Go Orange | COPD Awareness Month Go Orange | COPD Awareness Month

How Do I Take the #GoOrange Photo Challenge?plus

  • Join our COPD360social community.
  • Take a fun and creative pic of you, your friends/family/pets wearing orange.
  • Click on the camera icon on the activity feed below.
  • Click “Choose File” to browse and upload images saved to your computer.
  • Tell us in 2-3 sentences why you are Going Orange for COPD in the text field and click “Share”.
  • Vote for your favorite photos by clicking the “I care” button and share the copdf.co/Go-Orange link and #GoOrange hashtag to your social networks on Facebook and Twitter.
  • The post with the most “I care” likes by November 30 will receive a $250 giftcard!
  • Having trouble? E-mail us at info@copdfoundation.org and we will help you! You must be a member of our COPD360social community to enter! Register here first.

Partner Resourcesplus


 

Made Pramana

Made PramanaI am currently reading a thread on my Bronchiectasis online forum about oxygen therapy. In the past I asked my pulmonologist whether my oxygen should be checked. However he didn't want to and he also mentioned about the dangerous CO2 retainer. I have been diagnosed with bronchiectasis for three years and I never have a six minute walking test. Sometimes my heart beat go up to 120 bpm with 93 saturation. Tomorrow I will meet a new pulmonologist and I would like to have a consultation about this. I hope that she will take into consideration.

5 hours ago

Made Pramana

Made PramanaThis morning I went to an event called "Bali Yoga Festival" with my family. I did not take the yoga class in there because I felt a little bit tired. Yesterday I already had a yoga exercise, so today I just went around. I had a delicious meal and had some fun. Well I will doing yoga in this afternoon. Have a nice day everyone. 😊

4 days ago

China

China

1 week ago

Ken W

Ken WYou have to things to stay busy and for me one of those things is cross stitch projects. This is one I just completed for some friends.

1 week ago

RAYBO

RAYBO

2 weeks ago

ScottB

ScottBTarpon springs Florida,,Christmas 2016

3 weeks ago

Uncle Jim

Uncle JimNEW BLOG!

Over the seemingly hundreds of years that we have been dealing with lung disease as patient, caregiver, teachers, lecturers, inspirational speakers, and on and on, we have collected a number of articles about our journey. They have been published on one or more of the online support groups with which we have had the privilege of dealing. Then, they have joined their fellows in the digital repository where too much valuable information goes to languish.

One of the major issues with COPD and other lung diseases is the dearth of awareness about the causes, symptoms, and methods of dealing with the day-to-day challenges. It is getting better, thanks in large part to the aforementioned online groups run by such worthies as Mike Hess, Noah Greenspan, Karen Deitemeyer, and the wizards who have created COPD360 at the COPD Foundation site.

In an effort to further the movement toward the necessary education about chronic diseases, lung and otherwise, we have created a website to make our articles available to anyone who might benefit from them. They are necessarily centered on Mary and I, because they are our story, our journey. Please read them, use them, share them with anyone who might benefit, If any one of them helps any one of you, we will have accomplished our purpose.

The site may be found at: unclejim-auntmary.net

Again, please share the site on your pages. The more people we can reach, the better!

Thanks,

Uncle Jim & Aunt Mary

3 weeks ago

    edpe77

    edpe77Great!
    Had a wonderful holiday, spent with my extended family xmas eve {a tradition I've been part of for nearly 70 years}, then with my immediate family today. I have had the honor and privilage of spending over night at my daughters, and watching my grandsons excitement from birth on thru their teenage years now. On the way home last night the 14 year old asked what time things were happening. Informed we needed to open Santa's gifts by 10; he said he would set his alarm for 8:30!
    This is the same kid that just a couple years ago was checking out the tree at 6am, them anxiously waiting for his mother to get up, have her first cup of joe. As my temporary bed was in the family room, I got to see all of this. Times have changed.
    ed

    3 weeks ago

    Kristen Willard

    Kristen WillardFor the first time in many moons, we are spending the holidays somewhere they're having an actual white Christmas! Sending holiday warmth to all of you -- so glad to know you through this beautiful COPD360Social community.

    3 weeks ago

    xStaceyx

    xStaceyxIt's beautiful weather here in NZ at the momen.

    Ive been slack on coming on here, diet and on exercising. I start the day very well & just slip. Today while taking my boys 12 & 9 out & coming back online i realize that i need to pull my head in and know i can't afford days off.

    Hope everyone has an awesome Christmas. Living in NZ means we see see santa before the rest of the world, I'll make sure i send him your way 😘

    4 weeks ago

    Debbie 55

    Debbie 55

    1 month ago

    Karen Deitemeyer

    Karen DeitemeyerI'm enjoying this beautiful Florida December day - 85 degs. and partly sunny. I just brought my Christmas cactus inside so we could enjoy it more - it's been in my screened-in porch and is so beautiful I decided it belongs inside. A friend was going to throw it out about a year ago - she thought it was dying!! I brought it home, and look at it now!!!

    1 month ago

    Karen Deitemeyer

    Karen DeitemeyerI'm going to try to post a picture of Mary & me in St. Augustine - it was in the low 50's Saturday and winds coming across the Intercoastal Waterway at about 20 mph - we were SO cold!!! That's me on the left.

    1 month ago

    Karen Deitemeyer

    Karen DeitemeyerI spent last weekend in St. Augustine. My best friend (Mary) and I left Melbourne Friday morning and drove up A1A, which is along the Atlantic coast. Hurricane Matthew did quite a bit of damage from Flagler Beach northward, but the road had been repaired. The dunes were almost all gone, and many of the large mansions were damaged, but repairs were being made to the homes. After we arrived at our hotel (the Bed & Breakfasts were WAY too expensive for this time of year), we unpacked and then drove to the Visitor’s Center Parking Garage (about 1.5 miles from the hotel) where we bought our tickets for the “Nights of Lights” trolley car tour of old St. Augustine. By City Ordinance, only white lights are to be used to decorate the buildings and trees – some 500,000 of them!!!!!!! Beautiful, but extremely COLD and with winds up to 20 mph – but we were as bundled up as Floridians can get (not having any really heavy coats) and glad that we braved the cold.

    Saturday was also very cold and windy. We again parked in the Visitor’s Garage and spent the morning walking down George Street – it’s closed to vehicular traffic and a lovely street with lots of neat shops in the historic buildings. We ate lunch at a little restaurant where Mary had worked when she lived there and attended Flagler College. Then we boarded the trolley for the first day of the 2-day Bed & Breakfast Tour. There were 11 that first day, but they weren’t quite as close to each other as on day 2, so we would walk to 3 or 4 and then get back on the trolley to the next cluster of them. Each B&B had partnered with a restaurant and sometimes also with a winery or distillery, so we were offered samples of food and drink all afternoon. By the time we returned to our hotel we were exhausted and decided to stay there and snack on the cheese and crackers and chips we had brought. We decided it was too cold & windy to go to the riverfront to watch the Lighted Boat Parade. So we watched Hallmark m ...

    1 month ago

      Cathy Thompson

      Cathy Thompson

      1 month ago

      Uncle Jim

      Uncle JimHAPPY BIRTHDAY TO ME!!!! Yes, I have two birthdays! The original one is in July, but today is, to me, the most important one! Due to the tragic loss of David Kenney and the incredible generosity of his family, I received the gift of two magnificent new lungs 5 years ago today! Looking at the array of pictures representing our accomplishments over the past 5 years really brings it home...I am alive, I am active, and I am trying my best to help others with lung disease. We have had the opportunity to travel, to teach, to speak, to influence the lives of many others due to the gift. I am exercising every day, I am being compliant with meds and diet and such, and I am looking forward to more years of giving back! So there!! Love you all... Uncle Jim

      1 month ago

      Uncle Jim

      Uncle JimIt was about this time of day, 5 years ago, that our phone rang. We had been jumping every time it rang for the previous 38 days, since I had been judged worthy of being placed on "the list", joining the hopefuls at St. Joseph's Hospital and Medical Center who were waiting for a lung transplant.
      I was a pretty sick puppy by that time. My lungs had lost just about all of their ability to process oxygen from room air, and I was on fairly heavy supplemental oxygen 24 hours a day. I am proud to say that I had spent an hour on the treadmill, at 9 liters of oxygen, the morning of the phone call. I truly believe that my somewhat fanatical dedication to exercise helped me to qualify for the list, helped me to survive long enough to be considered. A couple of the members of the transplant team at St. Joe's had told me that, due to the fact that I was in pretty good shape except for my lungs, they were going to take their time and find me the perfect lungs.
      That is exactly what they did. The car was full of gas and we had our "go" bags packed and in the trunk, so we headed for Phoenix. I will freely admit that I bent a few speed limits on the way.
      How did it feel? Speaking for myself, I was so jazzed, so incredibly excited, that I felt absolutely no fear at all. We had gone through all of the tests, worked so hard for so many years to stay in shape, and waited so long that I felt nothing but a delicious anticipation. I was going to be able to breathe again! I was going to be allowed to live.
      As we raced north on I-10, we called everyone that we could think of to share the news. Wendy of course immediately started making travel arrangements, waiting only for the word that the lungs were in fact a match, and that the operation was a go.
      The only black cloud on the horizon, the only down side to the whole situation was the knowledge that someone, somewhere, had lost their life. That being the case, we knew that a family had suffered a terrible loss. With ...

      1 month ago

      Vinny M

      Vinny MCOPD Foundation President Grace Anne Dorney Koppel with country music artist Billy Dawson at the 2016 COPD Foundation Air Affair.

      1 month ago

      Vinny M

      Vinny MTed Koppel serving as the official auctioneer at the COPD Foundation Air Affair.

      1 month ago

      Vinny M

      Vinny MCraig Kephart speaking at the COPD Air Affair in NYC.

      1 month ago

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