September 07, 2016

NEW ORLEANS - September 7, 2016 - New Orleans-area residents who suffer from chronic obstructive pulmonary disease (COPD) will soon breathe easier thanks to a partnership with the Tulane University School of Medicine and the Dorney-Koppel Foundation.

The Grace Anne Dorney Pulmonary and Cardiac Rehabilitation Center at Tulane Medical Center’s downtown campus is named after the wife of senior CBS Sunday Morning contributor and former Nightline anchor Ted Koppel. More importantly, though, Dorney-Koppel is president of the COPD Foundation and a longtime advocate for sufferers of chronic breathing conditions.

“Not being able to catch your breath – and the fear that your next breath might not be coming – is like drowning. Nothing is more frightening,” said Dorney-Koppel, who became a national spokesperson for COPD patients after being diagnosed with the disease herself more than 15 years ago. “Pulmonary rehabilitation is a breathing program based on the highest level of scientific evidence, and it can improve patient’s lives.

August 02, 2016

PRINCETON, NJ - August 2, 2016 - Dynamic Air Quality Solutions, a manufacturer and distributor of high-performance indoor air quality products, has announced a partnership with the COPD Foundation to help increase awareness about chronic obstructive pulmonary disease (COPD) and to improve the lives of an estimated 30 million people living with COPD in North America.

Indoor Air Quality is a major focus for the HVAC industry. Over the years, home comfort systems have evolved dramatically to improve the air people breathe. But until recently, IAQ has not been as important as it is today, which has contributed to health issues for millions.

To learn more about the partnership, please click here.

July 26, 2016

WASHINGTON, D.C. - July 26, 2017 - A team of patient and stakeholder partners and investigators from 20 Patient-Powered Research Networks (PPRNs) that comprise PCORnet will take part in a $4 million research project, Healthy Mind Healthy You, to determine the optimal type and frequency of mindfulness-based treatment for managing stress. This project will be under the leadership of MoodNetwork, an online network for patients with bipolar disorder and depression. MoodNetwork, based at Massachusetts General Hospital (MGH), is one of 20 PCORI-funded Patient-Powered Research Networks (PPRNs) participating in this study, which will also demonstrate the capabilities of PCORnet, the National Patient-Centered Clinical Research Network.

An ambitious initiative funded by the Patient-Centered Outcomes Research Institute (PCORI), PCORnet is accelerating the nation’s ability to conduct patient-centered clinical research more efficiently by using health information shared by patients and other clinical data. PPRNs, which are collaborations among patients, other stakeholders, and research partners who share an interest in advancing patient-centered research, comprise 20 of the 33 networks that together make up PCORnet.

June 15, 2016

WASHINGTON, D.C. – June 15, 2016 – The COPD Foundation today released a video animation, “A Child’s Eye,” to promote awareness and education about chronic obstructive pulmonary disease (COPD), a spectrum of inflammatory lung diseases that include chronic bronchitis and emphysema. Patients with COPD experience chronic respiratory symptoms such as difficulty breathing, wheezing, and coughing. Approximately 300 million people worldwide are affected by COPD. The video animation was developed by Make Believe Studios, an in-house creative studio that specializes in bringing stories to life through film, animation and digital output.

“A Child's Eye” is a short animated film commissioned by Novartis in collaboration with the COPD Foundation. It is inspired by real life stories from patients around the world and demonstrates the effects of the disease on patients’ loved ones, including caregivers, friends, and family. “A Child’s Eye” depicts the daily struggles of life with COPD from the perspective of a child whose beloved grandparent lives with the disease. Upon being introduced to COPD360social.org, a unique social networking website for individuals whose lives are affected by COPD, the child’s family is provided with educational resources and access to a worldwide community. By showing the meaningful impact lifestyle changes and treatment can have through the perspective of ‘Jonny’ (a patient’s grandchild), the video touches upon a central insight for people who live with COPD.

May 25, 2016

WASHINGTON, D.C. - May 25, 2016 - The U.S. Food and Drug Administration (FDA) has issued an updated draft guidance for industry to assist in the design of a clinical development programs for new COPD drug and biological products. The draft guidance, “Chronic Obstructive Pulmonary Disease: Developing Drugs for Treatment,” revises the 2007 version by adding information specific to the use of the St. George’s Respiratory Questionnaire (SGRQ) as a potential co-primary endpoint in clinical trials of COPD products. The SGRQ is a patient-reported health status questionnaire that has been used extensively since it was first published over 20 years ago. The COPD Foundation, along with its partners in the COPD Biomarker Qualification Consortium (CBQC) - AstraZeneca, Boehringer-Ingelheim, Chiesi, GSK, Novartis, Pfizer, and many academic members - has long advocated for the broader recognition of the SGRQ as an important endpoint in the development of new drugs to treat COPD since it measures the impact of the disease on health related quality of life from a patient perspective.

May 19, 2016

WASHINGTON, D.C. - May 19, 2016 - The CT Lung Cancer Screening Protocol Challenge, the first crowd-sourced and ultra-low cost challenge of its kind, was launched by the COPD Foundation and its advisory committee to help the lung cancer and COPD imaging research communities determine the best CT scanners and protocols for detecting lung nodules and areas of the lungs that have been damaged due to emphysema. These clinical imaging tasks require high levels of CT scanner image quality and are essential to delivering high performance CT lung cancer and COPD screening.

All global lung cancer and COPD imaging clinical sites are invited to participate. The data submission phase for this first challenge ends on May 31, 2016 and initial findings will be released on June 13, 2016 at the Quantitative Imaging Workshop XIII. The data acquired from this challenge and free CT image quality service will assist the radiological community in developing and setting new standards for lung cancer and COPD quantitative imaging.

May 18, 2016

WASHINGTON, D.C. - May 18, 2016 - The COPD Foundation is proud to announce that its chairman of the board of directors, Byron M. Thomashow, MD, has received the 2016 Leonard Tow Humanism in Medicine Award. Sponsored by the Arnold P. Gold Foundation, the award recognizes those who embody the ideals of compassion in the delivery of healthcare. It is given annually to a faculty member who demonstrates outstanding sensitivity and empathy in care delivery as well as demonstrated clinical excellence. The award was presented at the Columbia College of Physicians and Surgeons graduation ceremony on May 18.

In addition to his work as COPD Foundation chairman, Dr. Thomashow is a clinical professor of medicine at the Columbia University Medical Center and an attending physician at the New York-Presbyterian Hospital. He also serves as the medical director of the Jo-Ann LeBuhn Center for Chest Disease on the Columbia campus. He is widely known in the COPD community for his extensive knowledge of the disease and unrestrained compassion for those who are affected by it.

May 12, 2016

WASHINGTON, D.C. - May 12, 2016 - The COPD Foundation announced today that its social collaborative platform, COPD360social, has exceeded 20,000 members from over 100 countries. Launched on November 19, 2014, the site was developed in an effort to serve as a comprehensive platform for patients, caregivers, providers, and friends in the COPD community. The website is a part of the Foundation’s aim to utilize technology to better understand the patient experience from a holistic perspective.

COPD360social provides users an opportunity to connect, educate, and inspire others. The site allows users an unprecedented opportunity to chat with respiratory professionals, access the COPD Foundation’s free educational materials, and contribute to blog entries. Members are also able to use the site as a social outlet by creating a user profile, adding other users as “friends,” exchanging messages, and posting status updates. Local in-person events, support group listings, and pulmonary rehabilitation resources are also provided on the platform.

May 09, 2016

WASHINGTON, D.C. – May 10, 2016 – The COPD Foundation in partnership with NTM Info & Research, today announced the launch of BronchandNTM360social.org, an online, global social networking platform for individuals affected by bronchiectasis and/or nontuberculous mycobacterial (NTM) lung disease – two of the most common forms of which are Mycobacterium Avium Complex (MAC) and Mycobacterium Abscessus. Bronchiectasis and NTM lung disease are respiratory conditions that often co-exist with chronic obstructive pulmonary disease (COPD). Collectively, bronchiectasis and NTM lung disease affect hundreds of thousands of individuals worldwide.

Following the success of the COPD360social.org online platform, bronchiectasis and NTM communities expressed the critical need for a dedicated social networking website designed specifically for their patients. "We are pleased to partner with the COPD Foundation to offer yet another valuable resource to patients with nontuberculous mycobacterial lung disease," said Philip Leitman, President and co-founder of NTM Info & Research.

May 09, 2016

WASHINGTON, D.C. – May 9, 2016 – The COPD Foundation, the only U.S. healthcare nonprofit solely dedicated to preventing and curing chronic obstructive pulmonary disease (COPD) while working to improve therapies, today announced that Grace Anne Dorney Koppel has been named President of the COPD Foundation, effective May 6, 2016. Craig Kephart who had been serving as Acting President at the Foundation has been named Chief Executive Officer.

“I am delighted that Grace Anne has taken on this new position of President after having been such a valuable member and contributor to the COPD Foundation Board of Directors,” said Byron Thomashow, MD and Chairman of the Board of Directors. He continued, “In addition to having a long history of patient advocacy, Grace Anne is a proven leader ready to tackle the issues facing the 30 million Americans affected by COPD. I am confident that with Grace Anne and Craig at the helm, the COPD Foundation will continue to build on the legacy started by Founder John Walsh over a decade ago. We remain hopeful that John will continue to recover and ultimately resume his important role at the Foundation.”

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