COPD Foundation Hosts Second-Annual COPD Global Patient Leadership Summit
WASHINGTON, D.C. – November 2, 2015 – The 2nd COPD Global Patient Leadership Summit was held in Paris, France on October 28-30, 2015. Building on last year's summit in Madrid, Spain, this year's meeting welcomed patient representatives from additional countries – some traveling from as far as Australia, New Zealand, Singapore, China, and Canada. Dubbed the 'United Nations of COPD,’ there were a number of informative presentations outlining problems, solutions, projects, and ambitions that dealt with regional as well as global issues. The event was organized by the COPD Foundation along with input from the leadership of a number of partner organizations.
Presentation topics included:
- Genetic COPD: Rabiya Taok, Beirut, Lebanon
- COPD in Urban Environment, Shirley Ngai, Hong Kong, China
- COPD in Rural Environment, Adel Khattab, Cairo, Egypt
- History of the Czech COPD/Lung Patients Organization, Stanislov Kos, Prague, Czech Republic
- Pulmonary Rehabilitation: Thinking of the Patient's Needs, Jos Donkers, The Netherlands
- How to influence government policy and advocate for better diagnosis and treatment, Lan Thi Thuyet, Vietnam
- Pulmonary Rehab and Air Travel for COPD Patients: Dan Smyth, Ireland
COPD Foundation president and co-founder, John W. Walsh, discussed the increasing role of innovative technology in the Foundation’s research and community-building initiatives, namely the COPD Patient-Powered Research Network, COPD Crowdshaped, and COPD360social. Mr. Walsh stressed the importance of digital tools for patient advocacy and care-delivery, and described the benefits of such technologies for increased global collaboration.
“The COPD Global Patient Leadership Summit is a rare chance for patient advocates to participate in a robust dialogue around COPD- a disease-state that receives disproportionately low levels of care, research funding, and general awareness worldwide,” stated Mr. Walsh. “The Summit addressed the key concerns surrounding COPD, and the findings from this meeting will shape the future of COPD advocacy on a global scale.”
About COPD Global
COPD Global’s mission is to establish a collaborative network of COPD related stakeholders, to promote global communication, early detection, and unified access to care for the COPD community worldwide. COPD Global is a program of the COPD Foundation.
About the COPD Foundation
The COPD Foundation’s mission is to prevent and cure chronic obstructive pulmonary disease and improve the lives of all people affected by COPD. The Foundation’s activities focus on achieving these results through research, education and advocacy programs. To learn more or get involved, call the C.O.P.D. Information Line at 1-866-316-COPD (2673) or visit www.copdfoundation.org. To become a member of our community visit www.copd360social.org and join the conversation.