0 Votes
1 Answers
Bronchitis & emphysema

As a general rule of thumb, if you have a case where chronic bronchitis is predominant, you'll probably have more coughing and mucus/sputum/phelgm production. But I also agree with Gail above, in that we're finding out more and more that it's more …

Author: Prieto74
0 Votes
10 Answers
Anyone know how accurate oximeters are from places like CVS are ?

In 15+ years I have tried a number of pulse oximeters. Here is what I have found: 1. The most expensive isn't necessarily practical or needed 2. The cheap ones are usually exactly that....Cheap. Point, at several "shows" I have tried the cheap ones. In …

0 Votes
3 Answers
Getting very forgetful.....

OK, i'm late stage IV Emphysema. (quite late) I have noticed lately that I have been loosing words in more than usual in sentences. It's really getting bad. I have to make a joke when I am out with people, to let them know I am aware of this. The words …

0 Votes
11 Answers
How long do I have?

I have 7mo's 14days 14 hrs and 45 mins left, according to the last doctor I saw but they have been wrong before. LOL I was told I had 2 years left in 2013 and to start transplant processing (FEV1 24%).... I chickened out then. In 2015 I was told "less …

Author: Sylvia1957
0 Votes
8 Answers
breathe easier after meds

Do you find you can breathe easier after using your medication

0 Votes
3 Answers
How hard is it to get disability for copd

It's it hard to get disability for for cop

Author: Tomtassoul
0 Votes
2 Answers
Herbs for COPD

Does anyone else take herbal supplements for COPD ? I take Panax Ginseng, Vitamin D3, Co Q-10 and a multi-vitamin.

0 Votes
2 Answers
Looking for Patients in the UK or Surrounding Countries to participate in an Interview for GSK

We are working on behalf of GSK to provide a variety of different patients in Great Britain or surrounding countries willing to be interviewed about their experiences and symptoms with COPD. Below is the letter from GSK with their criteria: We are …

0 Votes
28 Answers
How were you diagnosed with COPD?

I'm going to add my story and you guys need to know that I really want to participate because I'm using probably the crappiest keyboard I've had in my life (!) Oh, how I hate this keyboard! In 2006 I was being fitted for a SCBA respirator by an …

Author: Mark S.
0 Votes
11 Answers
Feeling Scared Of Drs Visit

Hi I have been diagnosed with Emphysema last week while on holiday in the USA. I did a post about this before here. I didnt really feel many symptoms , and was prompted to go the hospital with a bad throat and some chest discomfort that turned out to be …

Author: Dino68
0 Votes
3 Answers
Standard Letter for 02 & Airlines

is there a standard letter form to get from Doctor for flying I have to pay $60 for form to get filled out and wondering if there is a universal one I could use for future flights. Thanks Diane

Author: di545
0 Votes
5 Answers
Are you doing better yet? And other questions that might bug us.

I hate to answer the phone and be asked that question. It puts pressure on me. I don't want to say I'm fine and neither do I want to say, life is sucking pretty much. And I also don't even want to talk about it often. Sometimes I want to be in a state of …

Author: eves
0 Votes
9 Answers
How do you interpret your world with copd?

I have always been on the philosophical side, a bit of a curious mind, a fighter and advocate for the 'underdog' and won't be intimidated if my view is not popular with mainstream ideas. I am sometimes misunderstand because of my traits. I love the …

Author: eves
0 Votes
3 Answers
Do some of you have problems with severe spasms in their rib cage, underneath the breast?

I can often feel the spasms coming on and I can actually watch them move from one side of my abdomen to another. I guess I should say abdomen and rib cage. These are not bad. The ones that bring me to attention are the ones that start next to my spine. …

Author: DavinaT
0 Votes
1 Answers
apnea and cpap

I just got diagnosed with OSA and the doctor also added supplemental oxygen at night only as my sats were 84/86 during the sleep study. However, medicare denied coverage for the oxygen and I then asked the supplier to contact her and review that decision …

Author: Evie
0 Votes
9 Answers
What would you like to see in a COPD App??????

An electronic form of the Action Plan document, that can help with symptom recognition and triggers! Perhaps links to the inhaler-use videos? I would submit that API links to popular fitness apps (Fitbit, MyFitnessPal, etc.) might work better than …

0 Votes
6 Answers
Copd with shoulder pain

l have shoulder pain is this normal.The pain comes and goes l read that it is due to drinking alcohol which irritates COPD. Is this true

Author: Jetty
0 Votes
9 Answers
Sleep disturbance

I go in spirts I may sleep good for a while then not sleeping well. If I stay up late then I usually can go right to sleep.

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0 Votes
2 Answers
Where can I move to breathe better? I am dying in SE Tennessee.

I am not joking. I am dying here. The Dr.'s don't have me on anything but 2 inhalers, albuterol and Flovent, and Singulair for allergies. I don't have a Pulmonary Function Dr. I am wheezing 27/7 and allergic to every tree and weed in TN. I am on SSD and …

Author: Juliana727
0 Votes
5 Answers
elevation effect on someonr moving to colrado with copd

I'm bring my brother (65) from sea level out to Colorado to live with me He currently is on oxygen all the time and has been Irving in an assisted living facility. My question is with him on oxygen all the time will the elevation change have a negative …

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0 Votes
8 Answers
Why is person-centered care important to you?

Why is person-centered care important to you? Whatwould you like to tell health professionals about person-centered care? What does that phrase: “person-centered care” mean to you? Have youexperienced it? If so, what happened? If not, why would you …

0 Votes
5 Answers
Depression

The fact that there are so many DIFFERENT TYPES of depression should be taken into consideration. I have a feeling there are depressions that the medical community doesn't even know about and, as such, know less how to diagnose/treat it. It cannot all be …

Author: Milton14
0 Votes
6 Answers
Interview Request for COPD Patients (paid)

I'm willing but still haven't heard back from GSK about whether they would like to work with me. ;-)

0 Votes
8 Answers
DRINK LIQUID OXYGEN??

A health consultant just told me I should be drinking stabilized liquid oxygen twice daily for copd and all of my other ailments. I guess it's some kind of a "miracle cure". She had me going until she mentioned that she could order it for me. So she's …

Author: Russell954
0 Votes
3 Answers
Pulse

Even when having exacerbation, pulse oximeter still says 97 - 98%, but I am suffocating. Any one else or anyone know why?

Author: Kalekea
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.