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8 Answers
supplemental oxygen

For those who have been using supplemental oxygen, do you have any advice/tips/comments to share with anyone who is new to using it?

Author: Janina K
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6 Answers
Just fed up.

unable to work full time anymore. Unable to pay for prescriptions. I'm bipolar and stage 3 emphysema. My fev1 isn't low enough to get social security. I make too much for assistance. My anxiety is through the roof. Talked to disability lawyer he said I …

Author: Obiron
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2 Answers
Waiting for answer - Mild COPD...

I am a bit confused by my symptoms. I expect to get a diagnosis of Mild COPD in a week or two. Since i stopped smoking in 1998 (because of a cough) when i were 28yo i had regular periods where i felt i could not breathe - and i always coughed more than …

Author: Dane47
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3 Answers
Does everyone with copd cough up green tinged thick tan mucus?

Diagnosed with copd in 2012, have had a persistent productive cough that led my Dr to order a ct scan with contrast. Results said I have minimal lower lobe bronchiectasis and some minimal distal lower lobe bilateral mucous plugging. Is this what is …

Author: LFAOMGA
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6 Answers
looking for a good oximeter. Do you have any suggestions?

I am trying to buy an oximeter on Amazon. Does any have a recommendation?

Author: K C Karen
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2 Answers
What are your experiences with pneumonia?

A few months ago, we asked theCOPD360social community about their experiences with community-acquiredpneumonia. These questions were part of a COPD Foundation project. We areinterested in gathering more information on this topic. If you have hadpneumonia …

0 Votes
11 Answers
​Has anyone had problems knowing what scrip they were going to get after seeing a DR?

I'm getting very perturbed with the prescription system in the new US electronic scrip delivery system. Apparently my scrip for Symbicort expired on 12/17/17. They would request a new scrip from Dr. Hence, he changed it from Symbicort to a generic …

Author: edpe77
0 Votes
3 Answers
Mouth breather

I don't barely breath through my nose. Because of chronic congestion I've learned to be a mouth breather. I've been wearing the cannula in my mouth. I don't like it but it keeps me saturated. My question is, would a mask be more feasible? My Oxygen …

Author: Jeffro
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7 Answers
New to this

I was given a diagnosis of C.O.P.D a couple years ago. I'm in my late 30s so it seems unreal. I was referred to a critical care pulmonologist but they would accept the referral from an e.r doctor. I've been jyst ding breathing treatment with albuterol …

Author: AmandaSC
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18 Answers
Retractable Oxygen Tubing: Do you use this?

OK FOLKS,,, I BUILT ONE FOR MY WIFE A YEAR BEFORE SHE PASSED, 5 YRS AGO FOR DO IT YOURSELF PROJECT! I HAVE A COUPLE VIDEOS FOR YOU TO LOOK AT, ON U-TUBE. ALSO READ THE COMMENTS THERE, BUT ONE LINK IS NO LONGER ACTIVE OF SOMEONE THAT MAKING THEM ON E-BAY? …

Author: Janina K
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4 Answers
Mom doesn't see doc for month, help with results?

Not clear to me what is most important as there is a lot of info. My initial read is GOLD stage 4 due to FEV1 of 47% and use of oxygen. But the beyond that I get a bit lost as to what is most important. FEV1/FVC of 36% TLC 117% which seems ok? DLCO 38% …

Author: mr19
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3 Answers
Portable oxygenators

Any opinions on portable oxygenators? Are they worth the expense? Do they work?

Author: Jeffro
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4 Answers
Research Opportunity

If you have a lung infection due to NTM (Nontuberculous Mycobacteria) such as MAC (Mycobacterium Avium Complex) – Ashfield Healthcare would like to speak to you! Ashfield Healthcare will be conducting 60-minute telephone interviews as part of an …

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10 Answers
New diagnosis: what is the most important thing I should do or know? Other then quiting smoking

I am recently diagnosed and been procrastinating on following up on medical advice and help. I need to take action. The diagnosis scares me. Just wondering on the basics. I am 37 and diagnosed 2 yrs.

0 Votes
3 Answers
Walking?

I like to walk 4 miles a day but it drops my O2 level down to the mid 80's or lower. Usually lower. Dr. said put the bottle on #4 but that doesn't help much. Am I messing myself up? I was just recently given the COPD diagnoses, put on oxygen, sent home, …

Author: Jeffro
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0 Votes
8 Answers
Breathing?

Being new to a POC, Do you still breathe normally-mouth and nose at the same time? I tried to adjust to nose only when walking 100' but it don't work.I'm on 2 Lpm,continuous.Any help would be appreciated.

Author: tripod
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Proper humidifier installation

When I installed my humidifier to my POC the POC gauge drops to 1 and becomes unusable. Perhaps I’ve installed it incorrectly?

Author: smith2344
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20 Answers
Should COPD patients have different exercise programs ?

Kalbapet Has your pulmo or anyone asked you about pulmonary rehab?  There are many other exercise such as chair exercises you can do at home. You can do a search find these on the net. Heck just doing lifts with cans of food can strengthen the arms …

0 Votes
2 Answers
Do Your Cats Chew Your Tubing? Solution.

If you have a cat that likes to chew, and puncture, your tubing, go to your local auto supply store or farm and home supply store and ask for some wire loom. It comes in different diameters and colors. It is split lengthwise and slips right over your …

Author: WausauGal
0 Votes
1 Answers
Does respiratory therapist hold you back during 6 min walk?

My last 6 minute walk test left me confused. The respiratory therapist periodically told me to slow down. I didn’t understand why, and he wouldn’t explain why. I thought the test should accurately reflect what actually happens when you exert, not what …

Author: Girlsaylor
0 Votes
10 Answers
does pursedd lipped breathing always have to be count of 2 to 4?

I am in the camp of what matters most is that your exhales are twice as long as your inhales. My breathing varies greatly while exercising depending upon what I am doing but I always try to do a long deep exhale; trying to blow off the co2 to make more …

Author: Donella
0 Votes
2 Answers
Nasal cannula when not using oxygen

Is it okay to keep the nasal cannula in your nose, if your oxygenconcentrator is off? I mean, of course you can breath with it, but won’t you get too much CO2? Or probably more prone to infections because you breath in your nose stuff ? Someone …

Author: EmmaP
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knoville tn members

is anyone on here from knoxville Tn?

0 Votes
4 Answers
No doctor, No gameplan

I was scheduled same day as my function test so my doctor can see my results and explain them to me. He has rescheduled on me twice. So i still have his appointment and i signed on with a new doctor which both are a month away. Super frustrating because …

Author: Obiron
0 Votes
3 Answers
Low Cost Anoro Alternative?

Looking for a low (or at least lower cost) alternative to Anoro. It works fine, but it's VERY expensive - the pharma co will only give it to you for free after you've spent $600 out of pocket and even then, who knows. The details are boring. I'm on the …

Author: Jastro
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.