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0 Votes
9 Answers
Are charlie-horses/ muscle cramps associated with COPD?

Does anyone know whether 'Charliehorses' some refer to them a spasms, are in anyway related to having COPD? I began having them last year at night, first it was one leg or the other now; now I have them in my legs, arms, rib cage. Still mostly at night …

0 Votes
1 Answers
Preventing Panic

Panic attacks are a type of mental health disorder that can feel overwhelming. Most people associate the word “panic” with fear, but panic attacks are not necessarily a fear-related disorder. Indeed, while they can be triggered by fear, panic attacks may …

0 Votes
3 Answers
Do you know about our support group COPD/Alpha 1 on facebook?

COPD/Alpha 1 is a family of patients, family, caregivers and advocates dedicated to improving the quality of life of persons with respiratory issues by sharing info, experiences, humor and compassion. It is Located on Facebook.

Author: Denwolf
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2 Answers
How long does it take to advance from one stage to another?

stage

Author: Dorothy3
0 Votes
7 Answers
Pulmonary testing while sick.

Hi I was just diagnosed yesterday that I have moderate COPD. I've been fighting acute bronchitis since the beginning of August....I had a severe cough and couldn't lie down. I was put on Prednisone and antibiotic (my 4th).  I went and had the …

Author: Ginsch
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0 Votes
1 Answers
Foreign Pharmacies

The cos of the medications for COPD are cost prohibitive. Companies cannot help you if you are on Medicare. Has anyone used Pricepro Pharmacy in Canada? I'm wondering how good they are.

Author: Mariann
0 Votes
5 Answers
Medicare and 02 Coverage

I am told Medicare won't cover a POC and 02 tanks. Ok, what do people do if the power fails and tanks are the only option?

Author: Jastro
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3 Answers
I have severe copd and only have shortness of breath while sleeping any suggestions?

Need help sleepin

Author: Dorothy3
0 Votes
1 Answers
What about stem cell therapy for copd does it work?

Does anyon

Author: Dorothy3
0 Votes
6 Answers
Tubing control

I see there was a discussion about this last year, but I'm asking for an update. I've got tubing I need to control around the house so I don't trip over it. I see there are some expensive and cheaper remedies for keeping the tubing rolled up, etc. What …

Author: Jastro
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0 Votes
2 Answers
Portable Oxygen Needs Questionnaire

We need your help! A group of folks from the US COPD Coalition have been working together for many months to come up with a tool to help match patients with the best portable oxygen device for their needs. Can you please take this questionnaire when you …

0 Votes
3 Answers
Are all pulmonologists so discouraging and give you so little time

I went for my first 3 month check-up and I asked the pulmonologist was my FEV of 71 bad and he said yes it was bad. My pulse ox was 97, my lungs sound fine and he said I still don't need meds. I told him that I have hypothyroidism and am now on meds for …

Author: Angie67
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3 Answers
Bullea Treatment

I have blebs for some time now but no pulmo has even mentioned anything about, which I think I should ask more info, them that only I cant use a cpap bipap any of those due to pressure may cause a pneumothorax.

Author: kking5112
0 Votes
4 Answers
THE CASE FOR SELFISHNESS….

Since you were just a little bitty thing, you were told not to be selfish. If you failed to share a toy, a game, or whatever, you got hollered at. Selfishness, coveting something, refusing to put others first, was portrayed as a bad thing, a sure way to …

Author: Uncle Jim
0 Votes
10 Answers
COPD & Strange Chest Pain?

I know this probably seems like a "dumb" question to most, but I get very weird chest discomfort seems in upper chest & spikes in blood pressure. I don't know if it's COPD related or from anxiety?? Always makes me think I am having a heart attack or …

Author: chatty
0 Votes
11 Answers
I was diagnosed with only a spirometry and a low pulse ox. Do I need more of a workup?

I have been with Pulmonologist team since respiratory failure 2013. Get PFT every year along with 6 minute walk, although this year are repeating 6 minute walk in 6 months. I went 50 % to 40 % in a year and that is after I quit smoking. Also for time …

0 Votes
5 Answers
Have you seen the new COPD Awareness shirt?

If you order it now, it will be here in time for Awareness month! If you have already ordered, Thanks!!! https://www.customink.com/fundraising/copd-awarene...

0 Votes
10 Answers
I cannot afford my COPD medications…what can I do? Are there any affordable treatment alternatives?

Many COPD medications are not exactly cheap, and many COPD patients are on a fixed income.  What to do when the necessary meds simply cannot be afforded.

Author: Aunt Mary
0 Votes
8 Answers
How to overcome Breathlessness

My link isn't showing up for some reason, sorry. . Google for diaphragmatic breathing and also something called jumping lungs. Both are good diaphragm exercises.I forgot. Breathing exercises to strengthen the diaphragm to help with hyper-inflated lungs.

Author: JonHI
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0 Votes
5 Answers
Is this copd related or something else?

Had a really bad night last night. Seems like every time I would fall asleep a few minutes later I'd be up feeling panicked like I could not catch my breath. Came very close to waking my husband to take me to er. About 2 am I finally gave up and went on …

Author: JeannieM
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1 Answers
RRT Question

I have been trying to research on amount of calories burned just breathing with COPD? Is there a certain formula? Example: 100 calories burned daily with stage 1 - 200 calories burned stage 2 and so on?

Author: Bill66
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1 Answers
Single lung transplant

Has anyone had a single lung transplant?

Author: Chippie
0 Votes
5 Answers
Alcohol consumption with COPD

What happens when you drink alcohol with COPD? Making healthychoices is critically important for anyone living with COPD to avoid illness,exacerbations, or hastened progression of the disease. But does that mean onemust abstain from alcohol completely? …

0 Votes
1 Answers
How's the Air Quality in YOUR Area?

Ever wonder what the air quality is like in your area and whether you may wish to modify your activity level based on it? Each state has it's own challenges, from wildfires to in volcanic emissions in Hawaii. This is ONE website that provides some …

0 Votes
3 Answers
Traveling with a POC

Without knowing the brand or if it is pulse or continuous flow, we really can't give you an answer. Some general ideas is to use the car charge when driving. As far as night time use, pulse generally does not work for most people at night, especially if …

Author: Jastro
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.