Meet Your COPD Foundation Captains!

COPD Foundation Captains are volunteers with COPD, caregivers, friends and family members or healthcare providers who use their contacts and talents and partner with the COPD Foundation to serve as state and community leaders.

Captains promote the importance of becoming a part of the COPD community. They work to spread COPD awareness in their state and local areas, mentor fellow COPD community members, and participate in online and in-person grassroots advocacy and community building activities focused on health policy issues that are important to those who have COPD. If you are interested in joining our group of volunteers, click here.


Lisa Hall

Lisa Hall Profile Photo Sauk Center, MN
lhall4096@gmail.com

I am involved in the COPD Foundation, and I am on the Propeller App advisory board. I am interested in traveling to Capitol Hill as a patient advocate with the COPD Foundation to represent people with Asthma ,COPD, and chronic respiratory conditions. I have had asthma all my life which has turned into COPD. I am on disability because of my condition. I was on prednisone for 5 years as a child which could have contributed to my spinal issues resulting in fusions or metal rods in all but 2 vertebrae in my back.

I recently shared my story with ResMed, a medical technology company focused on respiratory disease, in a recorded interview and a graffiti artist interpreted my experience. ResMed works with clinician and patient organizations to support their voices. After my recent experience, which was displayed at ViVE, a health technology conference, ResMed offered to sponsor patient organizations to help patients like me speak with policy makers to get our point of view across. I, and I’m sure other patients, can’t afford to go to these events as we are forced to choose between working or our very expensive medication.

As a child I also went to Camp Superkids for 2 weeks out of every summer in the 80’s where I learned how important it is to advocate for yourself, and I learned I can do almost anything anyone else can do with limitations and time. My whole life I have hit brick walls trying to keep a job or afford my medicine.

My children are all grow up now, so I find myself doing nothing but advocating and giving myself a purpose to help others with these nasty lung Issues. I like to find some humor in it, but I also speak from my heart.

I had given up a year ago and accepted I was going to suffocate to death, but I have new hope in being able to try to change our medical views (like Zoom, o2 sensors, etc.) and equipment that better maintains our health at home, so we don't have to choose between work or medicine, doctor's appointments, etc.

 



COPD Foundation State Captain Program Informational Video

The COPD Foundation is looking for new State Captains to join our community to be champions for promoting COPD awareness, improving quality of life for those with COPD, to participate in research opportunities, policy, and much more. Email statecaptains@copdfoundation.org for questions and to start the onboarding process today!