0 Votes
6 Answers
Can you take 5 minutes to support PCORI reauthorization?

Today marks the start of the PCORI Annual Meeting and COPD360social's own Clipper is participating in-person, but did you know that there is something you can do to help right from home? PCORI, or the Patient Centered Outcomes Research Institute, funds …

0 Votes
4 Answers
Can a "flare up" last for more than a month?

Good evening everyone! I hope you are all well! I finally got scheduled to see Pulmonolgist for lung tests. The soonest they can get me in is October 9th. That seems like a long time away when I have trouble breathing everyday. I don't know anyone …

Author: Kattlyne
0 Votes
1 Answers
Appointment with Pulmo Doc follow-up

1 month follow-up after start of Trelegy. Fev1 - 1st was 40's after sitting in the waiting room 45 minutes filled with perfumed people (my asthma trigger). Of course the test was bad. 2nd a week later was better at 51. Today a month later was 60. He …

Author: netmouse
0 Votes
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When I'm not breathing well why do people stare are we ready now okay

People stare when I'm not breathing well

Author: lanesf
0 Votes
2 Answers
Anyone heard of DIP?

Desquamative interstitial pneumonia (DIP) is almost exclusively seen in smokers or ex smokers. If stop smoking, prognosis is good. Hi everyone, I had a PFT on 9/10. The FEV1 was 70%. I don't use oxygen or inhalers, not short of breath + O2 sats 95-98. …

Author: PatriciaK
0 Votes
1 Answers
Physical Rehab - And

I am on oxygen 24/7 at lit 2 with upper liters needed for physical execise (3-4 range). I enjoyed my physical therapy sessions and they seem to help my breathing so much BUT I have a very bad back plus a large cyst sitting on my nerve and walking and …

Author: MagpieNM
0 Votes
12 Answers
worst copd question ever!

yep, smoker; yep trying to quit! But, BIG B BUT, does anyone have experience w/ the menthol in cigarettes actually relieving chest tightness so you breath better short term at least? Any suggestions. Mentholated cough drops work but not for long nor as …

Author: s'ri
0 Votes
3 Answers
Diagnosed at 28 with no testing

I have recently been diagnosed with chronic bronchitis, COPD. I am 28 years old and in decent shape and live an active lifestyle, although a little over weight. I smoked for just short of 9 years and smoked “socially” for 4 of those years while in …

Author: Allysa
0 Votes
2 Answers
How to Fill Oxygen Tank Size E with Homefill

My mother has advanced emphysema needs to be on at least a setting of 4 continuous flow to leave the house. I bought 2 large size E tanks that have built-in regulators but they do not fit her homefill system. Does anyone know if I can unscrew the fill …

Author: LittleMac
0 Votes
9 Answers
Hemp oil, CBD tincture

Has anyone used CBD tincture or oil for their COPD symptoms and had any success or relief ?

Author: PFrey
0 Votes
5 Answers
Does any one know of the WEI Institute?

This treats COPD and emphysema with herbs wondering if it is worth looking into.

Author: Cinanne
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0 Votes
2 Answers
COPD ICU

Hi All, I want some advice. I am form philippines and last friday we rush my father to the hospital and he's in the ICU room from that day till now. His oxygen is 89% coming from machine. He got emphysema and tuberculosis. The doctor said that he needs …

Author: Clades
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0 Votes
17 Answers
I cannot afford my COPD medications…what can I do? Are there any affordable treatment alternatives?

Many COPD medications are not exactly cheap, and many COPD patients are on a fixed income.  What to do when the necessary meds simply cannot be afforded.

Author: Aunt Mary
0 Votes
17 Answers
How did you quit smoking-having a hard time

Having a hard time stopping... when I get anxiety or stressed I keep going back

Author: Beezer
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0 Votes
3 Answers
Mild upper lobe scarring and paraseptal emphysematous changes

hey new friends - I am really in a state of panic. I was in a car accident and coincidentally my CT scan showed Mild upper lobe scarring and paraseptal emphysematous. My PCP then sent me for an xray as well. She said the scarring is very mild (i think i …

Author: Mandih
0 Votes
3 Answers
Can anyone tell me about the name of drugs Used to treat for COPD?

Can anyone tell me about the name of drugs Used to treat for COPD?. Because I want to know which medication help to treat COPD.

Author: milton2203
0 Votes
10 Answers
What can I expect when I go to Pulmonologist?

Hi, everyone. I'm new here and hope that I am posting correctly. I am a 49 year old single mom with a 13 year old daughter still at home. August 20th I woke up with extreme trouble breathing. I felt like I couldnt get a deep breath. It was scary. Im no …

Author: Kattlyne
0 Votes
4 Answers
My dog, Lucky, is afraid of my O2 tubing. Any suggestions?

I changed the long hose a week or so ago, and now Lucky is afraid to step over it. The way my room is arranged, he almost always has to step over it. He will stand there and wimper, or go over it then back up several times. Suggestions. ed

Author: edpe77
0 Votes
4 Answers
Does anyone have any tips on purchasing my own portable O2 machine?

Just looking for any tips on purchasing portable O2 compressor for daily travel and also vacations. I have this big home one with a compressor for filling tanks, but those tun out pretty quickly. It's adversely affecting my social life, lol.

0 Votes
3 Answers
Time for Medicare annual enrollment

October 15 to December 7 is the window to enroll in and change a Medicare Advantage health plan or Part D drug plan. These have no underwriting and anyone can be enrolled. To find the low cost Drug plan for you, click this Medicare website link. You can …

Author: netmouse
0 Votes
18 Answers
What to use for chapped lips and dry nose with oxygen

Read about petroleum jelly in the nose. http://www.mayoclinic.org/petroleum-jelly/expert-a...

Author: Dianne R
0 Votes
16 Answers
New at the oxygen thing...and scared to death!

I went to a Pulmonologist a few weeks ago and was set up on oxygen last Friday, as my oxygen level when I went to him was 88l. I'm a 66 year old female and over many years have gained weight due to doctors refusing to do surgery on my knees so I could …

Author: treefrog
0 Votes
20 Answers
Retractable Oxygen Tubing: Do you use this?

OK FOLKS,,, I BUILT ONE FOR MY WIFE A YEAR BEFORE SHE PASSED, 5 YRS AGO FOR DO IT YOURSELF PROJECT! I HAVE A COUPLE VIDEOS FOR YOU TO LOOK AT, ON U-TUBE. ALSO READ THE COMMENTS THERE, BUT ONE LINK IS NO LONGER ACTIVE OF SOMEONE THAT MAKING THEM ON E-BAY? …

Author: Janina K
0 Votes
0 This question has no answers.
NO to vaping CBD oil

There is a post here about people vaping CBD oil. DO NOT DO THIS. YOU SEE IN THE NEWS THIS SEEMS BEHIND THE DEATHS THAT ARE HAPPENING.

Author: netmouse
0 Votes
5 Answers
What are some good resources for Medicare, to get best plan for ME?

Medicare Rights Center has medicareinteractive.org. It also has a tollfree helpful helpline, 1-800-333-4114. There is free bi-weekly newsletter with good information you can sign up for as well, Dear Marci. you can learn more at medicarerights.org.

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.