Bronchiectasis and NTM Initiative
Bronchiectasis is a chronic lung disease that affects hundreds of thousands of people in the U.S. It is characterized by the widening of the small airways, which allows for the collection of mucus in the airways, and in turn causes recurring lung infections. Nontuberculous Mycobacterial (NTM) lung disease is common in individuals with Bronchiectasis. NTM are naturally occurring bacteria, some of which cause lung infections.
The incidence and prevalence of NTM lung disease continues to increase in the US with a significant overlap between COPD and NTM (52% of NTM diagnosis in a US healthcare survey had COPD, 37% had bronchiectasis) as reported by Winthrop et al in February 2020 Annals of the American Thoracic Society.
Data from the COPDGene® study demonstrated that 383 participants out of 1184 (32%) had radiographic bronchiectasis. Smokers with radiographic bronchiectasis and emphysema have worse lung function and exercise capacity than individuals with bronchiectasis and no emphysema.1
In an effort to meet the needs of the Bronchiectasis and NTM communities, the COPD Foundation has created the Bronchiectasis and NTM Initiative, which comprises of BronchandNTM360social, educational information and materials, and research programs such as the Bronchiectasis and NTM Research Registry.
Click the orange links below to visit the pages specific to each program.
BronchandNTM360social is a global, online community for individuals affected by Bronchiectasis and NTM. It serves as an online home where community members can interact, ask questions, read and comment on blog posts, and more.
The Bronchiectasis and NTM Research Registry is a clinical registry of over 2,000 patients. The goal of the Registry is to support collaborative research and clinical trials
Visit www.BronchiectasisandNTMInitiative.org to learn more about these excellent resources!
Martinez CH, Okajima Y, Yen A, Maselli DJ, Nardelli P, Rahaghi F, Young K, Kinney G, Hatt C, Galban C, Washko GR, Han M, Estépar RSJ, Diaz AA. Paired CT Measures of Emphysema and Small Airways Disease and Lung Function and Exercise Capacity in Smokers with Radiographic Bronchiectasis. Acad Radiol. 2021 Mar;28(3):370-378. doi: 10.1016/j.acra.2020.02.013. Epub 2020 Mar 23. PMID: 32217055; PMCID: PMC7508820.