DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Hello and good afternoon. Had to call my immunologist. Mucinex was helping me, but this weather has made things worse. Started feeling like I was only taking half-breaths again when inhaling. So- doing a small Prednisone burst, starting with 20 mg per day, for three days, tapering by 5 mg every three days, until I am down to my daily low dose of 5 mg. Staying on the low dose until I see him on my birthday...27th. 

12 months ago

Jimmy S

Jimmy SGood Morning Everyone.. I hope and pray your having a good day. Hope is such a powerful word with a lot of meaning. Hope never abandons you, you abandon it. Hope is a good thing, maybe even the best of things, and good things never die. Hope means hoping when things are hopeless, or it is no virtue at allโ€ฆ
As long as matters are really hopeful, hope is mere flattery or
platitude; it is only when everything is hopeless that hope begins to be
a strength.๐Ÿ˜Ž  Have a nice day all and remember to stop and smell the roses today.

12 months ago

MissyH

MissyH

Are the scented wax melts off limits for people with COPD? I am wondering if there is anything at all scented that is safe to use. I do miss nice scents like orangenin the house, but not at the expense of health, of course.
My doctor did say no essential oils. I am guessing the wax melts would also be bad?


12 months ago

Caroline

Carolineanswered the question Is a person permanently on oxygen if it is used

Do you have an oximeter to determine the % of oxygen in her blood during exercise?

12 months ago

Margorita

Margoritacommented onQuestions about Portable Oxygen Concentrators

 I am a "newbie" here, and now seems a good time to introduce myself.Reading the questions and comments on this topic of POCs has been helpful, interesting and informative. I just wish to say thank you. I am grateful I found this group. ...

12 months ago

Mrs, Terry

Mrs, TerryGood day to all...   Waking up to another hot sunny one, but not nearly as bad as other areas.. It surely makes for cabin fever for many of us. I sometimes have problems with going in and out (shopping, etc.) of ac to heat. and wind up feeling the old elephant start sitting on my chest.  I should`nt be complaining because winter will be here before we know it.

12 months ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi Wanted to share our project with my friends.  My idea was to take a once upholster ottoman that had been abused by kids and food and drinks over the years and turn it into a beautiful work of art . Made from old fence boards and a couple of peices of live edge pine boards and make this One of a kind peice  of furniture and this is what I came up with and my hubby and I built it .

12 months ago

Stephanie Williams, RRT

Stephanie Williams, RRT

Good morning!
What good apps do you all use to track air quality/pollution on your phones or tablets?  I am comparing a few and am looking for your feedback.  What information do you find to be helpful to you?

12 months ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Mornin y'all 
It's going to be a Hot one here today 
heat indexes from 108 to 115 . Had to cancel my Pulmonologist appointment for today , can't make the car ride without Air Conditioning. Just have to reschedule.  Was going in about my sinuses and I'm sure my Breathing is labored from the Heat and Humidity being so high. Everyone ive talked to is having Sinuse problems,  and for this time of year it's unusual here .Really starting to feel like it's got something to do with the Blue Green Algae that has been a problem this year.  Or the winds have been blowing in from the Gulf could it be the Chemical Corexit they used on the Oil Spill with the heat it has vaporized and is entering the air ? Things that make you go Hum.

12 months ago

Tracey E

Tracey E

I recently got a Trilogy machine.Was wondering if anyone else has one..what you think? Is it helping you? I have noticed no difference. Thanks

12 months ago

Community Announcements

Community Announcements

We have recently noticed that some members are posting their email address on the activity feed and asking others to contact them only through their Email. They might say that they want to discuss COPD or some other topic. This is a dangerous practice in that the person posting their email address could well be a spammer or have bad intentions. Please only communicate with other members through private messaging on the site and NOT by email unless you personally know the person outside COPD360social. Do NOT  for any reason ever post your Email, address or phone number. Do NOT extend that information in any form to other members unless you know the person extremely well. 

12 months ago

Jean IA State Captain

Jean IA State Captainanswered the question I am a victim... I am hunted in fraud.

Many of us have used All Day Chemist in India (www.alldaychemist.com) for years and never had a problem. they don't carry everything, but what I get form them is made by the same pharmna companies that make what I get in the US for much more $$. I can …

12 months ago

heidiweber

heidiweberasked the question: I am a victim... I am hunted in fraud.

I had bought my COPD treatment medication from an online pharmacy i.e 24*7pharmacy. But this online pharmacy is rogue and doing fraud with customers. this pharmacy is not shipping my product. Anyone suggest me? how to find a safe online pharmacy.

12 months ago

heidiweber

heidiweberanswered the question I am thinking about, how to save on my prescription in the USA?. anyone help

you may buy your prescription from an accredited online pharmacy.

12 months ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Anyone Having Problems Getting or Keeping Liquid (or other) Oxygen System?

Well, the oxygen was delivered todayโ€”no idea whether it will be delivered again in another 4 weeks as scheduled.

12 months ago

Ffm

Ffmasked the question: Best Pulmonologist in My Area?

My 87 year old dad (who has advanced COPD/emphysema) needs new doctors because they both just retired (pulmonologist and internist - or maybe a combo). He lives in zip code 10707 (Westchester County, New York) -- can anyone recommend very good, smart, …

12 months ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

In my notifications, is there a way for me to unsubscribe all in a single step. I unknowingly am subscribed to over 2,000 comments. I can't imagine unsubscribing from each one of them individually. I could just leave them but I am assuming its chewing some amount of disc space. 

12 months ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

DebbieB I hope you're feeling better today.  Haven't heard anything this morning from ya.๐Ÿ™

12 months ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Oh my Heat indexes today in Mississippi 105 to 108 and its been raining. It feels like a Sauna out here.  COPD and Saunas and me not getting along.  Stay cool everyone ๐Ÿ˜ฅ๐Ÿ’ฉโœŠ๐Ÿ™

12 months ago

nana1975

nana1975

I have a weird or dumb question, what does it mean when your throat feels like it's dry and sticking, also feels like sand in throat?

12 months ago

Cherthenite

Chertheniteanswered the question Oxygen Bag

I started making Oxygen totes just for this reason, to add some style to the bags we have to carry around. https://www.etsy.com/shop/CherylsCraftyCoStore

12 months ago

Bill Clark - Community Manager

Bill Clark - Community ManagerWe need your help to answer a few VERY short questions. Our Community on COPD360Social has for a long time been expressing their concerns about the side effects of the various drugs they are prescribed by their doctors. Because a person with COPD often has a treatment team of two or more doctors, there is also a concern in the community as to how any new drugs will interact with drugs that are already
being taken.

The COPD Foundation along with
some of our partners are trying to understand how patients obtain information on the drugs they are prescribed and the effect they will have on their COPD treatment. We need your help to answer a few VERY short questions. It will just take a few minutes and your response will be valuable in helping us gain insight into a very real problem.

Please click on the link below to answer the very brief survey; and as always thanks for helping to make a difference!

https://www.surveymonkey.com/r/L8PZQ9B

12 months ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Good morn y'all hope everyone is having a great start to their day. Seems like just about every person I talk to is having major problems with their sinuses around here, as well as myself one word of advice be very careful taking Sudafed it dried my Lungs out causing me to feel like I couldn't breath, the mucus that many of us have with COPD would not come up. Till the Sudafed wore off . So be very leery of this medicine if it is in the Prescription form . Make me feel like I was having a Flare up. Going to Pulmonologist for follow up in the morning. Have a Great day my friends.

12 months ago

LFAOMGA

LFAOMGAanswered the question Dizzy after smoking a cigarette

The dizziness you are experiencing while smoking is the effect it is having on your brain. New smokers usually experience this, as well as people who have drastically cut down on the number of cigarettes they are smoking in their effort to quit. When you …

12 months ago

Jean IA State Captain

Jean IA State Captainanswered the question Dizzy after smoking a cigarette

Death by cigarettes is very slow, debilitating and downright nasty. If you have COPD and you continue to smoke, like will continue to get more and more difficult. If that's what you want, by all means continue smoking. If you don't quit. Getting dizzy …

12 months ago

Chris K - COPDF

Chris K - COPDF

Whatever happened to Veteran? Are you still out there?

12 months ago

Caroline

CarolineI decided to take the lake trail again today.  Sorry my bit of serenity is late, but I go involved with a very delightful lady from the doctor's office and then had to make up the work that I missed.  My pulmonologist was pleased with my progress when I saw him today.

12 months ago

edpe77

edpe77

I just watched Woodstock on American Experience - PBS. While I never had ambition of going, I also didn't understand the significance of it. Essentially nearly 1/2 million kids enjoyed 3 days of peace and music...and each other. Surprisingly, the community pitched in to help feed them when food ran out, All in all a very peaceful concert during some very trying times, just a couple years before the Vietnam war ended. Good watch if you get a chance to catch it.
ed

12 months ago

bobboberson

bobbobersonanswered the question Dizzy after smoking a cigarette

Do not smoke ever again.I quit and you can to.

12 months ago

Katherine58

Katherine58asked the question: Dizzy after smoking a cigarette

does anyone still smoke cigarettes and do you feel dizzy after - I seem to be dizzy after smoking a cigarette then it goes away - is it my anxiety or what Yet when I take my oxygen levels they are between 95-99 I have been diagnosed with copd and …

12 months ago


COPD360social posts are monitored by Senior Director of Community Engagement and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.