COPD Foundation Collaborates with Leading Healthcare Organizations, Plays Influential Role in Ensuring Strong Patient Focus and Improving Health
October 28, 2013 |
WASHINGTON, D.C. – October 28, 2013 – The COPD Foundation (COPDF) announces today that the Patient-Centered Outcomes Research Institute (PCORI) has approved a research award to the University of Illinois Hospital & Health Sciences System (UI Health) for the PEer-Led O2 Infoline for patients and CAregivers (PELICAN) study. PELICAN, a broad-based team that includes patients and caregivers, combines input from the COPDF and a national O2 supplier and tests the effectiveness of a peer-led supplemental information line and whether it leads to increased O2 use and outcomes important to patients.
“This gives us the opportunity to build evidence for the value proposition of our C.O.P.D. Information Line, a toll-free number for peer-to-peer information and referrals on COPD by patients and caregivers impacted by the disease,” says John W. Walsh, president and co-founder, COPDF. “We’re grateful to have this chance to build the COPDF’s credibility as a research organization, and showcase our value to the patient community as an organization actively working to improve their quality of life and outcomes.”
The study will address patient attitudes and beliefs about O2, including confidence in their ability to use O2 and their understanding of the benefits of using O2 as prescribed. PELICAN has the potential to greatly improve appropriate O2 use and quality of life of COPD patients, by using a non-invasive strategy tailored to their needs.
Jerry Krishnan, M.D., Ph.D., professor of Medicine and Public Health and associate vice president for Population Health Sciences Office of the Vice President for Health Affairs (VPHA), will lead the PELICAN research project at UI Health.
In addition, the COPDF will provide input on two other significant contracts:
- PATient Navigator to rEduce Readmissions (PArTNER), to study the effectiveness of “patient navigators” to reduce readmissions. In collaboration with UI Health, the COPDF will focus on testing a program that combines proactive lay patient advocates from the community in which the patient lives with a peer-led telephone information line to increase social support, improve self-efficacy, and reduce anxiety in patients being discharged from UI Health. The study will provide patients with information that will help them make better-informed decisions about their care. Patients admitted to UI Health for COPD, heart failure, pneumonia or sickle cell disease will be matched with local community laypeople trained to navigate patients through their treatment plan after discharge and help resolve any issues that may interfere with their care.
- Johns Hopkins University was awarded a PCORI contract for an Integrative Multi-level Study for Improving Patient-Centered Care Delivery among COPD Patients, for which the COPDF will play an advisory role, helping to ensure a strong patient focus throughout the application and research project.
Walsh adds, "These projects have the potential to greatly improve patient experience and other outcomes using strategies tailored to the needs of the patients and caregivers they serve. They will also enable the COPDF to expand its reach into the co-morbid disease communities, where we can have an even greater impact on those who live with COPD.”
About the COPD Foundation
The mission of the COPD Foundation (www.COPDFoundation.org) is to prevent and cure chronic obstructive pulmonary disease and to improve the lives of all people affected by COPD. The C.O.P.D. Information Line, 866-316-COPD (2673), is a toll-free number for information and referrals on COPD, offering callers access to peer-to-peer patients and caregiver associates. DRIVE4COPD (www.DRIVE4COPD.org) is a public awareness and education campaign of the COPD Foundation.