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Bill Clark - Community ManagerShuttle at Mets game
1 day ago
Vinny MClassic!1 day ago
Karen DeitemeyerWhat a great picture - I see lots of familiar faces :-) 1 day ago
Bill66Nice😎22 hours ago
Bill66Does anyone know if this is still in service?
Bill Clark - Community ManagerNo. It has been gone for several years.1 day ago
Karen DeitemeyerIt was really neat - I experienced it when it was in Orlando, many years ago and I wish that a corporate sponsor could be found to bring it back again. And it really WAS an experience - the seats even vibrated and jerked a little as we descended into the lungs!! Outside the vehicle were RT's offering spirometry, and also a neat visual of what someone would look like in, say, 20 years, if they were a smoker and continued to smoke. Here's a link to an NIH article about it, with more photos:https://nihrecord.nih.gov/newsletters/2010/06_25_2010/story5.htm1 day ago
Vinny MIt was cool. I remember experiencing it at an joint event with the COPD Foundation and the NY Mets at Citi Field. This was about 5 years or so ago I think.1 day ago
Fabiana TalbotConnect with thought leaders in pulmonary medicine at the COPD10USA conference! Healthcare professionals and individuals impacted by COPD (patients, family members, caregivers) will come together for two days of cutting edge medical education sessions focused on clinical care, research and care delivery.Reserve your place at the COPD10usa patient workshop today: copdf.co/2pmzfKm
4 days ago
Kristen WillardWe had our first patient workshop registrant come through today! Who else will be coming to COPD10usa? Hope to see you there!3 days ago
Bill66I Would love to go to a patient workshop! Maybe Kristen will bring me back a T Shirt🤗3 days ago
HIcopdI booked my plane and hotel for COPD10usa in January! We will be making a stop in Glacier National Park first and then on to the conference! I have been to all of them and highly recommend! You can talk to patients, researchers, physicians, RTs and policy makers! My husband and I can't wait!The hotel has free shuttle to/from Ohare airport and a free shuttle to/from nearby restaurants, parking and mass transit. 3 days ago
Mike RRTVal, it's going to be great to finally meet you in person! I'm looking forward to putting many more faces with names, too. See you in Chicago!3 days ago
Kristen WillardBill66 :)! We wish you could make it -- if not, we will report back!3 days ago
Vinny MWelcome to COPD360social, pervaiz.4 days ago
CarolineWelcome to our group.4 days ago
KandyWelcome to the COPD360social!! 3 days ago
1 week ago
Kristen WillardGreat picture!6 days ago
RitaN55On April 13th we participated in an event Function at the Junction held by ARORA to increase awareness in organ donations. We provided information on COPD and smoking cessation. I also preformed Carbon Monoxide monitoring to those interested.
RitaN55I had a booth at the Chronic Disease Forum in Benton, AR. Providing information on COPD, Alpha-1, and Smoking cessation. Also information was given out on Baptist Health-LR Better Breathers Club...which I am facilitator. And our Freedom From Smoking sessions we provide for anyone interested. This was held April 20 and 21.
Kristen WillardThank you for all that you do! I love that you shared this picture with us too. 1 week ago
Bill66Very Nice Picture.1 week ago
Ben AI've mentioned before that I live in the middle of the woods, which makes allergy season a nightmare, but I don't think words really describe the situation adequately. Here's an aerial shot of my cabin. As you can see, Nature has me surrounded....
2 weeks ago
Bill Clark - Community ManagerUnderstand the limitations and trials but still gorgeous!!!!2 weeks ago
CarolineGreat picture!2 weeks ago
Karen DeitemeyerOh, WOW!!! You definitely are surrounded - but by such beauty that I hope it's worth dealing with the allergies?1 week ago
Bill66Awesome Ben.1 week ago
dustybillwow... both beauty and foe1 week ago
Delia PrietoWow! Allergy season must be rough on you, but it must be very peaceful out there!1 week ago
Ben AI've spent the last 25 years living here in the woods but all good things must come to an end. I'm reaching an age and state of health where maintaining the house and property by myself is getting to be too much for me, so I'll be downsizing in the coming year. My plan is to move to Portland OR and find myself an apartment, then once I've proven to myself that I can live in a city again, to buy a condo and sell the house. It breaks my heart to let it go but so it goes....1 week ago
CarolineI am facing a similar situation, but have found that I can get help through the Commission on Aging. I can get help with the lawn and house cleaning. They have people that they have vetted and trained. They are quite good and only charge $13.00/hr. If you do not have the ability to pay, they are free.1 week ago
Vinny MHappy Easter!2 weeks ago
Bill66Vinny, It wouldn't let me post in message. Thanks Bill
Vinny MI see what's happening. Tom posted another comment in the activity feed that you added a comment to. If you scroll down on this page you'll find it. That's the one that should be showing in your profile view. When you look at your profile view you see all the conversations listed that you took part in. I'll look in to why it's showing a different comment as opposed to the one you took part in. Thanks for letting me know.2 weeks ago
Kristen WillardHi Lynda C! Beautiful pictures!2 weeks ago
Made PramanaHi guys, does anyone have information about how to use Symbicort for the first time? I didn't really understand the guidance below. Thank you for the information.
clipperUnfortunately that inhaler is different than what we have in the states. Maybe there is something on YouTube or maybe someone else here will have experience with type of inhaler. Sorry Made2 weeks ago
Made PramanaOkay clipper that's okay! Thanks :)2 weeks ago
Karen DeitemeyerHi Made - I found this YouTube video that seems to be pretty detailed about how to use it:https://www.youtube.com/watch?v=sJdG-c6y84I2 weeks ago
Made PramanaThank you so much Karen.2 weeks ago
HIcopdThe other thing is that at least in the US, you are supposed to be able to ask your pharmacy or provider to help demonstrate how to use any medication you get from them. That is one other place for advice on your inhaler technique. Good luck! I know some folks find Symbicort very helpful.2 weeks ago
Made PramanaThank you HIcopd.2 weeks ago
Bill Clark - Community ManagerVery True!
3 weeks ago
evesSo true. What's really yucky is when one's own pulmo thinks like this. 3 weeks ago
Bill66I've been on the end of 3 of those!3 weeks ago
Ann MA lot of the reason we look so good is because of the steroids , red faced seen as a healthy complexion // when really it is the blood vessels bursting ,and rather large appetite ,,,,,,3 weeks ago
LouanneThis is so very true ! Well said 3 weeks ago
Karen DeitemeyerOne more picture for today - this weekend was the Melbourne, FL Air Show - we live not too far from the airport and have enjoyed watching the performers practice Thursday and Friday and perform yesterday and today. I got lucky and managed to take this picture (with my cell phone) of the US Air Force Thunderbirds flying over our neighborhood.
Bill66Nice picture..3 weeks ago
Gretchen McCrearyLove it Karen! So happy you had good weather for it!3 weeks ago
Karen DeitemeyerI'm posting a picture of me and Bill at our community's Black and White Gala last night. The dinner was good, the music was great, and "Mr. Casino" brought his Blackjack and Roulette tables. We played with fake money and fake chips, turned our chips in for door prize tickets, and I won a Lenovo tablet complete with a folio case!!!
4 weeks ago
BellabitsNice picture!!4 weeks ago
LouanneCongratulations Karen ! Great photo of you two. 4 weeks ago
KandyGreat picture of both of you Karen!!4 weeks ago
Gretchen McCrearyYou look beautiful!3 weeks ago
Bill Clark - Community ManagerA very true cartoon!
Bill66LOL, That's Awesome! High Five Bill🖑4 weeks ago
KandyLove it!! 4 weeks ago
dustybillgreat, thanks4 weeks ago
Made PramanaSorry I don't get it. What does it mean by saying "almost to the end of the driveway?" :D4 weeks ago
Bill Clark - Community ManagerA driveway in the US is a concrete area that goes from the street up to your your house. You drive your car up it to get it off the street. Driveways are generally kind of on short, usually only long enoung to get a couple cars on.4 weeks ago
KandyI loved it Bill and shared it.4 weeks ago
Made PramanaOh I see.. it is short then. Thanks Bill for the explanation.3 weeks ago
BellabitsBill, the cartoon was great!!!! Thanks for the laugh. Made a copy to bring to Pulmonary Rehab.3 weeks ago
LouanneLaughing out loud ! Taking this one to Better Breathers 3 weeks ago
Jamie SullivanBack from the first state based COPD Readmissions Institute in Connecticut. It was great to see over half of the hospitals in the state come together to learn and brainstorm how to improve COPD care and it was especially great to see the patients who attended and the real contributions to the discussion that they made. Here is a pic of Kristen (who planned the whole event!), COPDF President Grace Anne Dorney Koppel and Iowa State Captain Jean Rommes. I am sure Kristen will tell us all more about the event in the coming days/weeks and hopefully some of the attendees will join us here on 360Social too!
1 month ago
Kristen WillardThanks for posting this, Jamie! I can't wait to share more about the great group of providers and COPD patients in Connecticut. What a dedicated, passionate room of people. 1 month ago
RPlantGreat pic!1 month ago
CathyCCan't wait to hear all about it!1 month ago
Karen DeitemeyerGreat photo!! I'm glad to hear how well it went, and look forward to Kristen's posts to tell us more.4 weeks ago
Kristen WillardHere they are!
Made PramanaThis is great! :D1 month ago
Bill66I just Received my Pulse Oximeter my wife ordered from Amazon Prime for 16.00 It was recommended by a pulmonary nurse. Accumed CMS50DLI'm very happy getting this😀
edpe77Mine /I assume reads o2 ok, but more often than not pulse is reading very high. Also don't use with cold or wet fingers.ed1 month ago
clipperGood, now you can check your O2 while exercising to make sure you don't drop too low, especially on the treadmill. Exercising without one is not the best way to go :) 1 month ago
JeanYour pulse reading might be quite high if you've just begun an exercise program. After all, for years you haven't asked your heart to do a whole lot and now you're asking it to actually exercise? No wonder it's complaining a bit! When I first started, my heart rate was quite high, too, but as I continued it came down nicely. Now, after 15 years of this I really have to work to get my heart rate into the anaerobic stage.1 month ago
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