To Support the COPD Community

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As COPD Awareness Month comes to a close, the COPD community reflects on the successes we have achieved in 2016.

Strides in research for improved therapies, creation of the National COPD Action Plan, advocacy for improved access to life-saving treatments, and support provided to more than 25,000 members on COPD360social.org - these are just a few ways we have striven to help you and millions affected by COPD.

"COPD360social has been a life-line for me. I have found needed info and made new friends who understand. I no longer feel alone. Thank you all," COPD360social member, Bon Bon.

Take Action for COPD Giving Tuesday Help us be a life-line to others.

Give the gift of better breathing. Your financial support will help us run our research and advocacy programs that will lift this silent epidemic out of the shadows and bring us closer to a cure. Most of all, your gift will allow us to provide our free education and community outreach services to those who currently live with COPD.

Donating is easier than ever before by using our new Apple Pay option! Learn more.

If you are online, leave us a comment or tweet us @COPDFoundation using hashtag #donate on Facebook or Twitter. Once posted, you will receive an auto-reply with a 60-second form to complete the process.

On behalf of the the global COPD community, thank you for helping us create pathways to a cure for COPD. Take action today to breathe better tomorrow.

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Tags: donate Giving Tuesday
Categories: Advocacy Education, Resources and Studies

TAKE ACTION: The Centers for Medicare and Medicaid Services (CMS) Plans to Cut Reimbursement Rates for Pulmonary Rehab in 2017

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The Centers for Medicare and Medicaid Services (CMS) recently announced plans to cut pulmonary rehabilitation reimbursements rates in 2017. The COPD Foundation, along with the greater COPD community and partners in the U.S. COPD Coalition, are joining together to prevent this from happening. Pulmonary rehabilitation is vital for individuals living with COPD- and we urge everyone in the community to take action today to breathe better tomorrow. You can send a comment to CMS by clicking here now. Below find a message from the chairman of the U.S. COPD Coalition, Sam Giordano, MBA, RRT:

According to the dictionary, the definition of a coalition is, "an alliance for combined action." Between now and the year's end, the U.S. COPD Coalition (USCC) has been given a chance to prove the definition accurate.

This is a call to action is to all members of USCC, regardless of whether you are COPD patients, loved ones, healthcare professionals, or friends. As we have known for some time, pulmonary Rehabilitation works and the scientific evidence proves it.

It is not news that too many COPD patients struggle to gain access to the few programs currently available. Due to an already too low reimbursement, there simply are not enough programs to meet the demand from our community. Many programs struggle to remain in operation because of the low reimbursement rates from the Centers for Medicare and Medicaid Services (CMS). Additionally, the low rate discourages development of new programs in areas where access is non-existent.

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Tags: Centers for Medicare and Medicaid Services CMS pulmonary rehabilitation reimbursement
Categories: Advocacy

Today is World COPD Day - Take Action!

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November 16, 2016 marks World COPD Day - a time for all of the stakeholders in our community to work together to educate the world about this silent epidemic. Let’s raise our voices for the 300 million individuals living with COPD worldwide. So few understand what it is like living with COPD- here is our chance to educate and inspire.

How can we take action?

  • Take the Global Disparities Survey - a short questionnaire that will help us paint a better picture of our global community.
  • Share your #GoOrange story by uploading a photo to the COPD360social activity feed. Don’t have an orange photo? Click here to create one!
  • Take Action for World COPD Day
  • Join the COPD community on Twitter for the #COPDChat from 3-4p ET. Hosts from the National Heart, Lung, and Blood Institute, Centers for Disease Control, American Lung Association, and American Association for Respiratory Therapists will be answering questions and prompting discussion around the topic of COPD. Use hashtag #COPDChat to join the conversation.
  • Help shape one of our upcoming studies by participating in a focus group. All participants will be compensated for their time. Click here to learn more.
  • Watch and share the “COPD360: Pathways to a Cure” video that describes how we are forming a community and working together to find a cure for COPD.
  • Watch and share a pre-recorded webinar hosted by the COPD Foundation, Caregiver Action Network, and the National Heart, Lung, and Blood Institute around the importance of COPD caregivers in our community.
  • Download and share any of our COPD awareness materials at copdf.co/Go-Orange.

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Tags: awareness GoOrange World COPD Day
Categories: Advocacy

Join Us In a Focus Group

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The COPD Foundation is hosting a series of focus groups by phone, online, and in person to discuss chronic obstructive pulmonary disease, obstructive sleep apnea and overlap syndrome. We would like to receive feedback from individuals on their therapy and disease management; more specifically, the goal of the focus groups is to outline common treatment barriers. By participating in a focus group you can help us shape future research and potentially influence future treatment options! There will be 4-10 people in each focus group.

Phone and online focus group will last approximately one hour. In person focus groups will last up to two hours. All participants will be compensated for their time.

If you or a family member or friend is living with obstructive pulmonary disease, obstructive sleep apnea or overlap syndrome please call a member of the COPD Foundation team at (866-731-2673 Ext. 210) or email at ebenkert@copdfoundation.org to learn more and sign up for one of the focus groups that will take place later this year!

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Categories: Education, Resources and Studies

Go Orange for COPD Awareness Month

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November marks COPD Awareness Month - a unique opportunity for our community to join together to educate the public about a disease that affects 300 million people worldwide. Orange is the official color of COPD awareness - Go Orange!

John Linnell Goes Orange for COPD Awareness

Join the COPD Foundation by celebrating COPD Awareness Month with our worldwide network of partner organizations, pulmonary support groups, families, friends - and most importantly - individuals living with COPD.

Excited to get involved? Here's how:

  • Take the #GoOrange Challenge by visiting copdf.co/Go-Orange. Submit a photo of you and your friends, family members, and pets wearing orange and share it with our COPD360social community. The photo with the most "Likes" will win a $250 Amazon giftcard;
  • Visit our Events Calendar to find a workshop, conference, Breathe Strong Rally, or Harmonicas 4 Health class in your area at copdf.co/COPDEvents;
  • Download and share our #GoOrange social media toolkit, which includes informative statistics and facts that you can use to educate your friends and family. Use the #GoOrange hashtag to share the messages online with your social network;
  • Tell your story and start a donor campaign to help the COPD Foundation find a cure for COPD! Learn how create a donor page by visiting: copdf.co/COPDdonation;
  • The COPD Digest can now be found online! Read the latest here.

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Tags: #GoOrange advocacy COPD Awareness Month Go Orange November
Categories: COPD Foundation Initiatives and Activities

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