0 Votes
5 Answers
Back and chest pain when breathing

Have you ever had a blood clot? The first thing that jumped to my mind was pulmonary embolism. They can come an go on their own with no lasting effect, but I would guess whomever you saw would have considered this, especially with chronic lung disease …

Author: DanK
0 Votes
9 Answers
How to monitor/know limits with exercise.

I'm reading as much as I can on this site and have learned that exercise is critical. I have reached a point where relatively short walks leave me short of breath. A flight of stairs is embarrassing if I am with someone. Any suggestions on how to know …

Author: Ratch
0 Votes
11 Answers
What COPD Activities are YOU Involved in Locally?

I have articles at my cardio/pulmonary rehab but again there are not many copders there mostly cardio and like to have things at my clinic but since they remodeled there is no place to put much of anything. I am going to get some things in this coming …

0 Votes
8 Answers
COPD & Exercise

- What is your favorite type of exercise to do? -If you are a patient, how has exercise helped you with your COPD? Have you noticed any changes? -For newly diagnosed patients who want to get moving, but may feel intimidated, what advice do you have for …

0 Votes
0 This question has no answers.
Ventilator weaning

My mother has advanced COPD. She's on 2.5 liters a day and triology machine at night. She's only 68. She had a bowel obstruction surgery 4 weeks ago that has just gone down hill. Her lung collapsed and now she has MRSA in her right lung (a lung abscess). …

0 Votes
3 Answers
Questions to ask doctor

Hello. My dad was dx with COPD/Emphysema 5 years ago. He has never wanted me to go to any doctors appointments with him...until now. He feels that he is at the "beginning of the end". I'm just not really sure what questions to ask when I take him …

Author: ladunda
0 Votes
2 Answers
Short Term Memory

My husband has COPD, Gold Stage 4. He was diagnosed 5 years ago, but he has definitely had it longer than that. He has been on oxygen 24/7 since day 1 of diagnosis. Lately , I have noticed his short term memory of things I tell him is not so great. Is …

Author: PamR
0 Votes
9 Answers
Portable Oxygen

Avelina, I am in a pulmonary exercise program and a vendor brought a couple of pulse cylinder regulators. Neither one worked for me. There is no small carriable POC that puts out more than 2 LPM. Most put out 1 LPM or less. The numbers one can select do …

Author: Avelina
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0 Votes
7 Answers
Oxygen Tips and Tricks - What works for you?

I am frustrated that there is not much out there about the practicalities of using oxygen . I have come up with a couple of things that I need to know, but I'll bet others have more tips and tricks. Here's what I have so far: Prongs up or down - …

Author: muddleaged
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0 Votes
3 Answers
What Color is the COPD Awareness Ribbon?

Hello everyone, I am new to the site and a COPD patient.  Can anyone tell me what color the COPD awareness ribbon is?

Author: Anonymous
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0 Votes
6 Answers
Generic Spiriva

Do you know when Spiriva will be available generically? It's so expensive, even with insurance.

Author: rnlinda
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0 Votes
14 Answers
I cannot afford my COPD medications…what can I do? Are there any affordable treatment alternatives?

Many COPD medications are not exactly cheap, and many COPD patients are on a fixed income.  What to do when the necessary meds simply cannot be afforded.

Author: Aunt Mary
0 Votes
25 Answers
COPD and Pets

Are you a pet owner? Does animal dander irritate your allergies or COPD? What do you do so that you and your pet can be together? Do you have tips for others living with COPD that have pets or are considering having one? What are your thoughts in …

Author: Janina K
0 Votes
3 Answers
Oxygen levels - drop while laying down?

Hi. I'm new here and this is my first question. Is it common for oxygen levels to drop while laying down? Was diagnosed with COPD about a year ago and was prescribed Anoro. Things have been pretty good until this week when my oxygen drops while sleeping …

Author: Roxie17
0 Votes
17 Answers
End stages of COPD

I'm brand new to this group. I've been searching the web for information on COPD. My Mom's doctor told us she is at the end stages of COPD. I'm so devastated, but trying to stay strong for my Mom. One question I had for the Dr. but didn't ask was..how …

Author: Lane07
0 Votes
6 Answers
Opportunity for a One-Time, In-Person Patient and Caregiver Advisory Panel?

Bumping this back up into the feed -- we are interested in hearing from caregivers! Are you a caregiver and interested in participating? Thanks to all!

0 Votes
11 Answers
Swimming and Supplemental Oxygen?

I am new to oxygen. One thing I do twice a week is the water arthritis class. It's slightly less strenuous than water aerobics, so I don't get too winded. . . I've been doing this for 6 years. When the Doc prescribed oxygen I had visions of fighting …

Author: JeanO53
0 Votes
2 Answers
Headache wen using concentrator

My moms unit was replaced and I have noticed that she started complaining about headaches since the change. I suspect the unit is outputting bad quality air but have no proof. I confirmed that when she complaints about headache and I retrieve the canula …

Author: gre
0 Votes
2 Answers
Do pets make COPD worse?

My father has COPD and has been advised not to have a pet and to avoid houses with pets. I've read lots of posts that all focus on managing allergies to pets. He doesn't have any allergies. Does anyone know if contact with pets can actually make his …

0 Votes
2 Answers
What is ild ?

what is ild ?

Author: Chippie
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0 Votes
3 Answers
Travleing with oxygen.

Do airports have plugs for oxygen concentrators close to the gate? Also, are the plugs on a plane sufficient to charge oxygen concentrators? We are thinking of a trip next year and my husband has been on oxygen for a year now.

Author: algoldade
0 Votes
2 Answers
Lung Health Events Coming Up?

It’s good for us to share info about lung health events we know that are coming up so folks can attend and participate. Here’s an exciting one for folks who live in or near Las Vegas—AARC’s Patient Advocacy Summit on 12/3/2018. http://www.aarc.org/wp …

0 Votes
6 Answers
End stage COPD and nighttime confusion?

Hi all, I've browsed this community for awhile now and found it very welcoming and helpful. First time posting - I am desperately looking for some possible answers and even just shared experiences. My father was diagnosed with COPD 15 years ago. He had …

Author: cheather
0 Votes
10 Answers
How to deal with end stage COPD?

My father is 73 years old. He has a history of smoking and he quit the same in 1985. He had breathing problem in 2013 and needed to be hospitalised. Pneumothorax was performed and he was doing well since then. No supplemental O2 was needed. However, in …

Author: Avisek
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0 Votes
13 Answers
Just diagnosed with copd/emphysema

I sympathize with you. It is no fun to have copd. It is a big thing BUT not the end of the world. First of all we should wait till we find out how bad or good you are. Let's hope you are in the mild to moderate stage. With that said do you smoke have you …

Author: AmyMarie
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.