My COPD story is actually about my family and our struggles to fight and advocate for a cure. In most, cases if one person becomes effected by a disorder it effects everyone and ours is no exception. For 27 years my husband and I have had a small ministry gaining a reputation for our willingness to help worthy causes. We are advocates for those without a voice or struggling to survive. In order to achieve our goals it was necessary to work with pastors, politicians local, state and federal, foundations and non profits. Our motto " helping those in need and the organizations' which support them." Never my husband, daughter or I ever imagine one day, we would be on the other side of the spectrum. COPD came on my radar when my step mother and mother in law were both diagnosed within months of each other. My step mother lost her battle with COPD only a few short years later. My mother in law, she has suffered many years with COPD and it's crippling effects. She has been a pillar of strength even in the worst of times.
As State Captain I hope to bridge the gap of understanding between those affected by lung disease, medical professionals, media and elected officials is immensely rewarding. As a COPD State Captain, nothing makes me prouder than to know those initiatives were met & people were positively impacted
My proudest COPD moments evolve around reaching out to support other Captains accomplish their goals and knowing makes a difference for those affected by COPD.
My advocacy work includes, working with elected officials and the media to benefit people in need. I have visited with doctors,nurses, nursing homes,patients, caregivers and civic leaders About COPD, Alpha1 & lung awareness issues. Also, use my social media accounts to help people affected by lung disease find support and resources. It is also my goal to help the community understand the issues of patients with chronic & genetic disorders.
My inspiration to share, “I alone cannot change the world but I can cast a stone across the waters to create many ripples” -Mother Theresa