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first off thanks for replies and comments to all my other questions and concerns!!
In regards to all the exercise and rehab comments, we are well versed on that. My dad won't do rehab at facilities anymore for couple reasons. One, it's just too hard to get out. Second, last time he was at one 3 years ago he got really sick and it's was a bad situation to where he ended up with tube down his throat for two days to breath. So outside house is not an option. Has had therapists come to house after stints in hospital and rehab.
But to my main reason here. There is no real ideal time to discuss is things just aren't getting better or if they will get better. If he says it will never get better and you agree or think too long about it, he gets upset and thinks I'm giving up on him. If you disagree, he thinks you are lying or are crazy cause you don't see the decline or no improvement. And there is no way to say all this without sounding selfish or like I'm giving up. But bottom line is he is unable to be alone or do anything other than go to the bathroom or walk around for exercise. Both which are exhausting for him. Also eating has become extremely difficult cause he can't fill up because his lungs are to enlarged so filling up pushes up on his lungs. So meals or snack are every 3 or 4 hours which requires me to be there. I no longer work which is killing me too. But I feel I need to be here because no on else is.
So I'm extremely exhausted and don't know how long this can go on. When pushed to exercise he says he's doing what he can. When pushed to eat he says he's not hungry or can't eat anymore. It's such a double edge sword as you all know.
Any ideas or comments from own experience is greatly appreciated!
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