0 Votes
5 Answers
Options for Getting COPD Medications

Several folks at our support group meeting today were concerned about their rising co-pays for their COPD medications, as well as falling into the Medicare "doughnut hole," where they have to pay for much more of their Rx costs.  They were curious …

0 Votes
2 Answers
Good location to move to.

I realize that everyone is different, but any suggestions on where to move to for COPD health reasons. I live in Wyoming and the cold (-25 to 25 degrees), windy (30-70 mph), and dry winters (6-10%) really treat me bad. Even then summer is dry. I like an …

Author: ScttLee
0 Votes
18 Answers
Questions regarding the Pulmonx Zephyr valves

Selection criteria for the Zephyr valve therapy includes patients who: Are symptomatic despite optimal medication (e.g., mMRC ≥2) Have higher obstruction (FEV 1 , <50% predicted)="" have="" suspected="" emphysema/hyperinflation="" (e.g.,="" rv="">175% predicted) https://www.pulmonx.com/ous/professionals/patient-... https://www.pulmonx.com/ous/professionals/patient-... https://www.pulmonx …

0 Votes
4 Answers
End stage COPD-life expectancy

My husband has end stage COPD with palliative care at home. He does not have enough lung function to do the test. He has had bilateral lung reduction surgery, his left kidney removed, he has heart failure, atrial fibrillation and chronic kidney failure …

Author: Tina2664
0 Votes
2 Answers
Lung transplant-difference in breathing and needing a transplant

I hope someone can answer or help me to understand better. I just watched a show on transplants & the one man that needed lungs, had been a firefighter, & had an extremely hard time breathing. That I understand, that he needed the transplant. My …

Author: 6Thor6
0 Votes
3 Answers
is anyone currently using the trilogy 100

wondering is anyone is using the trilogy machine and if they are finding it helpful

Author: bear24
0 Votes
12 Answers
Symbicort and Muscle Cramps

When I saw my pulmonologist a few days ago, I mentioned the excruciating muscle cramps I have all over my body, both day and night.  He said that Symbicort was probably the culprit and that I should start taking quinine for them, either as tonic …

Author: Ben A
0 Votes
1 Answers
My doctor has referred me for a lung transplant. What are the pros and cons?

what are the pros and cons of a lung transplant?

Author: StarEagle
0 Votes
9 Answers
COPD at 28 years old.

I have suffered recurrent chest infections, pneumonia and wheezing for years. I recently had a Spirometry test which indicates COPD. They've arranged for another test in 2 weeks and I was a heavy smoker for 8 years but quit 5 years ago. I have a 3 year …

Author: Andrea.cox
0 Votes
5 Answers
Severe centrilobular emphysema throughout both lungs

Im 60. Couple of months back, I suffered pneumonia and was on ventilator for it for 4 days. It covered most of the upper lobe of right lung and part of left. I'm told I have " Severe centrilobular emphysema throughout both lung" and " Severe diffuse …

Author: Cutecat
0 Votes
3 Answers
COPD Diagnosis

I am not a doctor so with that in mind. Only your pulmonologist can give a diagnosis. The numbers from a pulmonary function test can bounce around, lots of factors can influence them: where you sick when you did it, how well were you coached to do the test, how well did your perform the test. There is also a margin of error, I think 3% but I have read as high as 5%, my pulmonologist has dismissed 4% as statistically insignificant. There are standards for interpreting the numbers but just the numbers, there is a lot more to it than just numbers. The standard for diagnosing obstructive disease is when the FEV1/FVC ratio is < 70%. your fev1% of 92% is mild obstruction, anything above 80% is considered mild (stage 1). but numbers alone are not always enough for a diagnosis, symptoms are also considered as well as ct scans. it does sound your pulmonologist has done all the rights tests, including alpha-1. one thing you might want to think about a different primary care doctor. making frequent trips to the er and getting steroids, that is a very big red flag that they should of referred you to a pulmonologist and not dismissed it with hydrate. your numbers are good, even if you do have very very mild copd you can manage it with the help of a good pulmonologist. i would not lose sleep over this while you wait for your pulmonologist to give you your diagnosis. people can … 70%.="" your="" fev1%="" of="" 92%="" is="" mild="" obstruction,="" anything="" above="" 80%="" is="" considered="" mild="" (stage="" 1).="" but="" numbers="" alone="" are="" not="" always="" enough="" for="" a="" diagnosis,="" symptoms="" are="" also="" considered="" as="" well="" as="" ct="" scans.="" it="" does="" sound="" your="" pulmonologist="" has="" done="" all="" the="" rights="" tests,="" including="" alpha-1.="" one="" thing="" you="" might="" want="" to="" think="" about="" a="" different="" primary="" care="" doctor.="" making="" frequent="" trips="" to="" the="" er="" and="" getting="" steroids,="" that="" is="" a="" very="" big="" red="" flag="" that="" they="" should="" of="" referred="" you="" to="" a="" pulmonologist="" and="" not="" dismissed="" it="" with="" hydrate.="" your="" numbers="" are="" good,="" even="" if="" you="" do="" have="" very="" very="" mild="" copd="" you="" can="" manage="" it="" with="" the="" help="" of="" a="" good="" pulmonologist.="" i="" would="" not="" lose="" sleep="" over="" this="" while="" you="" wait="" for="" your="" pulmonologist="" to="" give="" you="" your="" diagnosis.="" people="" can="">

0 Votes
11 Answers
Diagnosis, symptoms, oxygen level

I'm not a Dr but I think for a complete diagnosis you need a CT scan and a pulmonary function test. The x-ray is not enough but it can show signs of COPD Hope that helps. Your oxygen levels are great but that doesn't mean no COPD. Good Luck. A …

0 Votes
5 Answers
Anyone else using silicone instead of vinyl cannulas?

First Ive heard of Silicone for this -- where do u buy them?

Author: PennyH
0 Votes
5 Answers
Is anyone using an Home Air Purifying System?

I am looking for a good quality Home Air Purifier (not a portable one) that hopefully will help my husband with COPD breathe a little easier. Best Regards, Pacma

Author: Pacman
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0 Votes
27 Answers
End stages of COPD

Hi Mango - Welcome to C0PD360Social. There's information available on how to use this site. Just click on the C0PD360Social Menu, where you will find a section called "How to Participate" including video tutorials. I have been able to manage my …

Author: Lane07
0 Votes
11 Answers
The Medical use of Hydrogen Peroxide

I have seen that being done. People have reported using it in there nebulizer.

0 Votes
8 Answers
Swollen Left Hand

Go to ER. I've had cellulitis -years ago- It has to be treated right away if that is what it is. I needed IV antibiotics for a week or more. I was able to do this at home. Good Luck

Author: Spouse
0 Votes
2 Answers
Looking for advice - COPD family member in Vermont

Hi, I am new and looking for advice for my 85 year family member who lives in Vermont. She has COPD and asthma. She is taking Spiriva and Symbacort. She is living at home and her quality of life has significantly declined in the last 6 months, she was …

Author: LaurieSu
0 Votes
4 Answers
Oxygen levels-what is normal

My mother has Copd and just got home from the hostipal. She had the flu which turned in to pneumonia. She was in the hostipal for 5 days and was released today. She has to be on oxygen now. I tested her oxygen level and its 89 and thats while she using …

Author: Sue101
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0 Votes
2 Answers
What promotional materials are available?

I'm starting PR on Tuesday, and I would like to give them a card or leaflet that they could include in their initial handout. I looked above, and there was nothing I could print and take with me. Specifically, I was looking for something that points to …

Author: edpe77
0 Votes
4 Answers
Why do my symptoms return after stop using prednisone

What meds have you been on? I've been using Trelegy since last May and it has worked well for me. Haven't needed Prednisone since. I've had some rough spots but for the most part I've been good

Author: Jlscjs
0 Votes
4 Answers
Bronchiectasis and pulmonary hygiene

what works for you? I frequently get pneumonia from the colonized pseudomonas in my lungs. Soon I will be getting "the vest," and I do postural drainage everyday. I have a nebulizer that I dont use, although I have the meds to use when needed. Is this …

Author: Glady
0 Votes
1 Answers
Any updates to lower cost alternatives to Anoro?

Recently diagnosed with a form of COPD, the Anoro prescription instantly worked like a miracle for my shortness-of -breath-on-exertion. Doc gave me free trial month coupon. Now I find that Anoro is Tier 3 drug and my Medicare D charges $215 for 30 day …

Author: Ma Mo
0 Votes
17 Answers
does COPD effect your bladder & bowels when you get winded like having to go right then & there

having to go right on the spot I had BCG treatments for cancer a while back & have this problem

Author: urbansrs
0 Votes
4 Answers
antioxidants

Have anybody ever heard of this supplement my friend was telling me that this is supposed to help with respiratory problems like copd Its new to me I have never heard of this Its called NAC (N-ACETYL CYSTEINE give me your thoughts on this.

Author: joney
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.