As State Captains we hope to raise awareness, use our story to educate, to inspire, and to support lung disease patients and their caregivers in their quest to achieve a decent quality of life.
Jim’s proudest COPD moment is surviving! Having the fortitude necessary to remain healthy enough to qualify for a double lung transplant at the age of 71.
Mary’s proudest COPD moment is not a particular moment but I am proudest of my capability to maintain a positive attitude the vast majority of the time throughout my husband’s illness, his near death, his transplant and recovery, and the years of advocacy since.
Jim: Some of our advocacy work has included: travelling to 11 national or state conferences to present information and inspirational talks on living with lung disease, travelled to London, England to speak to a COPD conference, participated in COPD Action Plan working group in Bethesda, Maryland, have written many articles for COPD360 as well as other online support groups. We have served as an executive board members of EFFORTS, have served as Southern Arizona Advocates for the American Lung Association, and have been featured in numerous articles in national publications, including the COPD Digest, Costco Connection, and others. We’ve taught classes to rehab patient and caregivers to RT students, to pharmacy students, and to hospice volunteers. I maintain an online blog of articles and videos that my wife (caregiver) and I have produced. We also counsel patients, caregivers and potential transplant recipients in person, by phone, and through email. We have met with Representative Raul Grijalva and we have talked with him and his executive assistant at length about COPD awareness. We also presented Grijalva with an award for his participation in the COPD Caucus.
Mary: We have spoken to many support groups, Better Breather's groups, and others to spread awareness about COPD. We have developed several different PowerPoint presentations for use in giving informative and inspirational speeches. We have taught classes to pulmonary rehab patients and caregivers on living well with lung disease. We have taught classes to pulmonary rehab students in Tucson and in Phoenix, and to pharmacy students in Tucson. We have taught Hospice volunteers about handling and dealing with lung disease patients. We have traveled to Chicago, (three times), San Diego (twice), Denver, Miami, Trenton, NJ, Phoenix, Kalamazoo, MI, and London, England to present at COPD conferences. We were invited to participate in the COPD summit in Bethesda. We will be attending COPD 10 in Chicago again this summer.(Remove) We have written many articles for online support groups such as COPD360 and other Facebook groups. We have established a website (uncleim-auntmary.net), which contains many of the articles and posts, and several videos. I have been a Hospice volunteer for 21 years, and I have used that training in dealing with many COPD patients.
Jim’s inspiration to share is, leave everyone better than you found them!
Mary’s inspiration to share is, choose to make each day the best one possible. You may have to make that choice repeatedly during the day but you always have that choice.