Meet Your State Advocacy Captains!

State Captains are volunteers with COPD, caregivers, friends and family members or healthcare providers who use their contacts and talents and partner with the COPD Foundation to serve as state and community leaders.

Captains promote the importance of becoming a part of the COPD community. They work to spread COPD awareness in their state and local areas, mentor fellow COPD community members, and participate in online and in-person grassroots advocacy and community building activities focused on health policy issues that are important to those who have COPD. To learn more about becoming a state captain in your area please email statecaptains@copdfoundation.org.


Nancy Robinson

Nancy Robinson Profile Photo Baltimore, MD
mozartessa@gmail.com

As a licensed clinical social worker, I recently completed2+ years working on a clinical trial for COPD patients and caregivers about the role of peer support in the management of COPD.

I hope to participate in research activities as a State Captain and connect others in the COPD community with the resources necessary to lead healthier and fuller lives.

I would also like to focus on issues that are important to caregivers, as they have separate and unique challenges to learn about the condition, to advocate for their loved one, and to take an important role in assisting health care professionals.

My proudest moment is when I helped a patient who had waited almost two years, to obtain a portable oxygen concentrator at no cost. His life which had been constructed changed and he was able to participate in family events and enroll in pulmonary rehab.

My inspiration to share is a woman in her 70s who participated in the clinical trial as a Peer Mentor. While living with COPD and heart disease, she traveled alone on Amtrak, a 14 hour trip, with oxygen, a walker, inhalers and a suitcase to attend a family wedding in the Midwest and then make the return trip home. Her courage and determination were truly inspiring to me.

 



COPD Foundation State Captain Program Informational Video

The COPD Foundation is looking for new State Captains to join our community to be champions for promoting COPD awareness, improving quality of life for those with COPD, to participate in research opportunities, policy, and much more. Email statecaptains@copdfoundation.org for questions and to start the onboarding process today!