To answer some of the questions regarding posts promising a cure, I felt that I owed it to the community to provide an explanation as to why those posts suddenly disappear. It is becoming more common that we have people join our community for the sole purpose of fundraising, claiming a cure, or advertising for a business they own or work for, trolling or scamming or disrupting our community.
COPD360 Social was set up for our COPD Community to have a safe place for support, education and socialization. I read all posts several times each day just to make sure that COPD360 Social remains a vibrant and SAFE site for our community.
Some of the posts or users I have had to remove included stem cell clinics, vaping companies, companies looking to exploit our community to validate business ideas. I also get numerous people claiming cures which run the gamut between stem cell clinics and in other cases, people advocating things such as inhaling benzene, smoking meth or pot or even using cocaine. In regards to Stem Cell clinics, our recent position paper (along with all other reputable Lung Organizations) states these treatments are not effective, very expensive, not covered by insurance and in reality are quite dangerous. I can assure that if something comes to us that is particularly promising you will be the first to know; Remember, I am a patient myself! Just keep in mind that if someone really has a cure they won’t have to announce it on our site…It will be in newspapers all over the world!